Newly Diagnosed Over Active. what were your symptoms? Mine are stomach related :(

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So April this year I started with the following symptoms:

Sweating (changing clothes 3 times a day)

Extreme tiredness

weightloss (2 stone in 2 months)

Belly ache low down

Took ages for Dr to take me seriously as I suffer woth Health Anxiety, so was dismissed more than once!

In july I finally came across a lovely gp who listened and was thorough. . Turned out I have an overactive thyroid and I have appointment with specialist this month.

I was given medication (forgotten name)  20mg twice a day.

After a week of taking it I felt brand new@!

So, I was shocked when bloods came back dodgey again requiring me to need an extra tablet!

Been on the extra tablet 3 weeks and here we go again with the same symptoms.

Mainly stomach related as before. 

My questions to fellow sufferers:

Anyone else suffered with the above symptoms and how long did it take to get right dosage.

Going out of my mind! !

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6 Replies

  • Posted

    Hi Lisa

    yes I get stomach issues too. When I feel really unwell I get cramps and loose motion but I also have multiple chemical sensitivity and extreme body pain legs back hips shoulders chest arms hands and wrists. I sometimes get numbness in my face. I was diagnosed 3 years ago but have been ill with it for 6 years. I was allergic to carbimazole so i take ptu.  Regardless what my TSH is doing, most of the time I feel awful. I think it affects us all in different ways. Look up the side effects of your meds they may be causing stomach cramps. If you are meant to eat before taking them, make sure you do.

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  • Posted

    Hi Lisa

    Sorry you are not feeling great, Graves is a nasty disease which most people including endos do not seem to fully understand!

    I've been battling with it since 2007, won't bore you with my details but just to let you know where I am up to at the moment.  I decided to try alternative treatment after coming totally disillusioned with the medical profession.  It is a long road ahead, I know that and I am yet to see some really positive results but I have not given up yet.

    I'm now working with a Naturopath so am hoping things will improve going forward.  My ND believes the route cause of most of my health issues is my many amalgam fillings in my teeth.  Some believe it is fairly unbelevable and controversial but after doing lots of research I do believe this is an issue for me & I'm really shocked that I have so much toxic mercury in my mouth!

    So I'm hoping I am on the right path back to health now albeit a long one!

    I wish you well in the future and if I could recommend one thing I would suggest doing as much research as you can so you understand what is going on in your body, remember it is not your thyroid that is broken it is your immune system that is  being over stimulated - not that any endo will tell you that! 

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  • Posted

    Hello

    Thank you for the replies, really helpful.

    I had bloods taken again yesterday so will see what they come as...

    Due to my Health Anxiety I try not to google smile

    But finding this forum a comfort. 

    Hope you are all doing okay 

    L x

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    • Posted

      Restless, irritable, poor sleep, hand tremors, palpitations, sweating, thirsty, toilet a lot, skin problems, tiredness, muslce weakness, eyes hurt...

      I try not to google either as I feel sick when reading about medical things.

      I do have stomach issues too, but I assume they are related to my GERD and not Graves.

      Been on meds for 5 months and not noticed any positive difference. I felt a little better for a while I suppose, but now feel bad again. Hopefully when I have my bloods this week ready for next weeks Endo apptmnt, it won't be bad news.

      All the best, hope you feel a little better soon.

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  • Posted

    Still waiting to get more blood work to see what exact thyroid problem I have, I have horrible anxiety, tiredness, sweats, and panick attacks. Was given Hydroxizine, but this was before they knew it had to do with the thyroid, and the DR. Thought it was more of a mental problem.
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  • Posted

    HI lisa

    Oh that's one of the doctors favourites with thyroid disorders.  I was told for 3 years "it's in your head" see a psychiatrist.  They get on my nerves.  Are you getting body pain too.  I have awful anxiety, breathlessness, palpitations, muscle and joint pain.  I have been diagnosed with hyperthyroidism with multi-nodular goiter.  Doctors still insist that these aren't typical thyroid issues and there must be an underlying condition.  I have been tested for most things and they are confused to what is causing this.  Have just done a test for Lyme & co-infections and am waiting for the results to see if thats my underlying problem.  I tested positive to mould (mycotoxins) and I have a couple of T2 bright sports on my brain MRI which is consistant with either lyme or age.  Regardless, the PTU and propranolol aren't helping my symptoms much.  What have you got, Graves, toxic nodular, multi-nodular?

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