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Question about LS skin

Posted , 7 users are following.

dani2590
dani2590

Ever since I was diagnosed the white area/patch on my inner labia minora underneath the clitoris has always felt scaly and rough. I did a biopsy to confirm the diagnosis. But is this how LS feels? I keep reading the affected skin is thin like cigarette paper but this particular area seems more scaly if that makes sense?

0 likes, 14 replies

14 Replies

  • athena93317
    athena93317 dani2590

    Posted

    Yes it sounds right to me I don't understand there description at all and I believe that it was described that way in earlier researches I know before it was believed that it was a thinning if the skin but now with more recent research they know now it is a thickening I would describe it as dry and sometimes bumpy it looks a lot like normal skin but harder in texture
  • jackie73005
    jackie73005 dani2590

    Posted

    I agree Dani its more likely to be thick rather than thin.  People on the forum worry because the dermovate is supposed the thin the skin but i find this is a good thing.
  • renee77108
    renee77108 dani2590

    Posted

    Hi Dani2590,  Use 99% or higher aloe vera gel on a cleansed area at least 2 times per day...morning & evening and the scaliness will disappear.  Takes about 2 weeks...but it will be gone.  I had the same issue and the aloe vera gel also keeps away any itch.
  • hanny32508
    hanny32508 dani2590

    Posted

    When I started to take pictures the looks of the skin indeed was like cigarette paper.  But in reality I think it is a thickening of the skin.  The Globetasol is supposed to thin the skin and keep things under control.  Not entirely, as we all know.  Hence all of us seeking additional suplements - baking soda rinses, aloe vera gel and other.  The skin above and around the clitoris felt 'flakier' and disappeared altogether under a thick layer.  But now the clitoris is back.  
    • phil21170
      phil21170 hanny32508

      Posted

      Am I right in saying that scratching the itch causes the skin to thicken like scar tissue. I am desperately trying not to scratch the itch but sometimes it drives me insane.
    • hanny32508
      hanny32508 phil21170

      Posted

      I have a similar issue on my hands and it is a bit easier to observe.  I thought I had this under control as well, but no longer.  (thinking that my hands are washed with soap all the time and that might be the culprit)  The skin first is itching, then small bumps appear, almost invisable.  Then thick skin appears in the centre and the now hardened skin starts to break and flake away.  In my desparation this morning I put a bit of globetasol on the bumps.  Feet were similar but better to control.  Hands you use all the time, cleaning, washing and the like.  So that any stuff you put on lasts not very long.  
    • hanny32508
      hanny32508

      Posted

      I don't think that the scratching can cause the skin to behave the way it does.  It's a process that just repeats itself over and over again.  Of course it is better to take away the itch with something else than your rubbing.  Renee suggests aloe vera.  I will try that on my hands.  
    • renee77108
      renee77108 phil21170

      Posted

      Yes, scratching will cause the skin to thicken and itch.  Use 99% or higher pure aloe vera gel. Apply it to clean skin. I use a witch hazel spray...but if that doesn't appeal to you, wash with Cetaphil or a pure coconut oil soap. Rub in a dab of the aloe vera gel...it will stop the itch and the thickened skin will disappear after 2-3 weeks. This works...so hope you give it a try.
    • Morrell1951
      Morrell1951 phil21170

      Posted

      Phil, definitely refrain from scratching! Look up the Koebner effect – both LS and psoriasis will flare after skin trauma, which includes scratching. This is also why the friction from sex will make a flare-up worse.
    • phil21170
      phil21170 Morrell1951

      Posted

      Thank you Hanny, Renee and morell for your advice. I have Aloe Vera 99.9 per cent but it does not take away the it has. I will try and get the soap and witch hazel. I suppose it's all about trying everything you can until you find something that works. sometimes though I think I will go mad when it itches especially when it disturbs my sleep.
    • hanny32508
      hanny32508 phil21170

      Posted

      Yesterday my skin problem on my hands was just terrible.  I followed Renee's suggestions regarding aloe vera.  Took a part of my aloe vera plant and rubbed the affected area's after every handwashing, now in baking soda water.  Before going to bed I rubbed the area's again.  I was amazed to see this morning that the small bumps had diminished or disappeared altogether.  I will repeat the process today again and stay away from hand washing with soap and will purchase some gloves for cleaning purposes.  Chances are that I will beat this one too.  Thanks Renee for keeping at it advertising your results with aloe vera.  This time for the hands.
  • dani2590
    dani2590

    Posted

    Thanks everyone for the replies. Sorry for the delay I've been away the last week. Im hoping the steroid will continue to penetrate the scaly patch and eventually it will disappear. When they talk about the scarring is this what they mean? The actual white areas/patches? I'm always confused.
    • Morrell1951
      Morrell1951 dani2590

      Posted

      The white patches are active LS. Scarring is when repeated flares cause the actual 3D 'architecture' of our vulva to flatten out and the opening of the vagina to harden and narrow. If you don't have intercourse (friction!) while you're flared up, you may be able to avoid these long-term results.
    • dani2590
      dani2590 Morrell1951

      Posted

      Thanks Morrell for making that clear. Is the goal of treatment with the steroid to eventually make the active LS inactive and for the white areas to eventually fade? Sorry I hope that makes sense. Been diagnosed for four months and still confused as ever.
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