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Prostatitis/Pelvic Pain for 2 years, what should I do?

Posted , 4 users are following.

RLO2018
RLO2018

For two years I have suffered from severe and constant pain in and around my penis (underneath too if that makes any sense) of which seems to be inflamed. In the beginning, I believed it to be a recurring urinary tract infection and my local doctor would treat me sometimes as an infection appeared to be there.

I could not cope with the pain much longer and my doctor referred me to urology as he was unsure of what to do. I went through nephrology to ensure that my kidneys were fully functional and through an ultrasound test, they found a prostatic cyst that was believed to have not been related to my symptoms. I underwent numerous scans to ensure my bladder was emptying correctly and functioning properly and it was. At this point, the urology specialist believed there was no problem and was happy to let me go as my symptoms could likely be due to not drinking enough water (which I do).

Two years later, since then, the symptoms have not gone away nor improved and my doctor referred me once again to urology and I consulted with one of their specialists. Around two weeks ago he told me my problem may likely be related to my prostate (as I also complained of having a 'hot' feeling around that area).

He told me I may have chronic pelvic pain/prostatitis but wants to rule out every other condition it may be and has put me on Toviaz which relieves overactive bladder syndrome. The medication did not improve my symptoms and in fact, worsened them as I was constipated near enough every day and the sachets of laxatives I had were not working enough to make me go every day.

The specialist has told me that for now, I should take painkillers and see how I go. I can not cope with this much longer. I am going back to my local doctor next week as I am only 17 and I have suffered from these symptoms for years but they only worsened two years ago and have stayed persistent up to now.

I don't know what to do. I am even thinking of taking natural supplements such as Quercetin, as they have seemed to be a great reliever of prostatitis from reading many forums online. Any suggestions for short-term relief or what I should say to my doctor?

Sorry for the long text, thanks.

 

0 likes, 5 replies

5 Replies

  • RLO2018
    RLO2018

    Posted

    I must also add that I underwent a prostate exam and in which it was very tender and uncomfortable and throughout I felt as though as I were going to urinate. Could my prostatic cyst be related to this either?
    • derek76
      derek76 RLO2018

      Posted

      I doubt it. Every time I have a DRE I tend to swear.
  • miriam65408
    miriam65408 RLO2018

    Posted

    Have you checked out Chronic Pelvic Pain at all?  Have you seen that this is very often caused by stress and anxiety and the pain can be relieved by exercises and relaxation techniques? 

    There are websites such as the chronic pelvic pain clinic which have videos to explain about it all and suggest the exercises.  Since your tests have not shown any other cause this sounds a sensible route to explore - an exercise regime will be a lot safer than endless courses of antibiotics, which is what you may end up with.

  • derek76
    derek76 RLO2018

    Posted

    It does not sound like prostatitis as most people know it.

    Be very careful not to let them prescribe Cipro or fluoroquinolones. See link below.

    https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

    Presumably the cyst is not big enough to be a problem and they are usually harmless. I have two on one kidney and one on the other plus 35 at the last count on my liver. A relative did have a big cyst on his prostate and needed TURP surgery to remove it. That is something else you want to avoid.

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