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Hi, I was diagnosed with Thyrotoxicosis a year ago. I have a large goitre with nodules, and my weight plummeted - shakes, sweats, heart racing, severe depression, no appetite, the usual symptoms. I was given Carbimazole 40mg to start with, and stopped it after two weeks as I felt so unwell on top of how I was already feeling. I was ok for a few months, then I had a thyroxide storm in Dec (which I didn't know at the time and thought I had a severe virus for a month) and after months of my GP trying to give me anti depressants and anti vomit drugs, I was referred again to my endo. I was off the scale again, so he re-started the Carbimazole in May. It's taken a while to cotton on (my brain is like wool) but I suddenly realised the horrendous 'hay fever' symptoms I had (I've never suffered with it) and eyes swelling etc were the Carbimazole. Saw my Endo today who has taken me off it, and given me Propylthiouracil. I've resisted all pressure to have my thyroid removed and the iodine treatement. I believe that once it's done, there's no going back and my cousin has had nothing but trouble since hers was killed and she is now underactive all the time. I'm wondering if anyone else on the forum is taking this other drug please? I was happy on the Carbimazole as I gained a stone in weight, and my mental health has returned to normal and I can eat again. However the allergic reaction has been hell to live with and I can't see most days due to my eyes swelling, fluid under them, throat swelling, mouth stinging etc. I feel very isolated as I know nobody who has an overactive thyroid, other people seem to have the underactive. Any help I could receive would be gratefully met! Oh, I should also add that I'm on fentanyl patches and codeine for a long term spinal injury and scoliosis, I don't know if that makes any difference? Thank you for reading.
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