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Hi can I ask some advice please ? I'm using the ointment / cream since about June , chopping and changing from one to the other to see which is more suited to me , so some times I use the ountment 2 a day and cut down to once and then 2 / week when the burning and soreness eases , I suppose I havnt had a good run at using the ointment for the 6 week period as I done so much chopping and changing around , I was afraid to keep using it in case of skin thinning as I don't have any white thick patches just redness where I feel the burning , anyway my question is I find the ointment when using 2 a day gets rid of the burning and soreness and as soon as I cut the ointment down to once a day or 2 / week I feel the burning and soreness return , is this normal or would it be considered a flare up (can u get a flare up when your using the cream once a day ) ? maybe I havnt used the ointment for long enough in the first place to get it under control , ?? I'm afraid to start a six week use of it as I'm using it since June
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What was your doctor's advise? Use twice a day, once a day? What info did you receive via your doctor?
Try to look at various topics here on this site. Check Dr Goldsteins thoughts as well.
Then concentrate on all the things we do to settle it: baking soda rinses, various oils (that's a place you can safely experiment), reducing sugar intake, and numero uno – try to stay calm. Stress/anxiety – our worst enemy. And of course don't have sex when it hurts.
And yes, watch your sugar intake. Avoid stress if possible. Also look into your food habits - cook from scratch, lots of vegies, little meat. Reduce or avoid all alcohol. Live as healthy as you can. It may not heal, but it gives the body a break and will become stronger to resist better whatever is causing LS. (I'm also avoiding gluten and eat limited dairy, no cheeses.)
All in all, it's a bit like a lifestyle change. But not hard to get used to. And it wil benefit you in the long run and make LS more liveable.
Baking soda rinses and baths are also helpful, is my experience. Apply coconut oil after the rinse.
Hope alle these responses from people will get you on your way.
I'm still not under control but I'm getting closer. I find that it's been a two steps forward one step back sort of situation. Each flare up becomes less painful and shorter than the last one. I'd initially been given a less potent ointment and was told to use it twice a day at first, then down to once a day and then twice a week. During a flare up I was given clobetasol. I used it twice and day and got worse. I think I gave myself a rebound effect from using it too frequently.
When things started to feel better and I thought I could start skipping days I switched to the less potent ointment and then applied that every 24, 36 or 48 hours depending upon what my body asked for. I was encouraged by my doctors to return to the less potent steroid as soon as I could and save the clobetesol for times when the big guns are needed. Of course, their advice was based on what my situation is like and yours may be very different.
Morrell brings up a good point about tracking it somehow. What has done me in once or twice is getting to a point where I go a day or two without thinking about it too much as it isn't annoying me. I revel in the normalcy so much that I overlook applying the ointment when I should, push it for an extra day, do something to aggravate it (walking is a culprit) and it flares up. Baby steps is my mantra.
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