Ongoing
Posted , 7 users are following.
My latest attack has now been goin on for 5 weeks, as previously explained daily dizzy spells increased tinnitus and loss of hearing, been on betahistine for 5 weeks also now but don't seem to be helping, got to wait till 18 September to see consultant but spoke to her secretary last wk who said not to panic an attack can last for 6 weeks but it just doesn't seem to be getting any better, I might get the odd day when it feels it might be clearing but then bang the next day back again and all hope goes, has anyone experienced this length of attack that can reassure me that it will finally stop, thanks for your time
0 likes, 13 replies
steve58456 Dadlew
Posted
What dose of bethastine you on??i started with this last September ent upped me in march to 32mg x3 and worked wonders,tried on 8 and 16 but 32 had one minor attack since April 4 months symptom free and been abroad with no problems,it gets better I promise,changed my ent doctor in march and I now have one which gives great support,all this non salt diet doesn't work for me,just carried on as before and never felt better,hope u get better soon,I've been there!!!
Dadlew steve58456
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Hi Steve I'm on 16x3 a day will certainly be asking my consultant to up the dose when I go hopefully that will help
steve58456 Dadlew
Posted
Dadlew steve58456
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Yea that's all gp can give I spoke to consultants secretary about goin on higher dose but she said wait till see consultant but that's not for another 3 weeks and that's an urgent appointment!!! Hopefully it will work aswell for me as it has for you it's good to hear positive news
steve58456 Dadlew
Posted
Tablets only come in 16 anyway,if yer struggling I'd take 2 anyway,ent said tablets don't have side effects,let me know how you get on
Dadlew steve58456
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Hi Steve just came out of A&E had bad drop attack this mornin, spoke to consultant secretary said I've still got to wait till 18th sept to see her even thou symptoms getting worse rather than better so came up here saw a dr who said I can't wait that long so is putting through for emergency appointment and said I should be seen next week so hopefully I will get to finally see a consultant who can help, will keep you posted on progress cheers
Bluesmann Dadlew
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Have them put you on a cancellation list up call you if anything be cancels and get it sooner people cancel all the time. That's crazy
Good luck to you
Dadlew steve58456
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Just a quick update saw a junior consultant on tues as an emergency appointment but wasn't much help if I'm honest, he has put me on 32x3 a day now but does that take time to kick in do you know as I was feeling better for about 3 days then bang last nite tinnitus noise went up again hearing went and few dizzy spells again today, just seems never ending it's over 6 wks now!! Will c my consultant a week tomorrow so hoping for more help although junior consultant said they are trialling a new operation that puts a tube in the inner ear and drains of the fluid before it gets there so might get more news on that next week so I'll keep u informed on that aswell
LW8494 Dadlew
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I too suffered from MD for years and tried the tubes in the ear. They didn't help me but others said they were helpful. I tried many different treatments, prescription, natural, dietary to no avail. Finally saw a neurologist and eventually had a vestibular nerve section. Kind of the last result but I have been 2 years symptom free and am enjoying life again. I was dead set against surgery until I started having drop attacks on a regular basis. The doctor gave me the names of several patients who had the same surgery and were willing to talk to me about the recovery. For some, including me it was a quick recovery. I was back to work in 6 weeks, a few however, took 6 months to fully regain complete balance functions. None of the patients I spoke to had any MD episodes following the surgery. Hang in there and find a dr. who will go the distance with you and let you try to find a non-surgical solution if possible.
Dadlew LW8494
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Hi thanks for your input, what did your surgery involve I've not heard of that? I've started seeing a chiropractor aswell had 3 sessions in upper cervical care as fellow sufferers have had good results in this, only time will tell on that as it's a 12 week course, I would prefer not to have surgery but at this present time willing to try anything because this is so disabling it takes over your life I'm currently off work and can't enjoy normal stuff either especially having two young grandchildren
LW8494 Dadlew
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You can look up all the details but basically it's neuro surgery. Vestibular Nerve Section. Open a small area of the skull behind the ear and cut the nerve. My brain then had to relearn balance functions with one signal instead of two. It took a good 6 weeks before I could drive again and return to work but it was worth it! No more dizziness, throwing up and pressure in the head. It was a last resort, for many people they find prescription meds that work. UCLA neurosurgery dept. Dr. Martin
bobby1001 Dadlew
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Sorry to hear about your situation..i experience lightheadedness constantly everyday since last June when what I thought was a heat stroke..i was diagnosed with mineres disease 2 weeks ago evidently I've had it around 10 years..my best advice is don't push yourself I wish I had more but hopefully soon I will...since last June I had to leave a great job 5 years early that cost me dearly I lost my business of 19 years and my lake house..and I'm still looking for a doctor to treat me..so far doctors don't seem to believe I'm as bad as I say on a consistent basis an they will not accept the heat plays a major role with mineres ..but I'm still searching for help and information related to heat an mineres...good luck I'll try to have more information later..
Willow4 Dadlew
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I was diagnosed 6 years ago. My attacks were so severe I was out of work for 2 weeks. My local ENT dr sent me to a specialist who performed a Sac Decompression. It worked very well up until last November when I started noticing slight bouts of vertigo. I received 3 steroids injections. That at first I thought was helping. I went into a Menieres flare on 8-29. I couldn't get out of bed, nauseous absolutely no balance ( which I never had). I am a worker and hate missing work, at times I would go to work when I should of had stayed home. I was placed on 10mg of Valium and 10mg of Prednisone. The vertigo has let up some, again I couldn't walk a straight line if I tried. I seen the specialist today who is scheduling me for another Sac Decompression. He states that the bone sometimes re grows. I will be out of work until after surgery. So to answer your question yes attacks can last a long time. In a 30 day span my attack has been so severe I have lost 10% of my hearing from my test I had in July to the one I had on 8-29.