Posted , 6 users are following.
I had keyhole surgery to remove gallbladder ( I had multiple stones) at end of December 2016. Have been having some raised readings in liver blood tests and am still getting some unpleasant pains in *bed* of gallbladder. Is this to be expected
1 like, 17 replies
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lynda20916 moira10824
Posted
HI Moira,
Sometimes there are twinges for a while. I had mine removed in 2009 and still get phantom twinges.
However, I am wondering if you've every been diagnosed or screened for a fatty liver. That can rresult in raised readings in your liver blood tests.
carol02471 moira10824
Posted
Hi Moira
Have you adjusted your diet at all, my daughter had to go dairy free & eat free from foods to help the body digest better.
That might ease it up a bit for you,
emma15794 moira10824
Posted
I had mine removed in 2013 and shortly after was re admitted with raised liver levels and jaundice.
I was was diagnosed with Sphincter of Oddi dysfunction, it's a dysfunction of the muscle just above where the gallbladder would be and it has trouble shutting off and stopping bile from coming back into your body.
Might be worth asking to be investigated for this, as it mimics the gallbladder pain.
does it hurt as soon as you eat. Does the pain radiate up your right side and down your shoulder blade up into the ribs and make you feel like someone has punched you dead centre of your chest! If yes, then I suggest you get an appointment ASAP.
of course I can only go on what happened to me, but I hope you get it sorted
carol02471 emma15794
Posted
Hi Emma
Just read your reply as this is what they think my daughter has as well now.
She is booked in to see the specialist in London on Thursday & that pain in the centre of your chest is exactly what she gets also very rarely goes away if it does it's a short lived respite along with the rest of the symptoms.
What did they do for you once diagnosed?
Thank you
Carol
emma15794 carol02471
Posted
Hi Carol, it was a long road to actual diagnosis I'm sorry to say. Some Drs don't agree it's an actual condition, so it took me another year and some swapping in Drs before I got an answer.
There are are several tests they carried out, if they offer a camera, I would say not to have it done, it can cause pancreatitis which she would definitely not want.
I had a scan with an injection to highlight the vessels to and from the muscle and how quickly the dye passed through me, they can also do an ultrasound and an MRI. Mainly they use the symptoms to make a diagnosis. I refused the camera because of my history of getting things that aren't common, I.e. This sphincter of Oddi!
If if your daughter also suffers with diarrhoea I would mention that, I didn't think anything of that, until it started happening several times a day, turns out that was also related. To diagnose that I had an injection and a scan on a Monday, then had to return a week later for a further scan to see how much of the injection I had retained.
as for managing the pain, I have an inhaler that I use, which is similar to what they give you for angina. I have had to cut out lots of food from my diet and this has stopped the amount of attacks I now have. It took a long time getting here but I'm finally on a level where I can go for months without an attack.
hope that helps x
carol02471 emma15794
Posted
Hi Emma
Thank you that's really useful to know prior to her appointment on Thursday.
Looks like she is similar to you seems to get all the rare bits related to something else that has a knock on effect.
She is 21 in April and suffered with this all for 3 solid years, we were thrown out of an A&Etold take paracetamol there's nothing wrong with her on multiple occasions & that she was attention seeking had mother daughter issues, you name it she has had it said to her.
So whilst relieved to have had a lot of the issues fixed privately this last bit I think you'd agree would rather not be going through.
Good to know about the spray, does it give you a really bad headache, she was give GTN I think it was and it caused a really bad headache, so just wondering which one you have?
She can't go out with friends & managed two mornings at work in the last 6 weeks so we need to get it resolved asap now.
Thank you Emma really appreciate your help.
Glad you are feeling a lot better and can manage it now . X
emma15794 carol02471
Posted
The only side effect I had was it made me feel like I was going to faint, I was in a shopping centre at the time, so had to sit down sharpish!
ive had to completely change my eating habits and patterns. I no longer eat breakfast, only a small snack around 1030, something low fat. At lunch I can no longer eat a big sandwich with crisps or a cooked meal, instead has to be a low fat sandwich or fish and salad. Tea now has to be light and a smaller portion with nothing fried, fatty or spicy. But saying that sometimes I can eat these things and be okay, but it's best not to risk it. I completely avoid dairy and meat other than fish.
its been good for my waist line, but it's annoying not being able to eat what I like.
i hope your daughter gets the answers she needs and some help. It can be really depressing thinking you are lying so I understand how she feels
carol02471 emma15794
Posted
Hi Emma
Thank you so much for responding.
I've just read all of your replies to her and she said omg that's exactly the same.
So can't thank you enough Emma we are going to the specialist with notes of exactly everything so there is no doubt on any of it.
Thank you we have some hope, she said it would be amazing if this could be controlled via an inhaler & she can get her life back.
It's nice to see her lifted thank you .
emma15794 carol02471
Posted
I'm glad it was of some benefit, I hope all goes well Thursday, fingers crossed!
lynda20916 emma15794
Posted
Thanks so much! This is very valuable information for everyone on this site! xx
lynda20916 carol02471
Posted
Good luck to you both--I hope this upcoming appointment can lead towards a good, solid diagnosis!
Please let me know how both of you get on!
moira10824 emma15794
Posted
Hi Emma.That was a useful message. I can't say that I get pains in the middle of my chest but I get a fair degree of pain in the bottom area of my ribcage at the back right hand which can make me feel that I've been kicked by a horse, & then this radiates up into my right shoulder blade; very similar to the referred pain I was getting when gallbladder & stones were causing issues.
emma15794 moira10824
Posted
moira10824 emma15794
Posted
Hi Emma, received news from Drs today that my recent blood test, done 5 days ago, that my liver readings are getting worse again, they say its to do with "sludge". Oddly enough I can honestly say that although pain is pretty constant, it does worsen when I've eaten. Have to go see drs on Monday so I will ask re sphincter of oddi. Thanks for your time.
carol02471 emma15794
Posted
Hi Emma
Sadly my daughter is back in A&E can I just confirm 100% it is GTN spray / inhaler you use, Drs here haven't heard of it for this so just wanted to double check.
Thank you x
emma15794 carol02471
Posted
Hi carol sorry to hear that. My Dr gave me Glyceryl trinitrate 400mg spray to use when ever I have an attack. It might be worth noting the only thing that stopped the pain when I was first admitted was lansaprozole, which I still take daily 30mg. I hope your daughter can get some help it really is agony