pip points

I dont get esa as my partner works xx

You are so right. It is for the DWP to make the decision and to try to guess what points you should get from the assessment report is not advised.

I had been receiving DLA in 2004 for over 8 years - both high rates. Come the 2004 assessment, the report looked good. However the DWP decided to take everything off me citing that they believed that I was still mentally ill, but that the current illness was not the same one as it was in 2002 at my last assessment! Lost on review in 2011 it went back up to HRM & MRC for the 'original illness!!!

I have no idea how the DWP apply logic. 

My specialist wrote a letter saying I cannot bath or cook unsuper

Unsupervised, atos also said I can't do these unsupervised, dwp have changed iy and said I can bath and cook unsupervised so 0 points for those. It's so frustrating x

If they have got a copy of the letter your carer sent saying this they need to provide you a copy and admit that they have .a made a mistake . I have just been reinstated but had to talk to over 50 different people while the different systems and depts caught up with each other. As I failed an ATOS assessment a month before surgery they stopped my benefits so I was misinformed to go through Mandatory Reconsideration. Waited a fortnight still told no even though I was a change of circumstance so did a new claim and won with the help of my MP. I have since been apologised to three times by the DWP

It was in the news recently, the amount of millions that the DWP workers got this last year, basically a bonus of around £40 million!! But, they get bonuses for ESA putting people back to work, when it is clearly wrong and impossible, in many cases.

The company I worked for, actually said they could no longer insure me when I become disabled, because I would be a danger to myself and others. I am on ESA (support group), then the medications I am make me have Adverse Drug Reactions, which can be a danger to myself and others, yet the government thinks working will make us better. In my case I would end up either in hospital or in a police station, or back home!

I am still on DLA High Rates - not on PIP yet, I want to see what happens when they go through my health records because I have multiple issues way beyond, most people - I have only seen a private doctor once working on behalf of Social Security, he said to me there is no chance of you ever working again, because I had been seen by top world specialists and the Social Security did not believe my own GP at the time!

My wife applied for the care component which was on middle rate to be increased to the high rate - We had a letter back from the DWP, saying we were supposed to contact them if my condition and care needs increased, well they had, but I never thought I would receive it. I know we should have applied for it, but unlike all the people on TV that try and squeeze the system for every penny, we didn't like to - even though we were entitled to it. I now know, I cannot do much around the house without struggling - my wife cares for me 24/7. I have to be constantly watched, because I have memory issues as well as severe physical problems - yet I see some disabled people on TV, and think to myself "I am not alone, there are people worse than me!".

A typical week this was "late Saturday, Seizures 9 in 2 hours, rushed in to hospital, 4 hour waiting to see a doctor (thats normal). Thursday, another visit to hospital for BoTox Injections. Friday 10am, visit the dentist. And within this week 4 other appointments I had to make! - I may not work, but I have to see so many specialists, consultants and my dentist again in 2 weeks time. Yet, the people on TV are just sat on their arses outside their houses watching time go by. I cannot sit down or stand up without being in pain, and this time of year joints become worse and feet, ankles and legs swell - more pain, and tablets.

Why do they make these programmes on TV? It just makes us real sick and disabled people look bad, well we are in a sense. One thing I noticed was not one single person on these programmes uses a wheelchair or even walking aids!! I have 4 and still struggle!

Regards,

Les.

Hi Les Well put and all so true. i was saying to hubby the other day its the fraudsters, the ones who apply and manage somehow to get DLA for so called severe disabilitys, claiming  they cant walk only to be seen pursuing sports ect that make a mockery of the genuine cases. What id like to know is how did they manage to fake a claim without medical backup and get it in the first place! I think these ones have contributed to the government turning on us genuine cases, its seems they no longer can see a genuine case when its staring them in the face. They have gone otp with everyone now. There are so many areas where the government could make cuts to save money but no they attack the helpless and the sufferers of bad health, many in constant pain.  All i can say is thank goodness both of us are least on state pension so when not if we lose our DLA we will at least have some money to survive on unlike those who are still of working age and suffering, losing their DLA cant get PIP and have nothing coming in at all.

Sue

Taking you up on being able to 'survive' with the loss of DLA. We are both over 65 and when I transfer over to PIP, the loss of the DLA will not just be the benefit itself £100+ a week, but also the loss of the Pension Credit payment of £68 a week, the stopping of the mortgage interest payments they make of another £61 a week to the bank as well as the Council Tax Benefit. this is because the dual severe disability premium will stop as will one of the carers premiums.

Ignoring the Council Tax Benefit, we will be down by over £230 a week when the DLA goes. 

I know what you mean being on Esa and PIPS gives one a' passport' to other benefits. As I have a life long condition Fibromyalgia that helped me qualify plus having had shoulder surgery which could take a year to fully recover. I and my children would be utterly lost without these benefits. I dread the effect Universal Credit will have. It is really tough to be so vulnerable at 51 as a single mother with am ex Aspergillosis husband whom.I walked out on 20 weeks pregnant with a three year old son.They are now 11 and 15 but by some miracle we survived. Best of luck with all your challenges.I am so grateful you informed us of the Warm.Home Scheme .I spoke to the people this am amd said it was vital that claimants are aware they are entitled to this

​ Oh Les of course, id not thought  of this, no DLA no pension credit which  also means no council tax excemption ​ it just looks bleaker and bleaker doesnt. Ill be very very shocked however if you lose the right to PIP, You should be getting it and top rate to. You need it with a mortgage, what a worry.

Sue

Thanks, yes, tell me about it.

I have to be a realist. I have had over 20 years of bad and poor service from the DWP so I expect the worst that can happen as it usually does.

Even now I am fighting the DWP who made a disasterous decision back in 2004.They rectified it in 2011, changing the 2004 decison, but because I was in hospital and unable to deal with my affairs, when the decison was made in 2004 I didn't appeal against it within the 13 months allowed. Hence the DWP have accepted that they were wrong in 2004, but they cannot make the £20,000 payment that they agree I am entitled to.

 

If you are entitled to it of course they should pay you. .At the moment I am .considering taking the DWP to court. Give them.a.taste of their own medicine. They have seriously affected my recovery after rotator cuff surgery which means this has delayed my going

Back to work. In utter desperation I got my.MP involved. Best of luck in retrieving what is obviously owed to you

Thanls poll. I am seriously considering asking my MP to get involved, for what good that will do though.

Yes I had the final decison notice in December 2011 where they eventually awarded me the benefit back to Feb 2004. BUT there is no legal way of making that back payment. It appears that if you don't make an appeal at the time and certainly within 13 months of the date of the original appeal, they can only supersede the decision and make any payment from the date of application to look at it again (which was in June 2011). They cannot revise the original decision due to the lack of an appeal.

The DWP say that 13 months to lodge an appeal is long enough. Pity those that are like me and genuinely incapable of doing so lose out.