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Off balance

Posted , 11 users are following.

adam82530
adam82530

I have been experiencing an off balance feeling for at least 6 months. It feels as if I’m swaying. I can’t feel it driving, walking, or running. It’s as if the motion of those activities mask the off balance feeling. I have been countless times to the doctor. Any advice on what it could be?

0 likes, 20 replies

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  • victoria78511
    victoria78511 adam82530

    Posted

    Hi ask your doctor to referred you to a ENT to see if it your ears what causing the problem ? Do you have anxiety and stress because that can cause it .I felt like l was walking on a trampoline felt worse in supermarkets l went to see a ENT I had a vamp test done all come back clear he sent me for vestibular exercises it did help l was told it's anxiety and stress what causing my problem

    • Smitty89
      Smitty89 victoria78511

      Posted

      Hello I hate grocery stores. Feel way off and patterned carpet and driving bothers me. My eyes drive me nuts most of the time too...
    • adam82530
      adam82530 victoria78511

      Posted

      Hi Victoria,

                 I have been to a ENT. He said my sinuses looked rough, but everything else was good. I have bad anxiety, but I am on medicine for it. Ive been on anxiety medicine for two weeks now. It has made me worry less about the off balance feeling, but it’s still there. It’s only when I’m still. I can be sitting, laying down, or standing and feel it. It seems worse when I tired. I have tinnitus, TMJ, and eye floaters, heart palpitations as well. I have had my eyes checked, ears checked, heart checked, and an MRI. Everything was normal. The only thing to show up was a blood test indicated a possible auto immune disease. Another blood test indicated low blood sugar, but was normal the next time they checked it.

    • Smitty89
      Smitty89 adam82530

      Posted

      I went to a aero last yr for something else and he ran a blood test that showed possible autoimmune too. I go back to see him at end of month to have another blood test done to confirm the levels. They were really faint, but still showed up. My eyes bug me too. I wonder if we have the same thing. I also get what feels like heart palpitations and heavy chest...
    • Smitty89
      Smitty89

      Posted

      A neuro it should say
    • victoria78511
      victoria78511 adam82530

      Posted

      I seen a specialist I told him about my symptoms l feel like the chair was rocking and my body shaking and palpitations mine got worse in the evening for no reason the specialist told me that I have a trauma in my life causing anxiety and stress building up in my body .l was put on sertarline it really helped.How long have you been on your medication? You got to give it time to work
    • alan94308
      alan94308 victoria78511

      Posted

      Hi,

      I did not suffer any trauma, but i am a panic and worrying person by nature, before this

      I have the strange boat bobbing, swaying heavy and light sensation  when walking and seated, doctor say i got some post trauma thing

      I am now on Amitriptyline for about a month, gets only slightly better for the swaying and boobing feeling, but still getting panic attack when i start to worry

      Will update the doctor when i see him in a month time

      How long have you been on sertarline to work since you say got to give it time to work

      Where you from, i am from Singapore would make me feel better to talk to someone, if you no mind, can whatsapp me +6593809412  

      Alan

      Singapore

  • Smitty89
    Smitty89 adam82530

    Posted

    Look into mal de barqment syndrome...you usually feel better in motion
    • adam82530
      adam82530 Smitty89

      Posted

      Hey buddy,

      Thanks, I checked it out and it matches my symptoms to the letter. Everything from boat rocking sensation, better in motion, to feeling worse with stress and later In the afternoon. Now to see how to fix it.

    • adam82530
      adam82530 Smitty89

      Posted

      I’m afraid that I may have done this to myself when I was trying to get rid of my anxiety. I tried taking Zoloft which made me very dizzy. I think it may be what caused me to have the imbalance that I’m having now.
    • Smitty89
      Smitty89 adam82530

      Posted

      A lot of docs don't know too much about PPPD because it was just introduced into the WHO (world health organization) in 2016. A neuro would prob know best if you can get a referral to one.

    • kelly84510
      kelly84510 Smitty89

      Posted

      Hi guys, and hi smitty, I pretty sure I've spoken to you before.. I've now been diagnosed with  vestibular migraine, MdDS and PPPD( I went to a new neurologist) I've now been told that you can feel better in motion with PPPD too.. I'm not convinced, and honestly I'm starting to feel like doctors have no idea... it's just a label not a diagnosis.. both MdDS and PPPD have  a huge anxiety side effect.. How you deal with the anxiety is up to you..( antidepressants, yoga, acupuncture,etc) I've definitely found that if I deal with the anxiety my symptoms decrease, but I definitely feel it's a side effect and not the cause... I haven't had any medication for this and I'm doing okay, back at work, and I've had this off and on for 7 years.. good luck guys .. take care..

    • kelly84510
      kelly84510

      Posted

      and yes medication can cause PPPD and MdDS ...but what the true cause is! Nobody knows!
  • ava65730
    ava65730 adam82530

    Posted

    This all started for me November of last year. I went to every doctor imaginable. I'll help you by saying go get blood work done, get an MRI if possible then get an VNG done. Once all that is complete and it's all clear or chances are you may have issues with the inner ear, you may not and may have migraine associated vertigo. What your experiences is vertigo.... go see a PT as soon as possible and have them start you on VRT right away that will help with all you're feeling now. Trust me don't waste time thinking it's anything else it's all your vestibula system you just need to find out where don't bother looking for why... You'll get better and then you may get worse and wax and wane for a while keep pushing it goes get better. Just not over night. Good luck.

    • asis48059
      asis48059 ava65730

      Posted

      Hey there I'm glad you got better. Unfortunately I'm still not able to get cure after suffering from 2.5 years. So I have been facing these symptoms : 

      1) feeling off balance 

      2) spinning sensation 

      3) neck stiffness 

      4) head, eyes heavy feeling 

      5 shortness of breath 

      6) stomach issues like gas, diarrhoea

      7) feel like something's pushing me into bed 

      8) while laying, standing or siting I feel my heart rate stopped and I'm going to die if I don't make a move 

      9) my sleep breaks everyday at night and while I'm about to sleep there is a sudden jerk also I feel my body too weak and if I close my eyes and try to sleep I'll die and I should make a move.

      10) cold sweats 

      11) I cannot stand in a cue my hands starts shaking and I feel more dizzy also sweaty also I feel my hands and legs weak 

      12) when I jump I feel everything near me bounced 

      I have locked and made my life hell I am only 19 

      Thanks for taking time and reading this please revert if u had same symptoms as me thankyou 

      Godbless, take care 

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