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O/A Spine fibromyalgia and having blindness in right eye on &off plus not being able to move finger

Posted , 5 users are following.

jenny_91790
jenny_91790

Hi I’m 35 and diagnosed with O/A Spine fibromyalgia I keep getting blind spots in my right eye on and off and loose feeling in fingers in my left hand and have been to neurologist and they said it’s migraine I’m not having migraines well I can have them but never during day only night time sometimes. I’m worried about it and don’t know what to do I’m referred back to neurologist but long waiting list. 

Can anyone advise me what to do?

Please 

Thank you 

0 likes, 8 replies

8 Replies

  • Anhaga
    Anhaga jenny_91790

    Posted

    Look up temporal arteritis, also called giant cell arteritis, or GCA. Also look up polymyalgia rheumatic a or PMR. See if the symptoms seem familiar to you, and if they do, seek emergency medical treatment asap. I'd send links but haven't figured out how to on my annoying small tablet. There is info on this Patient site.

    Do let us know how you get on.

    • RD_Swede
      RD_Swede Anhaga

      Posted

      When I read about blind spots I also thought about GCA but it is not so usual at the age of 35. I would go to the emergency department and I think in some parts of the UK they rush you if you fear it is GCA
    • Anhaga
      Anhaga RD_Swede

      Posted

      I'd have though these symptoms would warrant prompt and thorough investigation no matter where one lived. Too easy to dismiss as "only" migraine.

      Sometime in my 50s I showed up at our local hospital in middle of a weekend night complaining of sensation of numbness down one side. Result was every test imaginable, including going back on Monday for some sort of scan of arteries in neck. When nothing was found my family doctor said the only thing left was issues with my back. So, off to a physiotherapist and exercises I do faithfully every day, for about twenty years now, I guess. So, although I was alarmed, I was sorted out very quickly because back then our medical care system was very nimble, and I had a great GP for follow up. People really shouldn't be hung out to twist in the wind when they have worrisome symptoms.

    • amkoffee
      amkoffee Anhaga

      Posted

      You read my mind Anhaga. Unless you were going to give her hyperlinks to things on this patient hyperlinks to any other site would have been blocked anyway.
    • Anhaga
      Anhaga amkoffee

      Posted

      I'd have private messaged links, but I wanted actually to send the Patient links anyway.  The tablet is so different from a regular laptop. Sigh.

  • amkoffee
    amkoffee jenny_91790

    Posted

    You might have heard about this because I know I've shared it on some of my regular sites but I was doubted and laughed at when I told a physician assistant in training that I had PMR and that I was a little concerned because I also had a very bad headache. I was there because I thought I'd had a stroke. Well it turns out I did have a TIA. And because of the TIA I was unable to speak very well and I was unable to use my right hand at all. And it's a pretty good thing because I would have probably yelled at him and then shaken the stuffing out of him with my bare hands.

  • Anhaga
    Anhaga jenny_91790

    Posted

    Jenny, we haven't heard from you again.   Are you okay?

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