Ongoing knee isssues, can barely stand

Posted , 9 users are following.

I have had issues with my knees and shoulders for probably 15 years. My shoulders go stiff and get extremely painful to a point where sometimes one will hurt so much to move it i have to use the other arm to lift the painful arm. They hurt to lay on.

It goes alongside paindul knees where i can barely stand.

I have had physio, xrays and bloods done and they cant find anything, the physio just made it worse. I havent seen a doctor about it for years as i just feel its a waste of time. I feel like the shoulder and knee issues are linked....any ideas?

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9 Replies

  • Posted

    Adding that when my knees are painful if i get down n the floor, i struggle to get up but when it is bad i cant even get on the floor, i cant sit or stand unaided sad

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  • Posted

    How old are you? (Not exactly, over/under 45 would do).
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  • Posted

    36
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  • Posted

    paula42080 i have utmost sympathy with you as i am typing with shoulders so painful that i do not carry on with my writing, only know and then will i add some thoughts, but your letter reminded me to much of the time i was in same position so i went did tests bloods bone density carpul tunnel etc etc my gp diagnosed osteo arthritus and after my knees just refused to carry me and there is quite alot of me i was refered to specialist and after blood tests and stuff it was rhumatiod arthuritus and my knees was bone on bone at that time was using fore arm crutches and the reason for the painful shoulders was the use of them it   became so painfull i reverted to a wheelchair while waiting for a date on my knees, know i am happy to say both knees are done tkr,s were walking without aid and after the 2nd knee now 6 weeks p/o had to use a walker an in that three weeks my shoulders have gone crazy but the doc say it will go away as i progress and 2nd knee heals, hell he has loveley legs meaning not sickley lol not like mine but to get to the point my legs are recovering the tests was done 2 times on shoulder found nothing just the old over used cliche ,but he scheduled me for jan 2017 for impgement tests and also neck scan, ideas for shoulders try not to pick up to much stuff do not if possable work with your arms above your head and keep on pestering your docter for a referal to a neuro  or orthapedic specialist, you are still young look after your body as it is already telling you something is wrong regards danie61
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  • Posted

    It sounds similar to an autoimmune disorder called polymyalgia rheumatica but you are really far too young if it started in your early 20s, But it could be some form of inflammatory arthritis - and your blood tests don't have to be raised, there are what are called sero-negative forms as well. Have you seen a rheumatologist - a specialist rather than just a primary cary provider as they are often unaware that there are autoimmune disorders that don't show up in the tests they can do. It needs an expert - and even they can get confused.

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  • Posted

    Paula my case was similar with my gp, she told me just shake it off. Finally I told her if I can't move, I can't shake I went to an orthopedic surgeon, found one bad hip, two bad knees and bursitis in my shoulders. Been three years but after fifteen years of pain, I am making progree. New hip and knee and one more knee to go. Shots in shoulders co trolled the problem. Be insistent, get second opinions. They also tried to pass me off as just fibromilaga. Hang in there, insist for answers. Bless you and wish you the best

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  • Posted

    I know that hips and knees are linked (personal experience) but I've never heard of shoulders and knees.

    For the shoulder: If you can lift your arm only so far and then it hurts from there on up, then I would expect an impingement.  I've had that on both sides.  A bone spur on the acromium "catches" the rotator cuff and digs in.  Painful.  Sometimes the distance between the acromium and clavicle narrows because of bone spurs and/or arthritis and rub against each other and/or the rotator cuff.  Wife had this and caused a full thickness tear of the cuff...just had surgery.  If none of this makes sense, then your shoulder could be loaded with arthritis causing any or all of the above situations.  Find the best shoulder doc in town...the group that works for your local pro/college sports teams.  Find the root cause of the pain.

    Knees:  You need to find a similar group in town that works on knees.  If they eliminate ligaments, tendons or cartilage as the source of the problem, they may find a lot of arthritis or even a bone-on-bone situation.  MRI.  If there's nothing to "repair", something like SynVisc could help eliminate pain for long periods of time without a TKR.  Worked great for me for years.

    If they find knothing in the knee, they should do an MRI of the hip WITH contrast.  I was ready for a knee op when the doc decided to do one more test...hip MRI.  Found of that 30% of my hip bone was necrotic (dead) which led me to a hip replacement.  Cured all the hip, leg and knee pain.

    Then again, if ALL of this knee and leg pain is still a mystery, go see a neurosurgeon...NOT a neurologist.  You could have something in your spine causing all your leg problems.  Nerves exiting the spinal column at L3 through S1 control all that possible pain.  I had sciatic nerve pain down my leg...all caused by a bone spur crushing the nerve at L4/L5.  Simple fix; no pain; no recovery time.  In fact, if the shoulder doc finds nothing, I'd see a neurosurgoen for an analysis of your C-spine disks.  Something in there could be the source of all your pain. 

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    • Posted

      Nice reply to Paula Chico...by the way been working on my quad strengthing and getting set for the Dec. 28 tkr on my right kneee. Had my left done in June. Glad to have read your artical on strengthing...this go around I will be better prepared...
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  • Posted

    actually, the knee is a weight bearing, hinge joint...another hinge joint is the elbow.

    Several of us can tell you that a total knee replacement is major surgery, comes with major recovery, and ends with major improvements. Maybe it is time for a check up with your GP...some diseases progress overtime and become more obvious to physicians.

    Shoulders are a non weight bearing, ball and socket joint....another ball and socket joint is the hip.

    That you are unable to abduct the shoulder means you have inflammation...you also mentioned using the other arm to lift your dysfunctional arm...that tells me that the inflammation is in the supraspinatis muscle-tendon. You may also have inflammation in the deltoid muscle-tendon as well.

    I have given you straight anatomy. To determine the cause of the inflammation, you need to visit with your physician and have some blood work done.

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