normal gallbladder but still have horrible pain.

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I had my gallbladder removed with keyhole surgery over 6 years ago, which was found to be totally normal with no stones or sludge. I have had the same pain for over 20 years with no clue as to what is the cause. Had a Nissens fundoplication op in case it was acid reflux but had that reversed as it was not the cause. Still had the pain. It goes from right side where gall bladder was up to right shoulder to the back and sometimes right over to the right side in the front. Had so many scans and endoscopies all to no avail. Am at wits end as it seems to be getting much worse and everything I eat causes pain. I have been on anti depressants which do not help and my doctor seems unable to do anything more. Have been to Harley street and  a professor up at Guildford hospital and no one knows what to do. Rely on stron pain killers which are becoming less and less effective. Someone please tell me what is going on in my body.

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  • Posted

    Sounds horrible.  Sorry to hear you are suffering so much.

    Tell me - there is no coedine or opiates in your pain killers is there?

    They can cause pain symptoms in some people with gallbladder removed.

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    • Posted

      No, as I learnt that morphine only makes it worse when I was repeatedly hooked up to IV morphine in the ER. I just rely on soluble paracetomol. Only this is not working any more. I also swallow Gaviscon and chew rennies to no avail. In the middle of a nasty one right now. All I ate was some grilled white fish and steamed broccoli.
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    • Posted

      I imagine your diagnosis has been lumped into the IBS category?

      I'm sorry I can't be of any help - it seems there are so many people suffering like yourself with no clear diagnosis.

      I also went through a stage of trying to manage my reflux with prescribed antacids and gaviscon.  After several month of no progress I read something that said that antacids could actually be the cause of the issues.  The theory went along the lines that your stomach can't really be 'over acid' - it is designed to work with hydrochloric acid after all, but it can be 'under acid' - ie the balance isn't right and so it kicks up a fuss and over works to try and digest food giving reflux symptoms.

      So, rather counter intuitively I started drinking Apple Cider Vinegar regularly, and when I had what felt like acid reflux I drank a shot of diluted ACV.

      I have no idea if this is placebo, quack medicine or random luck, but I don't suffer from reflux any more (fingers crossed).  But I did have my gallbladder out as well so it was prob. that as well.

      The only thing that worked for me with the pain was a hot water bottle right under the ribs.  But I imagine you have tried everything.

      I hope you can find some relief tonight.  Sending positive vibes your way smile

       

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    • Posted

      Thanks for the tip which I will try out when I feel a bit less like jumping off a bridge.  I will get the hot water bottle out yet again.
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    • Posted

      carol of all the vegetable i eat and i eat a lot. broccoliie is the one that i just can not digest. i have no idea why. i ate it once with fish myself and felt quite uncomfortable  later it did go awa, but i ate it again and i did feel that it made me feel quite unwell so i dont eat broccolli anymore at all. thats when i reazlized that it was the broccolli. thats my  experience anyway. as not all vegetable are easy to digest. i make lots of organic lentil soup and fill it with all sorts of veg and i know im getting some vitamins that way as i have a very small appetitie. i seem to get full up after just a few mouthfulls. hope this helps🌹
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  • Posted

    Sorry to hear of your troubles and hope you will find some relief. I am on here looking for answers for myself and have learned how complex these issues can be. I have awful symptoms getting worse awaiting gallbladder op but not fully convinced it will be the answer either and the drs are not totally reassuring. There is something called post cholecystectomy syndrome but I guess your drs will have looked into that already in your case. There can be troubles with the bile ducts after gb removal, again I guess these might have been found if you had them. Did you have a hiatal hernia? I have this and although my dr didn't think it should cause severe symptoms, from reading on here, lots of people do and it seems to occur with gb troubles. I am seeing a chiropractor who has identified some muscles and old injuries relating the the areas I have symptoms so it seems worth getting them worked on in case it helps me, but too early to say, only been once. Then I am trying strong probiotics as my digestion is also painful, again early days with this. Also on colpermin although not dx with IBS as such, this helps me a bit. Some ppl swear by castor oil packs on abdo to help with pain - not tried this either but use aromatherapy oil blend on abdo and this does help a bit. Sorry not much help but good luck x
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    • Posted

      Hi Cynthia

      Thenks for the response. I have to say that my gallbladder showed nbo signs of stones or sludge but I and the dovs all thought it might be the cause of my pain so out it came. I also had a hiatus hernia which they repaired but it too was not the cause. I take probiotics every morning and really do watch my diet, but at the moment anything that passes my lips causes pain.  This is the worst it has been and I am convinced there is a problem somewhere, probably with my bile duct. I have asked my doc to refer me to St Marks hospital in Harrow as they have a reputation for excellence in the gastroenterology field. I really do not know what else to do. I have holidays booked and trips out and I am scared witless to go anywhere. when I get attacks, I am totally incapacitated. I dread air travel or long train journeys in case it happens.  Do you have attacks which do this to you? I have seen chirpractors, reiki healers acupuncturists etc etc all to no avail. Good luck with your efforts. I really do think there should be more research into this phenomenon as so many people seem to be suffering with it.

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    • Posted

      Hi Caro, seems like you have been unlucky to have had 2 ops with no relief and still not resolved. It has not been a typical gall bladder story for me, although I have stones and many symptoms shared by others with attacks, my pain has been more chronic and constant and on the middle to left rather than rhs and acute/ related to fatty food etc. For me the constant nausea, terrible gas and bloating and vagus/ giddy attacks, exhuastion from little sleep were incapacitating - only had occasional severe pain. I already did not eat very fatty foods or big meals due to past indigestion and acid, which dr thought was due to H pylori (treated and gone) and the harsh antibiotics I believe did mess up stomach biochemistry. Hence the probiotics.

      Since scans and tests (mostly clear) they found stones on the ultrasound and h hernia on CT (plus a small diverticula).

      Like me, I see you have been very proactive trying out all possible sources of help, all very frustrating and expensive I should think. I agree it all needs much more research, but we all know the politics and economics involved. I am struggling to eat solids and just feel unwell all the time, yet bloods and tests do not indicate anything major. Your life is on hold with these conditions indeed. Have yr drs looked into sphincter of oddi dysfunction? Apparently can be a problem post surgery for a few folk, according to stuff I have read. (I am an ex worker in some health research fields and former nurse, hence thirst for info, though in no way did I know much about this sort of thing before and maybe not much more now, it seems so complicated). Anyway apols for the long post and I wish you success in your search, let us know how things go. x

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    • Posted

      I too had H Pylori which was treated with antibiotics, and as for Sphincer of Oddi, I saw a doctor in Harley st who said I had type 3. Other doctors since have dismissed this as I don't have the nausea and vomiting associated with this. I do try to eat sparingly and mostly foods which are supposedly easy to digest, but lately even cereal, and white fish and veggies cause pain. I think I am an expert too as I have had this for so long and seen so many doctors. I lived in France for nearly 5 years and they too were baffled. Endoscopies and colonoscopies all proved negative as do most blood tests although my liver function is spiked when having an attack.  If there was a pill I could take as soon as it comes on, which is quite suddenly , then I could bear it, but nothing works quickly if at all. I guess there are worse things to suffer from but this does need research as it is so life limiting.
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    • Posted

      H Pylori is being researched a bit now and it seems it may have wider health effects than used to be thought, strange how many people have had all these things going on, wonder if some link? I agree with you if there was some remedy, even just to relieve symptoms, it would be a real breakthrough, if only someone would fund research.
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  • Posted

    i cant understand why they took out your gallbladder if there was no sludge or stones, didnt they do a scan first?

    if you do try the apple cider vinegar. make sure you get the correct one as it has to have the mother in it. and its best to be cold pressed and organic. i get bratts organic apple cider vinegar. a huge bottle costs about £7 from amazon. i put  4 teaspoons in a tall glass of water with some slices of lemon and slices of orange and some chopped ginger. its really very nice if you make it into a tall drink. i just sip it through the day. and if im going to have a meal i take quite a few gulps half and hour before eating. i very seldom take omperazole or anything for indegestion.im so sorry to hear that you have been in pain for 20 years. it must be terrible and with no one finding out whats wrong is worse. i have suffered so much with this gallbladder pain so i can imagine how your feeling. i feel for you. i hope you find an answer soon. keep in touch and let us know how you get on with the vinegar. please give it a try and its good for lots of things as well as digestion. as we are supposed to be acid in the stomach, good luck dear.💐🙏

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    • Posted

      Thanks for your words of encouragement. I will certainly try the apple cider vinegar when things have quietened down a bit. 
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