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Pain or stiffness.

Posted , 7 users are following.

rita38591
rita38591

Pmr ? Pain or stiffness 

2 likes, 17 replies

17 Replies

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  • EileenH
    EileenH rita38591

    Posted

    Yes!

    There is stiffness in the sense of limitation of movement in the morning and after sitting for a while. There is pain for some people when trying to start to move and there is pain for some people in that their muscles hurt to touch - in some ways a bit like when you have flu. But everyone expresses it differently and sometimes it is difficult to say which it is. This has been the subject of a lot of discussion in one of the research groups. There is also claudication pain in larger muscle groups due to poor oxygen supply when certain larger arteries are involved - that is a sort of cramping pain.

    There are doctors who will say that PMR isn't painful - I can only say they obviously have never experienced it! I sometimes think a qualification for being a PMR consultant should be they should have to suffer it first.  

    • EileenH
      EileenH HOTpicks99

      Posted

      Someone said to me this afternoon that she cried when her PMR happened, almost overnight. Her husband had to come and move her so she could get out of bed at all. Within 24 hours of her first dose of prednisolone she could walk down the stairs. For me it was 6 hours! We weren't fully pain-free - but we could move without crying out.

      Have you been to a doctor yet?

    • constance.de
      constance.de EileenH

      Posted

      The same as young doctors and nurses should be trained (using weights in relative places) to understand age, PMR, RA, etc. etc.
    • EileenH
      EileenH constance.de

      Posted

      There are suits - a "fat" suit and an "old" suit that people can wear to experience the tightness and stiffness that comes with age and illness. It doesn't include the pain factor though I doubt! I have heard people scoffing - I think it is a brilliant idea.
    • constance.de
      constance.de EileenH

      Posted

      "fat suit" and "old suit" - that's a lot of us naturally on PMR!!!  Although I am one of the lucky ones as I only put on 4 or 5 kilos, even at the height of Pred (40 to 60 mgs).   Lost that, and more, when I got below 10 mgs.
    • EileenH
      EileenH constance.de

      Posted

      Quite - and we often don't get much empathy from medical staff! One lady who put on a LOT of weight with pred, not from eating more, just happened, was told by a junior doctor "your knees wouldn't hurt to much if you lost some of that weight". I doubt the young lady will be as forward again - a patient on GCA doses of pred for several months who puts on 6 stone needs a bit of sympathy not brow beating and she went straight to the consultant who had written the history in the notes they young woman hadn't read! He wasn't amused.
    • HOTpicks99
      HOTpicks99 EileenH

      Posted

      Young doctors need a course of being polite and having good manners id rather being seen by older female or male doctors get more sense out of them and being kind
  • julian.
    julian. rita38591

    Posted

    both

    and everything in between

    and its still on the move

  • karen28161
    karen28161 rita38591

    Posted

    OMG doctors that say PMR is not painfull !!!!!!!! Well I would love those so called doctors just to experience how bloody painful it is ,just for day !!!!!! Even just getting into bed to read this discussion hurt my legs ,shoulder and butt cheeks and I must of whispered rather loudly OUCH OUCH ,because it woke my hubby up and he said you having another bad day Karen ?do you EVER have good days ......... 
    • HOTpicks99
      HOTpicks99 karen28161

      Posted

      The pain is in my hip thigh a leg wish i knew exactly what it is and having the right treatment would be a plus got me right down with the pain sad
    • EileenH
      EileenH HOTpicks99

      Posted

      If it is on one side and just hip thigh and leg then I would ask about the possibility of hip bursitis or myofascial pain syndrome. Both can be part of PMR, or rather are often found alongside PMR, but can also occur on their own.
    • EileenH
      EileenH HOTpicks99

      Posted

      Then off to the doctor and don't accept being fobbed off with pain killers if they don't work.

      You could try Bowen therapy if you have a local practitioner - it is amazing the benefit that can be to pain of this sort. Where are you? 

    • HOTpicks99
      HOTpicks99 EileenH

      Posted

      Hi ive had to go back to doc again cos i have had a lot of pain and i cant walk tidy trouble was he was a locum for the day i have to see another doc wed to push for an mrvi scan and to see about going to a chronic pain clinic im nowhere near bowen therapy thank you anyway
    • HOTpicks99
      HOTpicks99

      Posted

      No i dont get pain free days in fact its getting that bad i have a job to walksad
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