1. Community
  2. Diabetes and hormone problems
  3. Hyperthyroidism

Over active thyroid

Posted , 4 users are following.

sue15
sue15

Hi everyone. We'll 5years ago I had graves and as I learnt I have over active thyroid again it's taking to long to see NHs specialist I have some privite cover but when I tried to booked a privite appointment they said 4 weeks if I'm paying I expect a next week appointment you would think my doctor put me on lev 2.5 low dose as it looked like it was going under active so stayed on them for a couple of months then just found out it was over active again I asked the doctor if I was taking to much but she said no your body should stop making more if I had enough I'm compleatly confused Arrrrr

0 likes, 6 replies

6 Replies

  • linda187
    linda187

    Posted

    I am wondering if you also have both Graves and Hashimoto's disease. Have you had your antibodies checked? If not you should have your doctor do so.

    I have had Graves for 7 years and I have never been under so hence my question.

  • sue15
    sue15

    Posted

    hello i have had my antibodies checked 5vears since when i say under i meen just under borderline really getting to see my doctor monday tomorz will have more tests when i see a endo specialist and have my antibodies checked again .
  • linda187
    linda187

    Posted

    Have you had surgery or RAI? The only people I know who take Levo are those who are hypothyroid or have had their thyroid destroyed by surgery or RAI or have both Hashimoto's and Graves. Do any of these pertain to you?

    I have not heard of straight Graves patients who become hypothyroid.

  • sue15
    sue15

    Posted

    no they dont i have not had any operations or rai when i had graves 5 years ago i was put on carbimazole and lev block and replace . treatmentment theraphy only
  • linda187
    linda187

    Posted

    Has anyone else on this Board heard of Graves patients being given Levo? I have not. Only patients I have heard that have this is patients who have antibodies to both Graves disease and Hashimoto's disease.
  • jeanette25032
    jeanette25032

    Posted

    Just wondering if anyone gets these symptoms. I have hyperthyroidism and am on PTU and Propranolol. I had a saliva cortisol test done in December and was told I also have adrenal maladaption and was given some adrenal supplements. I took a small amount over 2 weeks and started to feel like I was going to pass out so I stopped them. I had a blood test 1 week ago which shows TSH has gone up to 3.59, FT3 5.7 and FT4 11.5 but I feel awful. I have cut down on the PTU to just 50mg and propranolol to 10mg daily at night so I can sleep. My right eye keeps twitching, my thyroid is painful and it seems to keep throwing out thyroxine intermittently and making me have spells of feeling like I am going to pass out, breathless, jelly legs, feeling like I am dying, nausea and my ears block for a minute or 2. Each odd spell lasts for an hour or so during which my throat feels tight and my voice becomes very raspy and I have pain running from my ear down my jaw and neck.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.