1. Community
  2. Brain and nerves
  3. Multiple Sclerosis

Oligoclonal band

Posted , 2 users are following.

jennifer343434
jennifer343434

Ive been having similar to MS for about almost two years now.  I have some spots on my brain but they say they are not characteristic with MS.  I had a spinal tap and the test for MS showed I had 3 Oligoclonal bands. One neurologist said that Im not suppose to have even one in my spinal fluid another one said if I had 4 or more it would be MS. Im really at my witts end. sad  Also they say I may have a demyelenating disease but unknown which one because I also have failed balance tests and VAP tests.  Has anyone had a low amount of bands and still had it?

0 likes, 3 replies

3 Replies

  • wendy80842
    wendy80842 jennifer343434

    Posted

    A problem, when moving towards a diagnosis of MS, is that most often, we (I was diagnosed in 2004) have relapsing, remitting MS, to begin with. When we are in remission, there is some recovery that occurs, between relapses, this can cause false negative results as we're being diagnosed, so it can be an uphill struggle for many of us. Keep a written record of ALL symptoms, tests, meds, results... Everything. It can be handy when you go to medical appointments. Good luck xx.
    • wendy80842
      wendy80842 jennifer343434

      Posted

      You're welcome, MS is notoriously difficult to diagnose, if possible, have someone with you at med. consultations, a second set of ears can pick up lots more information. I recommend the UK MS society site and forum for support and information, even if you aren't diagnosed... Most of us have been in 'limboland' at one time. xx
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.