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Not sure if I'm in the right place but just need someone to talk to who's going through similar

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Tamalou
Tamalou

I will try and keep this as short as possible. I am 24 years old, last year i had a sigmoidoscopy as I had rectal bleeding. I was diagnosed with solitary rectal ulcer syndrome. They wanted to find out more so my consultant sent me for an MRI  Proctagram. The results showed that my bowel was collapsing down around 6-7 cm. my consultant referred me to another consultant in another hospital to get a second opinion. He agreed with my consultant that the best way to approach my problem was surgery and to perform a ventral mesh rectopexy. I saw my consultant a couple of weeks ago and he booked me in for my op on the 13th September this year. A week later I received a letter from the other consultant saying he had discussed my case at a pelvic floor group meeting and would like further testing done to determine the extent of what's going on and to do a better test that shows up clearer. He says he thinks that the advice to repair it with key hole surgery may not be wholly appropriate. So Monday just gone (the 14th) I went in for a fluoroscopic proctagram where they discovered I have a rectocele. I now have to wait to find out what happens next. Anyone going through it been through anything similar? I hate not knowing what's going to happen next. What surgery did you have? How do you cope on a day to day basis? I just feel so low sad thankyou xx 

 

0 likes, 6 replies

6 Replies

  • robyn94818
    robyn94818 Tamalou

    Posted

    Most girls on here had rectocoele repaired (posterior repair) by a Urogynaecologist via vagina. Hence this is the thread for that. Some of us had cystocoele (anterior repair) and others had both repaired. 
  • Nicky1000
    Nicky1000 Tamalou

    Posted

    Hi there

    I too had a rectocele and intussusception (although I'm more than twice your age -54- so not exactly the same situation!)

    I had mine repaired with a mesh suspension about 4 months ago, I also had repair of a cystocele at the same time. My surgery was performed by two separate surgeons, a urogynaecologist and a lower GI specialist. My surgeon said they get better results with an abdominal approach rather than keyhole surgery and although the recovery time is extended they are both very happy with the work that has been done.

    You will always find lots of information on this group and I found it very helpful before I had my surgery.

    Good luck with whatever you and your consultants decide to do. Remember it is major surgery and  you will need to think about what you will be doing in the years to come....working, children etc.

    Nicky x

    • Tamalou
      Tamalou Nicky1000

      Posted

      Hi Nicky, thanks for responding. I've had troubles with my email and have only just seen my replies. 

      So an update on my situation. They are going ahead with my ventral mesh rectopexy. They are doing the abdominal approach too. So far I have only heard horror stories so it is good to hear that you're doing well after your op. 

      In regards to thinking about my future I am a senior carer and plan to go to university to make my way up the ladder. Maybe even become a social worker. I have a five year old son and at this time I don't plan to have anymore. Although I have been told I can still have children but will have to be delivered by caesarean. 

      Do you have any tips for recovery? 

      Tamsin xx

  • Hijadeonagro
    Hijadeonagro Tamalou

    Posted

    Hi Tamalou, I have read a lot about this. I have small rectocele, intususpection and my rectum is prolapsed down towards my perineum. I talked to my gyn who operated me before of cystocele and small rectocele vaginally and he said told me to go colorectal. The colorectal team offers a mesh rectopexy to lift the rectum and to tie it to the sacrum bone. 

    I have talked to many doctors about this and I think a rectopexy is the best option. 

    But I have to say that they don't assure you to be completely well after the op, they say that some patients don't feel improvement. I think that's the reason for doing for tests in your case. In my case I have been done a defecography, manometry, endoscopy. If your docs recommend more test i would do them, you don't lose anything and it is better that the surgeons have all the info before the op. Hugs and good luck!!!!! 😘😘😘😘😘

    • Tamalou
      Tamalou Hijadeonagro

      Posted

      Thanks for responding hijadeonagrosmile 

      I have had my test results and they are going through with the surgery next week. They are going to perform a ventral mesh rectopexy. My previous testing includes a sigmoidoscopy, an defecating MRI proctagram and a fluoroscopic X-ray. 

      Scared is an under statement sad 

      Tamsin xx

  • Hijadeonagro
    Hijadeonagro Tamalou

    Posted

    Forgot to say that if you have a rectocele don't mean anything if it is small... 

    and having a rectocele and a fallen bowel it is possible that the op help both issues. 

    cant you call the doc is going to do the surgery and tell him the news about your rectocele? 

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