Posted , 7 users are following.
I was diagnosed by my ENT with MD. I have a question mine is strange, I eat a very strict diet low sodium no sugar (keto/Paleo) My MD is strange my hearing with get muffled on one side (low end out) and that will come and go with no MD attacks. At time my hearing in both ears is perfect. My last attack 3 days before my right ear got super itchy and then my hearing got muffed and distorted no low and high end causing a vibration in my head (also can't pop that ear with yawing). I had an attack last night, they always last 2-3 hours in the middle of the night. Once the attack is over the distortion is completely gone and my hearing in only about 3-5 dB off between the ears. I also have TMJ and am not using a splint to try and fix this. Any ideas if maybe this isn't MD, my ENT just looking in my ears and said based on the symptoms it is MD, I am praying he is wrong. Thanks for any info you can provide.
2 likes, 61 replies
tanney michael98270
Posted
By the way, did the ENT you saw administer an audiogram (hearing test)? Without this a MD diagnosis could very well be incorrect.
michael98270 tanney
Posted
He did do a hearing test, and the right side was diminished, but after an Md attack my hearing returns to normal. I'll look into the balance disorder testing, thanks really hoping it isn't MD.
jim79476 michael98270
Posted
There is a good article “Types of Vestibule Disorders “ at the VEDA web sight. You may want to check it out.
Regards, Jim
michael98270 jim79476
Posted
jim79476 michael98270
Posted
Good of luck to you.
Jim
Bluesmann michael98270
Posted
michael98270 Bluesmann
Posted
stephen61100 michael98270
Posted
My M.D. started the same way as you described ..
i would have an attack and feel fine when the attack
settled with no apparent loss of hearing only a slightly
wet sensation in the ear plus it felt like i needed to
hold my nose to pop the ear which is a common symptom
of M.D..I do not want to alarm you but over the years i
slowly went almost death in my infected ear..i dont no
how long your symptoms have been going on but it
sounds like you have the signs of an hearing disorder..
If the symptoms a relatively new then an E.N.T. would not
be so quick to diagnose M.D...I have had M.D. for 17 Years
and it took the E.N.T. 3 Years to commit them selves to a
diagnoses of M.D. ..The loss of hearing for me has been
very slow but it can be quick for some people.. I believe
it is the attacks and the inner ear fluids that damages the hearing..
Try not to worry to much if it is early days then your hearing
needs to be monitored by the E.N.T. and as i understand it
most hearing illness involves vertigo and hearing loss and
can be cured ...all the best...
michael98270 stephen61100
Posted
stephen61100 michael98270
Posted
It does seem strange that your attacks are always at night..
It would seem that something your doing in the evening or
night is the trigger to your attacks this could include smoking
drinking caffiene to much water intake salt stress anxiety
sleeping on one side grinding your teeth at night even sex
can add pressure to the ears ..if you run on high tsress
levels then at night is when everthing loosens up which could
act as a trigger like anxiety the body doesnt no whether to
be stressed or anxt..If i was you i would tell your G.P. how
you felt about your consultation with the E.N.T. to see what
he thinks..in the mean time keep with the diet and maybe doe
some light exercises by this i mean light stretches to releaves
stress and burns off stiffness ...remember no to people are the
the same with M.D..make sure your on betahistine i think there
also called Serc also diuretics..bendrofluemethiazide..citrezene
plus i use buccastem which im told is a mild sedertive that releaves
nausea ...hope this helps...
michael98270 stephen61100
Posted
That is what I am thinking, I don't smoke, drink, no coffee. Doesn't happen on a sex night. I am on a low inflammation diet since recently low carbs (keto) to keep the inflammation down. I don't have more that 1g of salt a day, I track what I eat. The ENT didn't give me any betahist, he did give me a water pill but with my current diet strictness I am actually a little low on sodium (blood test confirmed) I do definitely grind my teeth at night, not during the day and I have a night guard/splint that I now wear to help with the grinding and TMJ.
jim79476 michael98270
Posted
Jim
stephen61100 michael98270
Posted
It sounds as if your doing everthing right
im glad also you are seeking a second oppinion
and maybe you can ask about betahistine most
people seem to agree that it does helps although
you may have find your correct dosage ..i take
16mg 3 + times a day but some take 32mg it verys
..I really hope you dont get self consious about M.D.
as the worst part of it is having a bad attack but
ounce that wears off the rest is bearable..iv had
night attacks even a lot of anxiety dream of dizziness
and waking up with the room spinning uncontrolably..
so i had to learn to cope with (fear) i lay perfectly still
on my back and talk myself through it..i tell myself it
is a M.D. attack and it will pass as it always does i also
slip a buccastem under my top lip to help the symptoms
of sickness..what im trying to say is you dont want an
anxiety problem through the fearing M.D...Iv never heard
of you medication what does it say its for?...
michael98270 stephen61100
Posted
I did have a very dark time when this first happened and I was very anxious, but after the third attack I decided I wasn't going to worry about it anymore and if it happen it happened. Luckily it seems to be about a 3-4 month break in between so I don't worry about to much. Thanks for the info I will take that with me to my new appointment.
jim79476 michael98270
Posted
Meniere’s is usually characterized by four symptoms that occur with varying degrees of intensity.
Vertigo - An intense sense of spinning that is usually episodic and can range from mild to severe.
The vertigo attacks of Meniere’s are rotational and the duration of each episode must be
At least 20 minutes in order to be classified as Meniere’s.
Hearing loss - Fluctuating, low frequency, sensorineural hearing loss that becomes worse during
attacks, and may permanently deteriorate over time.
Tinnitus - Ringing or roaring noise in the ears (typically a low tone).
Aural fullness- A sense of fullness in the ear.
Jim
michael98270 jim79476
Posted
Question, I only get the fullness...which happens before an attack (sometimes) during the attack there is no fullness. Also I only get a slight ringing in the right ear during this fullness. During an attack there is no fullness and not a ringing but a rushing sound. Once the attack is over there is no ringing and no fullness. Sorry about the questions but I am trying to get a better understanding of this. Is it genetic since it doesn't run in my family. I would be the first case.
jim79476 michael98270
Posted
My understandings, from what I have read, there can be a genetic component. You my want to get a second opinion and read up as much as you can on the subject.
Jim
michael98270 jim79476
Posted
jim79476 michael98270
Posted
This syndrome, as I have laid out, has four specific identifying symptoms. How it develops can be different for every Meniere’s suffer. My first attack was in 2000. Lasted about ten days, slight symptoms for another couple weeks and did not come back again for thirteen years. During that thirteen years I did not have ant symptoms. Once it came back the symptoms have progressively worsened. I do and have had Meniere’s since 2000. I have made major life style changes and can manage my symptoms most of the time. Good days bad days. Meniere’s is not a one size fits all syndrome. Please get a second opinion, and keep doing your homework.
Jim
Join this discussion or start a new one?
New discussion Reply