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Really twitchy after night out

Posted , 10 users are following.

caroline271
caroline271

Hi, I went out for a meal with work on Saturday night and have been feeling under the weather ever since. I initially said I wouldn't go but it was a special evening and I really felt that I should make an effort and go. I only had one small beer and lemonade but the food wasn't what I would normally eat and I did feel stressed as I had to sit at the top table which made it difficult to hear and join in conversations. I went to bed about 11.30 and slept for 12 hours. I spent Sunday afternoon in my pjs and slept snothet 12 hours last night. My muscles have been really twitchy and jerky and my appetite has been down. Do any of you suffer in either a similar way or differently after going out?

Caroline

0 likes, 46 replies

46 Replies

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  • christine26761
    christine26761 caroline271

    Posted

    I was diagnosed over 20 years ago..and I can say yes..in my early years I definitely did have such fatigue like that...often if I had done something or been out..like you did..grr...Not being able hear others is very stressful and stress is just sooo bad for Fibro....I was often off my food..and I had temperatures too, yet there was nothing else going on..You didn't say how long you have been diagnosed with Fibro..but it certainly sounds like my early years...please don't stress it's the worst you can do..if your too bothered by anything just talk to your dr or someone like that who you trust..be blessed, hooe you get answers really soon...have a lovely week..:-) xxx
    • caroline271
      caroline271 christine26761

      Posted

      Hi! Thank you for your reply. I've had symptoms of fibro for many years but they became much more evident when I had to reapply for my job 4 years ago. I also had to take on a lot more responsibility last year when our manager was off sick for 4 months. It was then that I applied for early retirement and I am due to begin my new job in a couple of weeks. I initially said I'd like 10 days a month but I'm going to ask for 8 as the days are quite long.
    • christine26761
      christine26761 caroline271

      Posted

      Really good that you are looking after YOU-Reduced working hours...we do have to take our health into our hands...with soooo many differing symptoms...well done you...you have had some stress alright... No wonder you've had problems...a Rhumotologist will diagnose very quickly..if only most of us knew that way back.....stay strong and stressless if you can...being positive  is a great help too.....be blessed:-) xxx.
  • leona18728
    leona18728 caroline271

    Posted

    Hi caroline, yes I love socialising but I have almost given it up these days :-(

    I have never been a big drinker but these days even after having a small glass of wine I don't sleep well, twitch most of the night and the next day I can hardly move my whole body, and has been known to start off a kidney infection,

    I'm determine not to give up going out with friends and family, I now have a soft drink and mostly a steak or chicken with salad and a jacket no sauces which can hide foods that will upset me, ie different spices oils etc,

    I have a hearing problem which I have through lupus so I always get there early so I can sit around the middle of the table as I used to find it very isolating not being able to join in a conversation, that in it self used to make me stressed just sat there with the odd smile and nod, I spoke up once and informed everyone how this was making me feel and I didn't want to go anymore, my friends were mortified and it didn't even enter there heads, but now it's different we sometimes depending on why we're out move two paces so that everyone can talk to everyone who is out, this avoids little clicks to,

    Might be worth a try if there good friends they should feel accommodating to your needs,

    Hope this helps you a little, your not going mad or your not alone.

    Gentle hugs leona

    • caroline271
      caroline271 leona18728

      Posted

      Hi Leona, what a great idea you have regarding moving seats, it will certainly stop the little cliques and be less isolating. My friends just can't grasp it when I say that going out makes me ill. I usually leave early but make sure I'm not the first to leave! I just can't believe how much I've been twitching for 2 days now. Thank goodness for diazepam.
  • tiswas24537
    tiswas24537 caroline271

    Posted

    excatly the same for me iv spent the last 7yrs avoiding going out 

    becasue  i think i suffer enough with out adding to it

    but just like you whena throw caution to the wind and say i am going this time 

    i spend days and i do mean days recovering .and the twitching increases to 

    its bloody rotten .

    • julie43903
      julie43903 tiswas24537

      Posted

      I haven't been out for the past six months due to this. I also loved socialising but just can't sit anywhere for long enough to get comfortable. It's just too much. I can't drink alcohol anymore either. It now has a dreadful effect on me.  I just don't feel like getting into conversations. Feeling achy doesn't help :-( 
    • tiswas24537
      tiswas24537 julie43903

      Posted

      at least i am not alone , i am always on the fidget because i cant get comfortable theres always some part thats numb or hurting .

      its like iv got fleas fidget fidget . 

      and the heat to i am constantly faning myself and i don tend up enjoying it so i just stay home its less agro although very boring 

    • julie43903
      julie43903 tiswas24537

      Posted

      I'm certainly with you there. It's so much easier to make an excuse and stay at home. I've become so isolated because of this :-(
    • caroline271
      caroline271 julie43903

      Posted

      Hi Julie, people just don't realise how isolating fibro can be. There is no information regarding the effects that going out can have on us and how we avoid socialising to prevent an increase in certain symptoms. I too find I can either no longer drink alcohol, especially wine or can only have a micro glass. Also sitting for a while makes me ache and if I take my tramadol, it's like What are you taking those for? It's time for a deep sigh and count to 10! Oh well, I expect Christmas will be my next do!

      Take care, Caroline

    • julie43903
      julie43903 caroline271

      Posted

      I know Caroline. I've read so much but as you say there is little info on the illness as regards socialising. All my friends are going away for a hen weekend in about three weeks time. I've had to decline and they just don't get it. I can't drink. I have to go to bed early and my sleep pattern is awful.  I'm a misery because of pain and dread the thought of travel. One of these days i just won't be asked to go anywhere anymore.  People don't realise how debilitating this thing is and without a cure its hard to feel positive at times. I went out shopping today and even that can be hard work xx 
    • tiswas24537
      tiswas24537 julie43903

      Posted

      me to .you get on peoples nerves so you try not to keep from fidgeting then you go numb and likely to fall when you stand 

      you try to explain and then you feel like a hypercondriact 

      and people just stop listening and start rolling there eyes 

      sometimes i wish i could just go to sleep and not wake up 

      i dont want to die i jsut want all this pain aniexty and fatigue to stop i am so fed up with it . and peoples attidues to it . 

    • tiswas24537
      tiswas24537 Flowerlady

      Posted

      well its honest except for people on hear i never talk to anyone 

      because i have no friends new to the area in 2001 just not been able to make new friends not being able to work .

      and the few people iv met and said they were my friend and that they understood soon vanished 

    • Flowerlady
      Flowerlady tiswas24537

      Posted

      Hi Tis..You are still around then, thought you would be tucked up by now..

      I know the feeling, I have no friends either,and I don't work. Have not done so for the last 3 years. used to look after an elderly gent till he passed away. I have children in their mid 30's , but they don't visit; too far to travel they say. But always have enough to buy booze..

    • julie43903
      julie43903 tiswas24537

      Posted

      Oh I know all about that. I haven't worked since this happened in September and because I worked full time most of my friends were my work colleagues.  In the beginning they seemed concerned and visted but now nobody is interested. All they say is ' at least you don't have anything serious wrong with you'  !! And I see the eyes rolling when I mention how much pain I have and how uncomfortable I feel. To be honest if I have to return to work I won't see those so called friends in the same light anymore. And believe me I was a true  friend to alot of them over the years when it was needed !! 
    • tiswas24537
      tiswas24537 julie43903

      Posted

      snap i moved to yorkshire to get my son into special needs senoir school 

      iv helped people all mylife and when i need a true friend theres no one there .or there to busy ,

      nothing serious no its a right laugh aint it .bet they wouldnt swap .

      i really wished some days i had something physical like a missing leg at least people you can see it .and you can adapt to it . with this its just constant invisable symptoms that send us crazy till we believe we are going insane . and theres very little understanding or support 

      it needs to be excepted as a real painful condition and needs to be aired on tv or written into a tv script ,or some celebrity needs to come out with it . something promenent needs to be done . WE NO ONLY TO WELL ITS REAL ITS PAINFUL AND ITS EXSHUSTING AND WE NEED HELP !

    • tiswas24537
      tiswas24537 Flowerlady

      Posted

      MY KIDS ARE THE SAME , its unlikely that i am in bed before 2am mostly between 3 and 4am and then up at 9am  
    • Flowerlady
      Flowerlady tiswas24537

      Posted

      We sure do need help..Maybe a polotician will be diagnosed with it and it will sure be recognised..
    • Flowerlady
      Flowerlady tiswas24537

      Posted

      Guess we are on the same boat then. It has been unusually quiet on her today, don't you think?
    • julie43903
      julie43903 Flowerlady

      Posted

      That's so so true. I wouldn't wish this on my worst enemy but  at the same time it needs to be recognised and more research into it to hopefully get some proper treatments, tests etc so that it doesn't take as long to be diagnosed and hopefully a cure can be found. 
    • julie43903
      julie43903 tiswas24537

      Posted

      It sure is . I'm sick of it. I see some of you here have had it for years. I just don't know how you've coped. 6 months of this has been long enough for me with no let up in between x
    • christine26761
      christine26761 Flowerlady

      Posted

      Now wouldn't that be interesting..if a politician had it....we might get recognition....mmm have a lovely day Anne...be blessed ..:-) xx
    • caroline271
      caroline271 tiswas24537

      Posted

      Yes, I find that even the medical side don't appreciate how painful it can be. Strangely enough tho when I collapsed in hospital I could hear the staff discussing my medication. One person commented how painful fibro can be and others didn't know about it.
    • caroline271
      caroline271 Flowerlady

      Posted

      I'm quite lucky really, my son lives with me, he's 25 and is now realising how fibro affects me. My daughter lives a few miles away and we keep in contact either by text or we visit eachother. We were going to go shopping today but instead she came round with her baby and we spent about 5 hours chatting, making lunch and looking after the baby. He's so lovely, soft skin and flexible legs!
    • christine26761
      christine26761 caroline271

      Posted

      Isn't that unreal, how medical staff..know nothing about it..I have come across this often too...:-) xx
    • christine26761
      christine26761 caroline271

      Posted

      Such great times...nothing can take that beautiful feeling away...your blessed..so am I ..forgetting all the Fibro issues..we are still the same inside..razz
    • tiswas24537
      tiswas24537 julie43903

      Posted

      you sort of get used to it , if you didnt you would go crazy 

      it dosent get any easier and when you get new symptoms popping up and other problems it can make you very stressed 

    • Angel51
      Angel51 julie43903

      Posted

      Hey Julie just came across your post.... and wanted to let you know there are lots of trials and investigations going on for FMS....you  can google almost anything these days and I've read through some of them...quite laborious though. I think the reason for long time to diagnose is because FM mimics many of the symptoms of other autoimmune illnesses and FM has been known by other names such as Fibrositis, ME and more recently Central Sensitisation Syndrome, well thats what my Rheumatologist put on my report to GP, although in consultation he told me I had FM and chronic fatigue syndrome.

      Wishing you and all fellow sufferers an easy day

      Angie

    • julie43903
      julie43903 Angel51

      Posted

      Cheers for that Angel. Is that the rheumatologist you saw at Guys? Was that his report? I'm awaiting outcomes of various tests now but if all are negative I will make an appointment to see that specialist in London as will want to get a report from an expert so to speak as regards where I lie with my career.  The weather has turned out great this afternoon. Just been for a short walk in the fresh air.. Hope you have a lovely day x
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