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No more Esmya

Posted , 5 users are following.

julie51050
julie51050

Thank god for this forum if it wasn't for someone telling me about the health scare I wouldn't have known. So I went to the doctors today armed with the paperwork saying women to have no more Esmya without liver blood tests and she was shocked she hadn't heard about it . I asked if I should start my next course and she said no and booked me in for a blood test tomorrow. So ladies if you are using this medication to shrink fibroids check in with your doctor xx

2 likes, 10 replies

10 Replies

  • diana80586
    diana80586 julie51050

    Posted

    I second this - thank you Julie and thank god for this forum. I have yet to hear anything from the hospital consultant who put me on this drug in the first place - I had to make an appointment with my GP to find out what to do next. I too have a liver function test at the doctor tomorrow morning. As for what happens now - who knows...? Good luck everyone with your tests and next steps, whatever they may be... xx
    • julie51050
      julie51050 diana80586

      Posted

      Diane , when I asked why wasn't I contacted about this she looked on my notes and Esmya wasn't listed on there, she said that was because it was issued by the gynocologist ! Surely it should have been added to my notes especially as the doctor fills out the prescription ??? I was about to start my 3rd course this week so not sure whats going to happen now . 

  • heather34376
    heather34376 julie51050

    Posted

    Same here, I found out about this from Mas on this forum, I was seeing a specialist yesterday, (not usual gynie) he knew all about it. My other gynie has prescribed it for me 4 times & I have recently finished it. Yet they've known since I started taking it I've had right sided abdominal pain & a liver cyst that has dangerously increased in size. Off to dr's.

    • julie51050
      julie51050 heather34376

      Posted

      heather I was just wondering how you got on , hope your ok. Had my liver bloods back today everything seems fine but now concerned that with no more esmya what my options are. Just so happens that ive been pain free since xmas however the dreaded backache and pains returned this weekend . Seeing gyno in May and scan in april to see if the little critters have shrunk any doesnt feel like it the moment. Just hope your ok xx
  • heather34376
    heather34376 julie51050

    Posted

    Hi Julie,

    Your mail this morning prompted me to call my GP, the receptionist said, it would seem it has come back satisfactory. So I suppose that has to be better than not satisfactory. I would have preferred another word than satisfactory but that's enough to put my mind at rest at the moment.

  • heather34376
    heather34376 julie51050

    Posted

    Thanks very much for asking. Have you thought about Zoladex?
    • julie51050
      julie51050 heather34376

      Posted

      No I haven't looked at that one Heather. Ill do some research on it. Got a scan in 5 weeks to see if any shrinkage with the fibroids and seeing the gyno in May. x

       

    • sophie38439
      sophie38439 julie51050

      Posted

      Hello

      Interesting reading. So after three months of Esmya and no shrinking, but a liver cyst noticed, should I be worried? Would Esmya have caused this?😣

  • jess95787
    jess95787 julie51050

    Posted

    For any Canadians (or Americans) reading this post, Esmya goes by "Fibristal" in North America and was supposed to be a better alternative (less side-effects) to Lupron injections. 

    Health Canada has also called for a pause on Fibristal use until further testing/research has been conducted! 

  • sophie38439
    sophie38439 julie51050

    Posted

    I still cannot believe i had to tell my own GP and going for blood test next week. Knew nothing about it!
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