Normal thyroid results for almost 9 years
Posted , 12 users are following.
For those of you who are new to a hyperthyroid diagnosis of Graves disease, I want to give you all some hope. Here are my latest thyroid test results which are all normal and have been for almost 9 years now.
Range for Normal
TSH 0.87 (0.35 TO 4.94)
FT3 3.8 (2.6 TO 5.7)
FT4 13 (9 – 19)
Alkaline phosphatase 63 (40 – 150)
ALT 11 (7 to 40)
They are all in the normal range while I am on a very low dose of Methimazole and supplements. Thank God I found the research on carnitines & other supplements & thyroid. I have kept my lab tests within the normal range since 2009 (almost 9 years now). It does require good follow up and lab tests and adjustments occasionally in drug or supplement dose but I feel normal and I am glad I chose this method of treatment. It also helps that I have a wonderful doc. It wasn't always that way but we learned from each other and I feel we have a good doctor-patient partnership now. I see him twice a year now unless I run into difficulties, in which case I can call for a sooner appointment.
4 likes, 45 replies
Guest linda187
Posted
linda187 Guest
Posted
Regular L-Carnitine raised my TSH slightly. It does help patients who have weak muscles with this disease. Acety-L-Carnitine really raised my TSH but requires more frequent monitoring and adjusting. Hashimoto patients do really well on Regular L-Carnitine alone. Patients who have both Graves and Hashi's benefit from a very low dose of meds plus Regular L-.Carnitine but again it takes frequent monitoring initially to find their correct dosage.
Guest linda187
Posted
Thank you Linda ,I understand my thyroid levels since 2011
t3 : 10.04pmol/L ( 3.6-6.5)
t4 : 17.0(9.0-19.1)
tsh 0.01 ( 0.35-4.94)
2012....
t3 :5.64
t4:13.2
tsh 0.01
2013.....
t4: 13.0(9.0-19.1)
tsh :0.01mul/L( 0.35-4.94)
..........2014 July
t4: 9.8(9.0-19.1)
tsh :0.20( 0.35-4.94)
2014 October ...
tsh 1.3mU/L ( 0.35-4.94)
2015 January ....
tsh : 1.5( 0.35-4.94) .....
1 July 2015 ....
t3 : 7.66( 3.6-6.5)
t414.4(9.0-19.1)
tsh :0.01 mU/L ( i didn't feel very well anxiety )
.......2 September 2015 ...
t3:8.63( 3.1-6.8)
t4:16.2(12.0-22.0)
tsh :0.01
..........13 January 2016 ....
t3:9.30
t4 :14.2(12.0-22.0)
tsh:0.01(0.27-4.2) my free t3 going up I didn't feel very well i went to hospital .my GP said I was overmedicated thyroid specialist said no he said coincidence ! I don't believe him ......
17 March 2016 .....
my free t3 :11.86 ( 3.1-6.8)
my freet4 :19.3( 12.2-22.0)
tsh : 0.01 ( 0.27-4.2)
...........my GP didn't listen thyroid specialist reduced my antithyroid medication 150 mg PTU
19 August 2016 ....
t3 : 5.67
t4: 10.0( 11.0-23.0)
tsh : 0.01 ( 0.27-4.5) ....
.......it was strange he knew better than thyroid specialist ...
14 December 2016 ...
t3 :4.99
t4: 13.6
tsh : 0.30( 0.27-4.5) my thyroid level was ok I was overmedicated...
madge1979 linda187
Posted
Your a ?? Linda ... and a most generous one at that ... throughout your journey you have continually helped others who have suffered so much ... and I am one of those .. without your help I would perhaps have strayed away from my path .. you give others direction and support and your inspiration is a guiding light for us ... you really deserve to stay well .. youve worked hard to maintain this normal state ... and I hope you will remain that way always ... thank you Linda for all your kind assistance when I've needed it and just for being ....You
Stay well my Friend
Luv mx🌹
linda187 madge1979
Posted
Aw thank you Madge. So thankful for your support & friendship Fellow Traveller.
Mike61308 linda187
Posted
linda187 Mike61308
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Mike61308 linda187
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Interesting! My endo kept telling me to take 5mg after my level was down to the bottom of the range. I forced myself to cut half to keep my level from falling further. Then my level returned to the midpoint (all numbers were at optimum levels except TSI was not tested so unknown). Even then all my endo had to say was "keep taking 5mg"! So again I tried cutting again - skip every other day (2.5mg- can't be cut again physically). Then I was so happy for my euthyroid that I started to stop recently... but for 4 days off, I felt a bit high again, so I went back on... I will continue the on/off route and hope long off will come soon and stay. Anyway, just like to wish you a total recovery - remission soon.
Guest linda187
Posted
Hi Linda, thank you for your update. You might be interested in this article from 2014:
The Prolonged Use of Low Doses of Methimazole Is an Interesting Therapeutic Alternative for Relapsed Graves' Disease Patients
It summarizes findings related to long term use of Methimazole vs RAI.
linda187 Guest
Posted
JayValle linda187
Posted
Here's another good article from 2015 comparing long term MMI and GD and RAI:
Methimazole more effective for Graves’ ophthalmopathy than radioiodine
I'm happy to hear about the safety of long term use as I'll more than likely be on MMI due to toxic nodule.
martha01898 JayValle
Posted
Thank you for sharing this.
What is the source for this article?
linda187 martha01898
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It was published in a Medical Journal called "Thyroid". However, I just googled the title of the article and it came up.
JayValle linda187
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JayValle linda187
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Thank goodness for this site (members :-) and a lot of independent research because the first thing both Endos wanted to do was rush me into surgery or RAI. I'm so happy I said no to both. I hope others in need read this thread and do a lot of research on meds and vitamins as an alternative.
After 2 months off MMI my TSH dipped from .25 to .09. One week back on 2.5mg daily and my TSH is .11, so I know MMI works and has no really bad side effects for me as long as I keep the dose low.
linda187 JayValle
Posted