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Prolapse and pelvic congestion syndrome

Posted , 6 users are following.

karen08997
karen08997

Hello I am new to this site and desperate for some reassurance regarding my symptoms. I have severe anal pain high up under my tail bone and dragging aching feeling in my pelvis and vaginal area also I saw a private consultant who did MRI and CT the only thing that shows are the varices anorectal also in cervix and vaginal area also had sigmoidoscopy a few weeks ago this was done by a nurse consultant now wants to do another himself just to double check. He also has me scheduled for a deification protogram. He has said that I do have a rectocele and bladder prolapse in constant pain and discomfort has anybody else had these symptoms 

0 likes, 15 replies

15 Replies

  • Jan999
    Jan999 karen08997

    Posted

    You can get pain with a prolapse because of the position of it. It can pull on nerves and ligaments.
    • karen08997
      karen08997 Jan999

      Posted

      Hi matron thank you fr your reply woukd it also cause bowel problems as in feeling like  I always need a BM when I try to do pelvc floor exercises it causes pain under tail bone to hurt even more also uncomfortable to sit I have to sit on one side to keep pressure off my rear end 
    • Jan999
      Jan999 karen08997

      Posted

      What you describe is quite common when you have a bowel prolapse. I remember having problems sitting down and having to sit on one side to relieve the discomfort.
    • karen08997
      karen08997 Jan999

      Posted

      Thank goodness I'm not going crazy on pain meds at the moment they seem to be taking the edge off things 
    • DorryC
      DorryC karen08997

      Posted

      Does splinting help?  It helps me.  You can buy gloves if you would be more comfortable that way.  
    • karen08997
      karen08997 DorryC

      Posted

      Yes splinting does seem to help my consultant as also mentioned that biofeedback might help not sure what  success it has though 
  • DorryC
    DorryC karen08997

    Posted

    I have had a lot of problems with pain.  They aren't exactly like yours but pain has been my biggest problem and we only discovered the rectocele several years into severe pain issues even though it was clear, once I knew what it was, that I have had it for a long time.    

    The pain has been bad enough that my doctor thinks the rectocele can't be responsible for all of it.  I don't know, but I haven't responded very well to normal treatment (physical therapy)  and I'm really hoping that repairing the rectocele will make it possible to get better (more PT needed, I am sure) .  Right now I'm in pelvic floor PT (to treat pelvic floor in spasm) and I'm not scheduled to see the doctor to talk about surgery until that is done.

    I also had the same test you are about to have.  My doctor called it a defocography.  Reading about it ahead of time was slightly horrifying but everyone was very professional and in the end the worst part ended up being forcing myself to drink the barium drink they gave me.  It was really hard to drink without vomiting.   The test itself wasn't painful or uncomfortable, just strange and embarassing.

    • DorryC
      DorryC

      Posted

      I just wanted to add that my pain has primarily been in my SI joint.  I have had some back pain for a while but it didn't become severe until I got pregnant again.  It was dismissed as one of those things that happens in pregnancy but it didn't go away when my baby was born.   The rectocele wasn't diagnosed until my youngest was nearly 3.  I'm hoping treating the rectocele will help me get back to normal but I'm not there yet.
    • karen08997
      karen08997 DorryC

      Posted

      Thank goodness somebody else has ad this test like you I have read about it too my consultant seems to be getting thongs moving pretty quickly now he as put me back on the nhs for the rest of the tests and any treatment I need think I got diagnosis quickly as I did pay to see him as a private patient to get scans done as pain was horrific . Hope you get relief soon 
  • linda53313
    linda53313 karen08997

    Posted

    When I first experience my prolapse ( a large bulge visible at the vaginal orifice) it was very painful. I think that perhaps it was "brewing" for awhile and then something "gave". It was an acute pain. Now with some weeks passing and a pessary inserted that pain is mostly gone. Is it not like a knee or other body part - ligaments and tendons and muscles get strained and sore. I hope you find help with treatment.
    • karen08997
      karen08997 linda53313

      Posted

      Yes I had been to my gp several times with aches and dragging feeling in my pelvis then like you it suddenly felt like something gave  and the pain started more tests then hopefully a pan of action pain meds for now 
    • Unicorn53
      Unicorn53 linda53313

      Posted

      Did your pessary work first time Linda?I had one fitted yesterday and it was almost out this morning,tried to push it back up but it wouldn't stay put. Rang consultant's secretary who told me to remove it if I could.I did and am booked to go back tomorrow to see the specialist pessary nurse to have another one fitted
    • linda53313
      linda53313 Unicorn53

      Posted

      Mine was very uncomfortable for a week. Very achey. I went back the next day as I could not have a bm without having pain in my rt buttock. My gynecologist  is non communicative - he was only interested that it was not falling out, and that I could urinate. He had no comment about my difficulties having a bowel movement.  I started learning how to adjust it - pushed it in farther - eventually in the second week and it ended up in a much more comfortable position, though bm's are still a bit difficult at times.
    • Unicorn53
      Unicorn53 linda53313

      Posted

      Well I had my second one fotted,the nurse said that was the only other size she could fit,as I'm so narrow down below post rectocele repair. Anyway that one had fallen down by the next morning and was so uncomfortable that I removed that one too.So back on the phone tomorrow to the secretary to tell her what's happened and find out what's next for me.Think I'll leave it until the prolapse becomes unbearable to live with and then have it repaired

       

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