please any advice would be helpful

Hi Annie. That doesn't sound good. And you sound exhausted. Whilst you've posted in the fibro section, and that may be right, this is not the place to get a diagnosis you need to go back to your GP and ask for another specialist referral, either to neuro or rheumatology. it's good that it isn't MS and could be arthritis related from what you say, but gather yourself and get an appointment to see a GP you like and ask them to listen to you. Good luck and keep us all posted. It's the only way. vJ

I agree fully with vjl56. You must get a referral to a rheumatologist and get him to do a course of blood test to find out whether it is fibromyalgia. I have been along time sufferer of fibromyalgia and have learnt to live with it and manage pain the best I can also with some help of appropriate prescribed medication. Bur first and foremost you must get your condition diagnosed by a specialist as there are so many types of rheumatic conditions. Stay in touch.

I have another appointment booked for the 13th its with a different GP so here's hoping i'll get sorted thanksso much and i'll let you know how I get on.

Annie:

Hope I can be inspiring by sharing my story.... I became very sick with FM in 1992 and have recently found a solution and the FM is reversing and I feel amazing and I knew all along that I would find a solution.... you just need to be ready to accept that the body heals itself if we give it a chance... be patient with yourself and know that you can get back on your feet.... trust that the universe will send you the answers that you need...the body is an amazing vehicle.... keep positive... Dr. Bruce Lipton says in "The biology of belief" that we can change our DNA with our beliefs and I believed that all along.....I am now also in the process of trying to reverse breast cancer naturally.... so, anything is possible as far as I am concerned when we believe it.... be careful of the benefits that you may be getting by staying sick... that is a huge one that I had to look at.... I was afraid of being successful.... I am now in the process of starting my own business but I had to face a whole lot of fears.... good luck.....I am sending a whole lot of positive energy your way......

thanks joanne

Annie.... I should have mentioned also that I was also tested for MS years ago due to the numbness all over my body... I now know that the numbness (I am now still getting used to scratching my body as it hurts when I do; I was numb for so long and I am not used to feeling my body) was related to the food sensitivities....

I and my son have sensitivities to salycilates (products and food), carbs, wheat, dairies, additives.... when we eat any of these, we are on our back for a day or two.... the numbness for me comes on in about 30 minutes if I touch any of these products.... when I started the no-sal diet, my condition improved significantly in about 2-3 days; I knew immediately.... my son ate popcorn on Saturday night and he is still sick at home from it....

I truly and honestly believe that once we realize the impact that food has on us, we will disconnect from it and start leading healthy lives... the problem lies in our being addicted to that food more than a cocaine addict is to cocaine and the consequences are as bad but most people do not want to see it as it will mean letting go of food that "taste" great....

My food regime is excessively limited but I am leading an amazing life.... I had to let go of denying that the food was a big component in my health issues and voila and it is a process because we are creatures of habit and we do not want to see the obvious.... Renee Caisse, the nurse who healed people from cancer in the 1960s kept saying how the food was the culprit but we refuse to see it and keep eating stuff that has ingredients that we can not even pronounce....

Hope this helps anyone as it has totally changed my life and that of my son for the better....

Joanne

thanks again Joanne, at the minute we currently mostly eat a gluten free diet as my husband is coeliac and its easier to cook for us all the same rather than separately maybe theres a few more I need to cut out on

i know just how you feel i have exactly the same problems, my burning arm has actually woken me up at night ! i have also been told my symptoms, although mimicking neurological problems are not neurological related. i have been refered to so many doctors its crazy but they are looking at the possibility that it may in fact be fibro as all of my tests have to far come back clean. Maybe if you havent already, get a doctor to check the tener points associated with fibro just to make sure. good luck!!

Yes it's v confusing some of the FM symptoms. I had and still do sometime feeling down my arms and legs as if a mobile phone was vibrating in my pocket. And the vibe was goin down my limb. I can't tell you how many times I've taken my handbag off my shoulder to get my phone out and then realised it was this strange thing happening not my phone ringing at all. Checking the pressure points is probably the best way to diagnose FM as most tests do indeed return clean as you say.

Hi,

If I were you,maybe you should see a Neurologist or did I miss that you have? Also,what about Carpal

tunnel Syndrome,testing?Did you use these limbs excessively in your line of work?

And I suppose you have had a blood test for Diabetic condition.These I don't think are a start of Fibro

but may have at sometime or another if inflammation builds up in certain area over time.

Hi Elaine. If you were responding to me. I'm not a new FM sufferer and I've seen specialists and had the tests so thanks I appreciate your concern. If you were replying to Erika apologies!

Hi everyone, went back to my gp today and he's going to run another set of bloods and refer me back to neurology which I saw around a year ago but they wanted to play the waiting game to see if the symptoms subsided themselves. I have also seen physiotherapists and they said there is nothing more in their field of work that they can do. So here's hoping that this new referral will enlighten more and maybe get the resolve I need. I will keep you updated.

Well done Annie. Fingers crossed for you. VJ

Thanks VJ it's been a long time coming - how sad am I - I'm actually looking forward to the tests

Hi Annie. Not sad at all, it's really important and a year is a long wait. Remember tho that FM is v hard to diagnose and tests may come back NAD. just keep on pushing til you get satisfactory answers. Glad you're seeing neuro, tho fibro is classed as rheumatology, I've always thought it is more a neuro problem. Really hope you get some satisfaction and keep us posted Annie.