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nothing works

Posted , 5 users are following.

alanah14
alanah14

Had fibro for over 10 years but only been diagnosed this year. On mst,dyhidracodine, gabapentin, diclofenac and zopiclone occationally for sleep. Still in pain n getting imune to zopiclone. Pain is getting worse and so is mobility. cant take ametriptaline. Running out of ideas.

0 likes, 13 replies

13 Replies

  • HOTpicks99
    HOTpicks99 alanah14

    Posted

    Take morphine and zapain
    • alanah14
      alanah14 HOTpicks99

      Posted

      Mst is the morphine one but I'll defo give the other a go too. Thank you.
    • alanah14
      alanah14 HOTpicks99

      Posted

      Actually just looked and cant take that because I'm already on dyhydracodine.
  • tiswas24537
    tiswas24537 alanah14

    Posted

    exactly why i never chose the route of meds read so many posts and several forums all saying the same or simuliar to what your saying either know better or only working a bit  taking the edge of .

    i am in pain and have been for over 10 yrs range can be anything from 4/10 on the pain scale the fatigue is the worst , and the stiffness iv sort of got used to the pain .but the fatigue and stiffness i find really hard .

    i asked my gp to consider ldn as in small studies its had good results without two many side effects ,but got no where with it because its not lisecened for use with fibro .

    iv gone back on supplements to try and help ,i take colidaul gold, ionic silica ,and ionic minerals . it will take time to see if any good ,but better than nothing ,iv tried gold before and it did help a fair bit .

    • tiswas24537
      tiswas24537 alanah14

      Posted

      just put a search in google your find all the info there  

      easier than me trying to explain it. 

      its low dose naltrexone 

    • alanah14
      alanah14 tiswas24537

      Posted

      Dont think that would be suitable. I have to take the pills or I cant get out of bed dues to serveer pain and stiffness but its all not enough for me to fuction like I did on a normal day. I'm a single parent and I dont drive. Cant use buses because they are unreliable. So I would like to go shopping and to the park in the same day without feeling extreme pain.
    • tiswas24537
      tiswas24537 alanah14

      Posted

      the point is it works on the feel good receptors in the brain so it makes you feel better so hence thats why at the high dose   used for withdrawel 

      it helps adicts not to depend on the highs of the drinks and drugs .

      if i get my benefit again this time i shall  try and get it on private prescription . with an on line consultation that takes 30mins more than you get from gp . if not got to hope that the petiton gets acted on so its available for gps to prescribe for fibro .

       

  • jeanne81532
    jeanne81532 alanah14

    Posted

    You could ask to be referred for CBT which helps you to deal with pain. If you are able to get in the bath, magnesium flakes or Epsom salts in a hot bath helps me. Also hot water bottles or heat pads to painful areas. Have you been to a pain clinic? Mine runs fibromyalgia courses which involve input from psychologist, physio, OT, etc. good luck. xx
    • alanah14
      alanah14 jeanne81532

      Posted

      I thought cbt was only for people with depression, which I don't have but it does sound interesting. Thank you.
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