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No available treatment for fatigue

Posted , 4 users are following.

christine95213
christine95213

My pain is reasonably well managed at the moment and in fact I'm gradually reducing pregabalin as a start to reducing to a minimum sedating medication.  I am so fatigued I don't know how much longer I can go on having one day a week when I manage a bit of housework and the rest crawling between my sofa and my bed.  I know in some countries there have been studies on stimulants for this.  These appeared to have had good success rates but I have heard no more.Has anybody heard about this?

0 likes, 6 replies

6 Replies

  • christine26761
    christine26761 christine95213

    Posted

    The only way I can manage my day reasonably well is to have a good nights sleep..which I do nicely now...taken a while......stress free is the key to Fibro too..

    stress makes nearly every symptom flare up, I used to worry all the time about every symtom that would present itself..but worrying changes nothing -(for the good) but a good sleep pattern is excellent...have a lovely day Christine. Be blessed..:-) xxx

  • christine95213
    christine95213

    Posted

    Thank you for your reply christine26761.  It used to be that way for me when I got a good natural night's sleep but however long I sleep for, I wake unrefreshed.  I have had CFS for 25 years and did manage a long period of remission.  When it returned about 10 years ago, they told me it was fibromyalgia this time.  I've had years to try every suggestion in every book - or support group, etc but nothing relieves my fatigue now.  I can't avoid stress as I could back in the late 80s because I now have an 89 year old Dad who is in poor health and live on the paltry handouts I have to beg for (after working for 40 years).  I posted the question because I feel that I have nothing else left to resort to.  It is a last resort!  
    • christine26761
      christine26761 christine95213

      Posted

      Poor you Christine...I've had this rotten CGS & Fibro for 22 years now, I was diagnosed with Sorjrens Sydrome a couple of years before that..trouble is all the symptoms are almost the same..bar a few..I'm on Amitriptilyne 25 mg I take one a night an hour before bedtime..it was  originally prescribed as an antidepressant, because it numbs the pain at the nerve end..stopping it from travelling to the next nerve then throughout the body, so then it was prescribed for pain and it's really good for sleep..if your dosage is too high as mine was years ago when first prescribed it, I was like a zombie all day..but this is the right amount for me..I guess the low dose antidepressant also must help somewhat...really feeling for you Christine...especially trying to help your dad too...it's just soo very hard sometimes.....it's usually when we feel we are at our last resort that there is something coming that will help around the corner. Really hoping and praying for this for you..be blessed...have a lovely day...if you can Christine..:-) xxxx
  • shelagh6
    shelagh6 christine95213

    Posted

    Hi Christine, I'm not sure reducing your Pregabalin is a good idea, it is a very expensive drug, one months supply of the lowest dosage costs almost £100 your GP must have thought it worthwhile. Apart from that it could be the pain is well managed because of it, it would be awful to take a backward step with everything else you have going on. If you're in the UK it's unlikely you will get stimulants from any doctor although it's worth trying. 

    Have you checked you are getting everything you are entitled to with either the CAB or Welfare Rights? I'm out of the loop now for benefits available but it would be worth checking.

    hope you have a better day, spring is on the way get as much sun/fresh air as you can it really helps.

    regards

    Shelagh.

    • christine95213
      christine95213 shelagh6

      Posted

      Than you Shelagh6.  I'm very worrried about the new drug  driving laws.  With fatigue, I absolutely need my car.

      I do get everything I'm entitled to as far as benefits go - at the  moment -   who  knows whether I'll get anything at all.  Now that's a really scarey thought!

      I really don't think I've a snowballs chance of getting stimulants either. It's a bit like medical marihuana - even if  it works - what will people think!  I was just desperate when  posted.  Thanks for your caring reponse.

      Christine 95213.

  • Lady-Vanadia
    Lady-Vanadia christine95213

    Posted

    Hi Christine, this is my very first post on here...

    I saw your post and really related to it, I too have got to the end of my tether with the fatigue, eating my days away sleeping or laying down unable to function sad and have been researching stimulants among other things and plan to discuss it with my doctor on my next visit, I have enquired before and my usual doctor (who has now left for a minimum of six months) did not want to go down the stimulant route at all.

    But I cannot carry on like this, and am now willing to try anything to try and claw back some quality of life, I am a single mum and have three gorgeous daughters (two who still live at home) and i don't want to miss out on any more of their childhood due to the crippling fatigue sad

    Please let me know how you get on hunni, and I'm very sorry to hear about your dad sad

    *sending big gentle hugs*

    Vanda smile xXx

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