No diagnosis

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Hello- for 18 months ive had on & off itching sensations in my vulvar region. They occur in the upper thighs, inner vagina (where a tampon would be), pubic hair region sometimes, but mostly in the lips of the vagina. It is basically all day every day on and off. Sometimes it feels like a stinging senstation. Not painful, just annoying. I also tend to feel like I need to urinate more, and it feels raw to the touch sometimes. I havent had intercourse in months because the last time I did, it felt uncomfortable.

When it started, I was told I had yeast by my OBGYN. So I took diflucan, monistat, even inserted boric acid suppositories and yogurt. Months went by seeing 5 different doctors and besides an occaisional diagnosis of Yeast or BV (treated with Flagyl) they didnt have any ideas. I had them do cultures 3-4 different times since then, for chlamydia, gonorhea, trich, yeast and BV. All of them came back negative multiple times. Last june my symptoms came back bad. I went to my PCP and had blood work done for HIV, herpes, and a ton of other things. My blood sugar levels, etc. Everything came back normal. Im 23 years old so I'm certain it couldnt be a hormonal issue, but I'm running out of ideas. I've taken probiotics, changed to all unscented soaps and lotions, etc. 

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  • Posted

    Im having a similar problem, very bad symptoms and all tests keep coming back negative... have been to GUM and Drs many times now, coming to my wits end! 

    have another appointment on Tue, will let you know if I get anywhere!

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    • Posted

      Hey there! I have been and seen a new lady doctor, she had another look and said there was discharge around the cervix, and took another swab, which came back negative as all the others have.

      She also said the rest looked normal.

      I do have the mirena coil IUD however, which is inside my uterus and could be the cause of my problems, so I have researched other forums to see if other people have the same problems and they do!

      The doctor referred me for an ultra sound scan which is on friday, and possibly a gyneacologist referral if needed, however I have made an appointment with the local gum clinic to discuss removing my coil, as I am now convinced it is the root of my problems, rather than any infections.

      What contraception are you using? it could be the cause x

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    • Posted

      I'm not using any form of contraception except for condoms, however its been months since I had sex so  I know it isn't a latex allergy. So really, there is no known cause for the symptoms. sad
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  • Posted

    I have something similar and all tests for thrush, BB, STI's etc are coming back negative, I have no idea what to do after being to both my GP and GUM clinic many times
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    • Posted

      I had been reffered to a vulvar clinic after all my cultures came back negative. They took a biopsy and tested the tissue to check for different things. The results came back all normal tissue however it did look irritated so I am starting steroid creams. She said if the skin doesnt respond to that, I probably have vulvodynia. However since the skin came back irritated, it gives her the idea that it is just inflamed irritated skin, not nerve damage. See if u can have a biopsy done
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