Now what

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HIDA came back ok. Gastro doc wants me on antidepressants otherwise he's offering no other help. (Great). 

Saturday I'm having a scan on my ovaries. Bit random I know but I'm having bloating unable to eat too large meals, heartburn and diarroreah./ constipation and abdo pain. 

I'm really scared now as in thinking ovarian cancer sad(. I just want this to end. I can't have this constant worry I have cancer somewhere in my stomach any more. It's ruining my life sad((

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13 Replies

  • Posted

    Hang in there, Kim.  Do you have anything for anxiety?  I went through the same thing you are describing.  After months, it turned out to be okay.  But during that time, I tried to keep my mind busy, and anxiety med helped me to stay calmer.  I imagined the worst, cause every time they rule something out they mention that it might be another thing, and it seems to go on and on, from one thing to the next, and it scares you and upsets you even more.  Like I said, hang in there, don't give up girl!  We're always here if you want to talk.  I am hoping you get some answers soon.
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    • Posted

      Thank you. 

      I'm just worried sick now. I think I'm literally worrying myself sick. I was ok when they were concentrating on my stomach but now my ovaries I'm just scared. As they say ovarian cancer is the silent killer. I'm thinking though my ailments haven't been so silent with me ! 

      I just need to get this scan done tomorrow the worst part is not really knowing and it's making me more anxious. Will keep you posted. Thanks again. 

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  • Posted

    hi kim

    this isnt exactly going to make you feel better but im going through the same thing as you are. just so you know ive had every test out there and was told im healthy, no cancer etc. i have pain constantly . just please dont worry about  it being cancer. 

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    • Posted

      I've been cancer phobic for years. But the last few years I've been better. This ovarian thing has been on my mind for years as I had fertility treatment to have my child. That was 10 years ago though !!! 

      Oh well scan tomorrow let's see what they see. 

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  • Posted

    Ok

    So I had my ovary scan external and internal. 

    The internal hurt a bit and sonographer said she couldn't see my right ovary as well as the tummy gel one. 

    I asked her if anything unusual

    To worry about and she said nothing to worry about and she couldn't see anything unusual. 

    That for me was a huge relief, even though I still have pain. My biggest fear was something nasty on my ovaries. So I came home and made myself a fried egg sandwich as I was hungry. 

    Big mistake.  My stomach started with the familiar upper right side pain. I took some paracetamol which eased it slightly. But still had that feeling like something was contracting trying to expel something  ie the fat. 

    I think I need to keep a food diary to see if it's fat related. It's definitely eating certain foods that trigger it. But I am relieved my ovaries are ok smile  still don't know what on earth is causing this though. 

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  • Posted

    Have you thought about a new doc?  I was sick for 3 months, went to 4 emergency rooms, admitted to a hospital for 4 days where they ran test after test (including hida),  nobody could find anything.  I tried everything, couldn't eat, lost twenty pounds, I really thought I was going to die.  Some of that time I actually wanted to die (i am ashamed to say), I was so sick.  Everyone, including myself, thought I had cancer, even though the docs said I didn't.  Finally, one doc ordered an EUS, endoscopic ultrasound. That's an internal ultrasound of gb.  Sure enough, it showed my gb was bad.  My symptoms were just like yours, Kim. That's the only test that showed mine was bad.  Do you know if you've had one of those yet?  
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    • Posted

       No I haven't had any internal scans of my gb. Just an endoscope about three years ago, maybe 2 years. 

      I changed from one consultant to another because the first one was getting nowhere. I shouldn't have changed it was a big mistake on my part as the second one is atrocious. 

      Now I'm stuck as the second one has said because I won't try what he's suggesting ( anti depressants ) he can't help me further. ( what a git) so now I don't know what else to do. 

      The only thing I can do myself is keep to a fat free diet and hope for the best. If I had gone private this would have been sorted by now. I'm so angry. I saw this last consultant initially for my first consult privately. I paid him £250 for 20 mins of his time. Once I told him I would have to have treatment on the nhs he lost interest. 

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    • Posted

      Can you go back to the first one?  Do you have a primary care physician?   My PCP helped me get in sooner to see a specialist.  Don't feel bad about switching docs, we all do that, especially when we can't get any answers.  Anti depressants will not help gb, prob just make it worse.  Maybe you can call the specialist back and tell him you tried the anti depressants and it made it worse (just a thought)?  Then he would have to move on to something else.  I hate it when docs just want to shove anti depressants at you, when you know there's something wrong and its not "just in your head".  Iu would keep pestering them till you get some relief.
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    • Posted

      I can't really go back to the original one. They get offended ! I may say I tried the anti depressant and it's no better. If my doc thinks stress is causing mine I will trial this as I'm on holiday for next two weeks so no stress, let's see 
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    • Posted

      While I was waiting for the NHS to decide that I needed surgery (I ended up going private and being told by the NHS GP I have that I was having "elective" surgery!!!), I sometimes wondered if any of the consultants and docs I saw had ever actually experienced the awful debilitating pain of gallstones. How they can leave people in pain like that is to me unbelievable. I too sometimes thought I was dying and almost wished it would all just end (although I never said that to NHS doc as afraid they would push me onto anti depressants!!). Surgery best thing ever for me. Keep after them - camp out on their doorstep until they listen to you!!
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    • Posted

      I know exactly how you feel. But now I feel I can't go any further as I changed one nhs consultant for another and the second one is dreadful, worse than the original one. I'm so regretting moving from the first one now. But I think there is no going back. So here I am, still stuck with same daily stomach aches, also these "attacks"

      Of excruiating pain in my upper to ride side of my stomach. No one is helping me. This last consultant has pretty much put me into a corner where he won't help

      Anymore because I refused two different types of antidepressants. I can't really afford to see someone else privately. So I'm stuck with pain and don't know what to do now. I'm so fed up. sad

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    • Posted

      What does the GP say now? Your GP should be able to help you in some way - also, can they send you to a different area for a consult? I would look into making a complaint - ask for a copy of your reocrds. I think I would want to know WHY they think the pain isn't relevant and that the need for anti depressants is so much more important than the pain. Also, do anti depressants help with pain relief at all? (I don't think so, but I don't really know)
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