Posted , 4 users are following.
My pain is reasonably well managed at the moment and in fact I'm gradually reducing pregabalin as a start to reducing to a minimum sedating medication. I am so fatigued I don't know how much longer I can go on having one day a week when I manage a bit of housework and the rest crawling between my sofa and my bed. I know in some countries there have been studies on stimulants for this. These appeared to have had good success rates but I have heard no more.Has anybody heard about this?
0 likes, 6 replies
christine26761 christine95213
Posted
stress makes nearly every symptom flare up, I used to worry all the time about every symtom that would present itself..but worrying changes nothing -(for the good) but a good sleep pattern is excellent...have a lovely day Christine. Be blessed..:-) xxx
christine95213
Posted
christine26761 christine95213
Posted
shelagh6 christine95213
Posted
Have you checked you are getting everything you are entitled to with either the CAB or Welfare Rights? I'm out of the loop now for benefits available but it would be worth checking.
hope you have a better day, spring is on the way get as much sun/fresh air as you can it really helps.
regards
Shelagh.
christine95213 shelagh6
Posted
I do get everything I'm entitled to as far as benefits go - at the moment - who knows whether I'll get anything at all. Now that's a really scarey thought!
I really don't think I've a snowballs chance of getting stimulants either. It's a bit like medical marihuana - even if it works - what will people think! I was just desperate when posted. Thanks for your caring reponse.
Christine 95213.
Lady-Vanadia christine95213
Posted
I saw your post and really related to it, I too have got to the end of my tether with the fatigue, eating my days away sleeping or laying down unable to function and have been researching stimulants among other things and plan to discuss it with my doctor on my next visit, I have enquired before and my usual doctor (who has now left for a minimum of six months) did not want to go down the stimulant route at all.
But I cannot carry on like this, and am now willing to try anything to try and claw back some quality of life, I am a single mum and have three gorgeous daughters (two who still live at home) and i don't want to miss out on any more of their childhood due to the crippling fatigue
Please let me know how you get on hunni, and I'm very sorry to hear about your dad
*sending big gentle hugs*
Vanda xXx
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