Questions about Clob??

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Hi, I just started clob and have some questions about it. I have only used it for 2 nights and how long was it before it started helping? Does it get worse before it gets better. I have a lot of burning when I apply it. It's making the perianal area more white and my anal area has a lot of burning and is really red, almost like a red ring with white bumps. It is the worst I have ever seen it. I would appreciate any feedback. Thank you.

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  • Posted

    Hi Jlb,

    I hope that your doctor told you to apply only very thin layers of the clob.  Did he/she?  I made the mistake to apply too much. 

    ​Is it the cream or the ointment you have been given?  Ointment is better. 

    ​It should not get worse, so I would suggest you make another appointment with your doctor.  Did your doctor explain how to apply the ointment? 

     

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  • Posted

    Hi

    If it is making the condition worse, then perhaps you should call your doctor/specialist as perhaps it isn't suitable for you.  Have you been diagnosed with Lichen sclerosis?

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  • Posted

    It was ages before I found any relief using clob, probably around 6 weeks. I would say use it sparingly but stick with it. I used twice a day as advised by consultant for 6 to 8 weeks and then once a day until it had calmed down. Clob cream works better for me than ointment also. I now use a less potant steroid for maintainacne . Are u using an emollient to wash with and baking soda/bicarb baths and sprays after using the toilet really help settle things down. Hope it gets better soon - jo x
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  • Posted

    I am using the cream at night. My Dr. just said to use a pea sized amount. I do the clob at night and aquafor in the morning. I also do a baking soda bath probably 2x a week. I am going thru early menopause at 43. It just seems like my LS is getting worse. Thanks
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    • Posted

      Hi im 56 diagnosed 3 years ago. It took 6 months to calm down i used clob estriol cream and zink and caster oli and baking soda baths. This combination worked but took time. Also diet low sugar and i had a test done to see what im sesertive to food wise. So i stopped the offending foods. Things are much better now.

      Keep going xx

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  • Posted

    I personally wouldnT use any medication which made me worse before getting better....   That surely falls into the....  You have to be in good health in order to use these meds category....  You should either go back to your doc and ask for something different or have a go at self treAting.    Its all a matter of experimenting till hou find what is best for you.

    I didnT do that  badly with the Clobestomol but i needed a lot...  Since  bathing in  borax and moisturising with emu oil, iVe done much better, no itching and the papercuts have stopped appearing, so not so sore.     I havent used the steroid ointment since i swapped to borax.

    xx

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  • Posted

    As a person diagnosed with LS about 15 years ago, I've experimented with solutions for relief. For many years, I've used Clobetasol (ointment only) for flares only.  Use no more than pea size when using.  I have used Estrace cream for mega years 3x a week in the vulva area and once weekly intravaginally. I use a small amount of Epsom salts in warm water sitz baths usually twice a week, keeps things under control.  I also use Emuaid in between times, very soothing and seems to keeo everything nice and pink and plump as vulvar area should be..

    When first dealing with thus process, I overdid the Clob and it burned me in the panty line area,

    Since I am an elder (77) and work part time at home, I go without underwear, wearing either nightgowns or loose pajamas (love my comfy Vera Wangs). I learned to wear very thin crotch cotton panties, less is better.

    Best wishes.

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