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I was diagnosed and had RAI in 2007, in 2013 I started Graves Eye Disease, with the bulging left eye and double vision on that side. After about 2 years they decided to do Orbital Decompression surgery. Big mistake, I have had problems worse than ever, ever since. Numbness on my left side, then they decided since my right eye is bulging I had an MRI and they found inflammed and swollen muscles behind my eyes. SO, they have me on Steroid infusions and I had 10 days of radiation. NOTHING is working. My sight gets worse all the time. I feel like my eyes are sinking back into my head. The numbness is worse than ever (oh and In Nov. I had a biopsy of that left muscle).....I feel like I am being used and they aren't helping me at all............ I recommend NO ONE EVER have RAI for this condition...... and check before any surgeries, biopsies and anything they recommend........... I feel I may be ending up blind from all of this.
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