Ongoing problems with DD

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Hi everyone, I have suffered with DD now for some time and my symptoms seem to be getting worse , I have near enough constant pain , bloating , backache and spasms as well as near daily bouts of diaherea where i need to get to the loo asap or the inevitable happens. I never go anywhere without wipes , change of underwear etc. There is also then the bouts of constipation and the pain this brings. 

Since November last year I have had 3 flare ups needing double doses of antibiotics .

From the outside all looks fine however this has changed my life so much and just wondered if anyone else suffers the same .

Thanks for support on this forum  

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6 Replies

  • Posted

    I am the same I used to go out every day but I only go out if I know there is a toilet near by. I used to get really down but I am trying to be more positive. There doesn't seem to be anything I can do to sort it. I have a DRs appointment next week so will see what he says. I have fybergel mabevarine and paracetamol every day. Hope you feel better soon

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    • Posted

      Thanks, I tried fybegel but it made me worse , no alternative has been offered , I use to have a sucessful career however this is no more as had to stop working , no good when you dont know when the next 'accident' is going to occur 

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    • Posted

      I know it's awful. It's only my second day on fybergel and I have a heavy painful feeling in the bottom of my stomach. But I will take it again tomorrow and see how I get on if it's still not good I will go back to albran instead of fybergel. I am 70 so thankfully I don't work it must have been so upsetting to give your job up

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  • Posted

    I can relate. I wish I had answers for you but unfortunately I have been in your position and after I had my last flair up in February I saw a surgeon. He checked me after my intestines had quieted and said basically there are thousands who suffer from this. Right now you have the option of elective surgery or playing this game. Take a fiber supplement everyday, drink 8 glasses and more everyday and live your life.

    I have IBS too and that causes unpredictable diarrhea and constipation. I too carry the necessary clothes just in case and note I have had to use them.

    I really don't want surgery so I'm doing as he says faithfully. Get twinges and fret a bit but although my attacks have been more severe I'm not going to have surgery right now. He gave me reassurance and I know he is respected as a surgeon and a conservative one as well.

    I still monitor what I eat and don't eat those food groups that I believe cause me discomfort . No seeds, nuts, skins and hard to digest steak. Only filet if I desire one and that's not often.

    I cook a lot in the crockpot. And watch any raw veggies.

    IBS triggers are all food and stress related. When you eat out don't have a carbonated beverage.and highly seasoned food have sent me running to the bathroom. Hope I have helped a little bit!

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    • Posted

      Thanks for that , I have changed my diet, fatty foods give me more problems and alcohol is really a no no too. I find I am very nauseas in the mornings and red meat doesnt sit too good with me either. I dont go out very often anymore with friends as feel stressed out . I have been provided with faetal incontinence pads as having that may accidents however they are huge so only tend to use when I know no loos near at hand . My consultant also basically said you will have to live with it as I dont want any surgery as it scares the pants off me . Thanks again
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