Pityriasis rosea gigantea- big ovals I had them, how many of you?

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Most people come on here only when they need help, but many people stick around to help others, so: I had PR for over a year, and it showed no sign of going away. I was diagnosed at 9 months with a biopsy. All the dermatologist told me- actually office lady, not even doctor- was "you have PR, we're sending in a prescription for you".... Not even a "nothing helps it, it will go away after a while, it won't kill you". Nothing.

I was doing some research a couple of months ago, and found out that there is a variant of PR that has its own name, it is called pityriasis rosea gigantea. Instead of having small, well behaved itchy ovals, the ovals just spread and spread. They can by 6 inches across or more. They said that this is very rare. So, I had a very rare version of a very rare rash. One other person on here has reported having it. Anyone else?

Yes, of course I finally found Prreze, that is what made mine go away. Thanks for asking, because it certainly showed no signs of slowing down at all until I put Prreze on it. image

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  • Posted

    Hi stazstaz, I'm here to help others too. Although like you my PR was, and is, quite a tricky one. So I hope it does not worry others with the P. R symptoms. I started off feeling unwell in June 2017, and noticed a few spots between my thighs a few days later - these spread right down between my legs, and I got a few over my body too. But no itching thank goodness. One G.P. told me I had P.R. which was cat-related! ( I'd stayed in London with my son & his wife who had two cats, so thought it possible I'd caught some form of P.R. from them) The G.P went on to say it would last some 6-8 weeks! ( I subsequently spoke to many cat owners who disputed his theory.) Then after seeing your blog, my son sent for 'prreze' ointment (which arrived from the United States of America) and did not seem to do very much for me. I also tried different body washes etc - to no avail. In the meantime I'd lost all taste, except for very sweet or sour! And this has continued despite many visits to specialists/ doctor's and therapists, including acupuncturist! The spots between my legs have gradually decreased - a few still there. Whether by the use of 'prreze' or time. But it seems nothing can hep my loss of taste. Others tell of different lengths/ types of P.R. they have, and one person said it had lasted fourteen months! So my two years seems to have broken all records. To those who find themselves victims of P.R. please do not think yours is anything like mine. After all you might have the mildest form of P.R. One that cures itself in 6-8 weeks or less. ( It might be a whole lot better than some after all eh?) Try out anything that helps alleviate your suffering. And the very best of luck.

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    • Posted

      I've had cats all my life, and didn't get PR until I was in my 50's. So I don't believe cats have anything to do with it. Two years is a long time.... Yours was biopsied, right?

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    • Posted

      Hi Stazstaz, No, and there was never ever mention of me having a biopsy done! I was sent from one specialist to another, and over two years later I'm to see another specialist RE: rheumatoid Arthritis - which I've had for years! With a thought my loss of taste (from the time I contracted P.R.) might be related to this debilitating disease. Fingers crossed if it is found to be the case, something might be done so I may be able to taste again. P.S. I too had cats from a very early age. But we do tend to believe doctor's don't we? Hope you are over all your P.R. and enjoying life. Best wishes. Rosy-Posy.

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  • Posted

    I'm pretty sure this is what I had/have. I first noticed it about 6 months ago with the massive herald patch on my back then I noticed I started getting small red patches on my legs which would then slowly turn into big ring like patches. They slowly kept getting bigger and eventually disappeared and my herald patch is gone now too. I cleared up for about 1-2 months but just this week I am now getting all new little patches (which I assume will turn into the big rings again) all over my body. I can't see a new herald patch though which is weird? I wonder why it's coming back? Maybe it never left? I hate this virus! I just want my normal skin back.

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  • Posted

    I hate it too! Mine lasted 14 months of itchy misery. I found Prreze and that got rid of my itch the first time I used it, and teh rash in under a week- I was neck to ankles in rash by then. It was "kind" enough to leave my face, hands and feet alone- just like it says in the medical literature, but the rest of me was covered. Just like you said, the rings just kept getting bigger.

    I hope it goes away and stays gone for you this time!

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