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PMR, Prednisone, Starting Actemra

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kathy67492
kathy67492

First infusion of Actemra this morning. Scheduled for next infusion in 4 weeks.

Have had PMR For 3+ years, currently @8m and not feeling great...pain upper arms, thighs, etc., plus greater fatigue. Got down to 7-1/2m, flared, and I don't think I increased the prednisone enough, so have been fighting uphill the past 8-10 weeks. ESR & C-reactive Protein are in normal range now...started with ESR of 87, C-reactive 67..that was 3 years ago.

will do blood work before each infusion. Next infusion in 4 weeks.

Anticipated improvement may be within 2 weeks..?!  Since 8 have been on a "downslide" so to speak, I should be able to notice if there is improvement.

Will keep you posted. I read all the posts and look to contribute when I can...this forum is a life-line when dealing with such a chronic condition. Thank you😊

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