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paleo or stone age diet and effect on Lichen Sclerosus

Posted , 15 users are following.

Jeepers
Jeepers

Has anybody tried either of these diets and if so can you please tell us what if any success you had in relation to the symptoms of LS?

 If you had improvements , how long did you follow which diet for and were you strict about what you ate of did you make occasional lapses to "forbidden" foods?

I would like to know as I am following  the Seignalet ( stone age, similar to paleo )  diet with no great improvements and am being urged to keep it up till I have been on it for fifteen months as it can take that long to send it into remission.

I am heartily weary of this diet and any encouragement will be very welcome.

I do hope somebody will reply.

0 likes, 32 replies

32 Replies

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  • Jeepers
    Jeepers

    Posted

    Thank you Sue, Claire, Deb, Guppy and Renee.  As it is late here now I will reply to you all tomorrow. thanks for replies.
  • renee77108
    renee77108 Jeepers

    Posted

    A fast was mentioned on here by suedm.  And yes, it is said that they have worked for some.  I did a 5-day fast...only 150 calories of a citrus juice diluted in water each day and all the water I wanted.  My doctor approved the fast.  I unfortunately did not have a reset of my immune system which is why I'm now trying the paleo auto-immune diet.  I am taking supplements for the things that I'm not getting in enough quantity on the diet...such as calcium.  Your diet does sound terribly difficult.  You may want to look at the one I am on and see if that is any easier for you.
  • justine89448
    justine89448 Jeepers

    Posted

    Hi before I had LS I had servere gastro problems this was treated by a blood test to see what food I had a problem with, there was a long list dairy, rice, yeast were just a few under supervision of a natrapath who gave me certain probiotics I got better through cutting these foods out. It did take 18 months so hang in there I know how tough this is but the only way you will know if it worked is by doing it wholeheartedly be strong keep going xxxc
    • Jeepers
      Jeepers justine89448

      Posted

      Justine. Well done ! You do sound so positive just like my friend. She benefitted and you have too.

      You say you got LS after your success with the culprit foods, however, but it does show that perseverance can pay off .

      Am I right to think your blood test identified allergies and/or intolerances in some foods? then even with these problems dealt with you went on to get LS after that?

      So I am thinking it is not food intolerances which cause LS, and this is useful to know, so thanks again x .

       

  • athena93317
    athena93317 Jeepers

    Posted

    I started the gluten free diet along with stopping birth control and taking wheat grass pills coconut oil,biotin, and children's pro biotic gummies I take then every day I wad on my diet for about five months I saw great improvement I think the wheat grass and pro biotic helped a lot as well but a day after I ate the delicious pretzel and pizza I had a flair up so I stopped eating it again I tried eating pizza again a month later just to make sure it was from the gluten and it was I had another flair so now I'm going to stick with the diet
    • Jeepers
      Jeepers athena93317

      Posted

      thank you for that Athena. Maybe make pizza at home gluten free. You know it might not have been the gluten, could possibly have been some additive they use in pizzas?

       There are so many factors. Even the successes Dr Seignalet had with his patients could have been attributed to just one or several parts of his diet  and not had to be the same for all diseases either...but I am bearing that in mind so thanks again.

    • renee77108
      renee77108 athena93317

      Posted

      Possibly tomatoes?  Potatoes, peppers, eggplant and tomatoes are all from the nightshade family.  They are known to cause inflamation. Might try giving those up for a bit.
    • athena93317
      athena93317 Jeepers

      Posted

      I can have the gluten free pizza from the same place with no affect it's just so expensive lol it's $12 for a small just cheese but it is delicious
    • athena93317
      athena93317

      Posted

      Just to add I do think everyone I'd a little different so I think gluten triggers my LS but it could me something else for you just something are body doesn't like
  • jules1100
    jules1100 Jeepers

    Posted

    Hi Joodie,

    I have also wondered whether these diets will have any effect on LS. Unfortunately such diets require commitment and not just for a few weeks. Sometimes it can take many months to see any improvement.

    I'm rather confused with my current situation. I've been to two specialists. The most recent one who is treating me is pleased with how things are progressing and told me that the LS is being well controlled. However I'm still suffering burning, almost on a day to day basis. It's miserable. Is this what I have to live with? I'm at a loss.

    • Jeepers
      Jeepers jules1100

      Posted

      I too got told I was better once  Jules, when my regular  burning patch was in fact very active. I would rather have had it acknowledged and given advice on care really, but that was many years ago. It is greatly improved now.

      I do hope yours starts to ease off soon so hang on in there . x

       

    • Guppy007
      Guppy007 jules1100

      Posted

      Jules, what diet plan  are you following? Have you tried just going Dairy free and then Gluten free, those two seem to be the biggest triggers for people with auto immune conditions.  Sometimes people that have problems with Dairy are unaware of it, and so it might be worth trying that if you have not already done so.
  • lizziewizzie
    lizziewizzie Jeepers

    Posted

    Sorry you are weary of the diet...but look at all the replies you've had!!!

    I hope these count as encouragement to you. Actually I see you are yourself a very positive and supportive person...so welcome to the team and I hope very much that you will feel encouraged.

    Also I hope you now feel that there is more than one person commending the removal of food triggers and that you do feel supported in your endeavour and will perhaps join in with passing on encouragement and more info about the way you're doing things perhaps? I would love to hear more and maybe teaching and passing on the hints which you are getting will in turn help to encourage and inspire you....so you'll feel more enthusiasm too ??

    Would love to hear more! liz xxxxxxxxxx

    Meant to say that I can cheat a bit except not with gluten. That's because I have a low thyroid and due to molecular mimicry ...gluten being close biologically  to thyroxin....it causes an attack on the thyroid ...so apparently those of us with autoimune thyroiditis need to avoid gluten. The research to substantiate this is available on pubmed I can't remember who directed me to it but it makes sense to me so I follow the advice with gratitude to the researchers as it works for me. 

  • lizziewizzie
    lizziewizzie Jeepers

    Posted

    oh joodie I meant to say that I think the real secret here is nutrient density...so finding the most nutrient dense and diverse foods we can..or otherwise supplementing..but with whole food supplements not synthetic which can do more harm than good.

    SO ITS ALL ABOUT NUTRIENT DENSITY and mostly veg x

  • susan07411
    susan07411 Jeepers

    Posted

    The Paleo diet did not work for me too restrictve. I found that sugar is the worst enemy. I check all the sugars in my food that I buy, but mostly Imake everything fresh. I even make my own bread, with unbleached unbromiated unenriched flour. I can regulate how much sugar to add. I also use home farm made butter which I can buy locally. I also find red meat too rich and can cause an outbreak of lichen. Basically you do what works for you and your body. You have lichen sclerosis forever, it is more about controlling it because, so far, there is no cure. I try hard not to use the steroid ointment, but I do not rule it out if a bad flare erupts.
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