Operation booked!

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I have made the decision to have surgery; on Saturday 24th October I will be having a laprascopic Nissen fundoplication and hiatus hernia repair.

Providing I am well enough I plan to note how I feel after, all the symptoms etc and hopefully a positive outcome, so that I can help others who are in the same situation I have been in not knowing what to do, what to expect and what it feels like, obviously I'm only one person and everyone reacts differently, however I feel often people who have a good experience then don't bother coming back on these sites to share information!

Hope everyone is trying to battle through as best as possible!

I've had quite a bad couple of weeks; extremely bloated, pain in right side, constipation, coughing up phlegm and choking in the night! So to me my date couldn't of come at a better time.

I also have an appointment this Wednesday to see a rheumatologist as doctors believe I may have a condition called hypermobility syndrome, if this does prove to be correct it could be the answer for why I have acid reflux!

Steph

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10 Replies

  • Posted

    Hi Stephanie, I'm 25 and have been reading your posts as of late.

    I hope the operation goes well for you. Let us know how it goes and how the recovery process is.

    I was diagnosed with gerd and esophagitis about a month ago. I am not tolerating ppi's. I seem to be having an allergic reaction - my throat swells. I've tried 2 ppi's and I guess I'll try the others in the hope that they don't produce the same thing. Otherwise I see no other option but to have surgery. I am however underweight so I'd have to gain some weight I think prior to it.

    Good luck with the surgery.

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    • Posted

      Thank you.

      What meds have you Tried? I was initially given lanzarapole, but I was violently sick on it, I take ompreazole. When I first found out I was unwell I was very careful what I ate and stuck to light foods to try and keep at least some food in! I'm not as careful now though.

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  • Posted

    All the best, Stephanie.

    And more patients' experiences are always required. I'm sure you'll be fine. Best thing I ever did. I recorded my experiences in a blog on my personal website: chrisrob co uk where you can find "The Laparoscopic Nissen Fundoplication Operation" listed in the contents of the page you reach if you click the Barrett's tab.

    And I'm interested in any possible Hypermobility syndrome connection. I have what is euphemistically referred to as double-jointed thumbs and suffered with reflux all my life - until I had the fundoplication.

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    • Posted

      Hypermobility syndrome is all about being double jointed, however thats the one symptom I don't have of it but I have everything else so we shall see what the specialist says on Wednesday.

      I am going to have a look at your website now, thank you!

      Steph

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  • Posted

    How would Hypermobility cause that just out of interest Stephanie? I have muscular dystropohy so I wondering if it's what causes mine although my symptoms are not as bad as yours. I am wondering if I do have a hernia myself I hope not.  I guess with MD it can weaken the Spinchter or LES. But I dont' have classic reflux it's like silent reflux and I have swallowing issues which obviously could be the muscle weakness caused by MD. I am seeing a Upper GI specialist next Monday. Dreading it really. I think they will look down my throat to begin with and maybe a Barium Swallow. I dread having a gastroscopy as I have very strong gag reflux. Hopefully won't come to having one of those anyway. I haven't been taking meds just trying to cut certain things out. Alchohol one of them and Coffee, but I have unbleached and organic tea bags which seems to help too.Also bread seems to be a problem. Anything with yeast in will just excurbate Reflux.
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    • Posted

      MD could definitely be the main problem responsible for your reflux since the peristaltic nuscles and those of the the lower oesophageal sphincter and crural diaphragm may not be functioning as effectively as they should.

      It sounds as if you've had a gastroscopy before? Do you have sedation?

      Well done on starting to find triggers. If bread is a problem it does seem to indcate swallowing problems as it can swell during the time it takes to traverse the oesophagus - which would normally expect to be only about 5 seconds.

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    • Posted

      A few things you say sound very similar to my issues; I too have been told I have silent reflux, and mine after have a 24hour manometery test was proven to be considerably worse at night, as expected with laying down.

      I can gag at more or less anything so was petrified to have the endoscopy, but my phobia of needles is greater so I opted not to be sedated, and although I obviously didn't enjoy the endoscopy it was over so quick, and because I didn't have sedation as soon as it was out I didn't have to wait much more than 20minutes and I was able to walk out and go home!

      I am very lucky not to have had problems swallowing food, however I can not drink a full glass of any liquid without gagging before I'm finished, which wasn't very nice in the summer when you're really thirsty!

      JHS can cause symptoms that affect your digestive system, because the muscles that squeeze food through your digestive system can weaken. (this is what it states on the NHS website about joint hypermobility syndrome, and it goes on to specifically talk about G.E.R.D)

      Good luck seeing the consultant, assume it's today as you said Monday? He/She will give you the best options specifically for you.

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