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I have posted on here on several ocassions, after several hospital admissions I ended up going private. I am really concerened and worried so any advice would really be appreciated please.
As advised before I have now been out of work for nearly 4 months and it is looking like I am going to lose my job, I really am suffering with the following symptoms:
Diarrea several times a day especially after eating
Very bad nausea
Constant pain in lower right abdomen which gets worse after eating
Complete loss of appeite
Lost nearly 2 stone in 3 months
Positive Calprotectin level 178
I have had so many tests done, colonscopy, endoscopy, mri, capsule endoscopy all back normal.
When I did the capsule endoscopy last week, the dummy (patency) capsule got stuck in my small bowel but after a failed CT scan, an invasive enema xray they felt it was low enough and safe enough for me to have the real capsule endoscopy, most people I have been told only wear the belt for 8 hours max and it passes the next day 2 days max, I had to wear th belt 14 hours as the capsule just stayed in my small bowel. It then took me 5 days to pass the real capsule and 3 days to pass the dummy one despite the huge amount of bowel prep I had to drink which made me very sick and vomit.
I have been told by my private GI consultant they want to repeat my stool sample to check the calprotecin levels again so I am handing this in today and then he said he will use that to decide what to do next possibly a laprascopy to look inside.
I am very concerened, 1 what if the second stool sample comes back negative.
2) Will a laprascopy be the answer, are there any other tests?
3) The GI said stool sample is very accurate for picking up things e.g Crohns etc but surely wouldnt this have been detected in all the tests I have had done?
I am just sick of suffering, I feel constantly ill, in pain and can't lead a normal life I am just trapped at home and I am worried there will be nothing they can do to help me. I just don't know how I am suppose to live like this or work again when I have no treatement or medication.
I feel so down, thanks for listening and sorry for the essay.
Many Thanks xxx
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