Really wish people understood!

I know exactly how you feel. In fact my partner walked out on me just before Xmas shortly after my diagnosis. He said I had become a totally different person although I looked ' fine' on the outside. He said he couldn't cope with the fact I had become inactive and ' not much get up and go' anymore. He also said that he felt constrained by my lack of financial contribution due to the fact i can't work at the moment. It's good to have support around you and I really miss that but hey ho, such is life. This thing has certainly changed my life in more ways than one x

Hello Marc, I have learnt just not to say anything now, they see you the person who they love and are frustrated for you , nobody likes to see there loved ones in pain.But i get you, my husband has this nack of p*****g me off, he will say " whats up with you ?" if i am walking slow or just quiet. I think how many times do I have to keep repeating myself. But hey I dont get down , you just need to sit down together , nice food and a cheeky drinkypoo and just calmly talk about how you feel and get his thoughts , stress certainly wont help you. Nothing is solved from running away.you find out who your friends are , slowly i feel like i am forgotten about , but then they have lives and there own stuff going on. My mum checks on me now and again also my older brother . I just live one day at a time , do what i can when i can , and rest when i need to. I used to feel a sense of guilt but now i think B******s to it. I am in pain today but can cope with it, so have gone for a little walk and made some meals because tommorow who knows. hugs and if it helps let it all out on here , you are not alone in this we all know how you feel.

I so sympathise Marc.  I'm very fed up too with how awful I look and feel and it so doesn't help when I see friends/family and they say 'oh dear, you look tired, are you having too many late nights?' etc etc.  My partner tries to be understanding and to be honest is very good about me being below par a lot of the time but still doesn't understand when I'm weary with the pain or when I cant even bear to be hugged because everything hurts so much.  I know I'm unreasonably grumpy and short tempered a lot of the time - being in constant discomfort just wears you down and its difficult not to let it make me so miserable to be with, I feel guilty about that and while he doesn't moan at me, I just dont like being such a negative person as a result.  I must be very hard to live with.    I do sometimes think it would be easier if I lived alone and nobody had to put up with me being a misery and complaining about the pain all the time but then I find so many things difficult to do anymore, I would be lost without someone here to help with certain tasks - that again makes me feel guilty - vicious circle eh.  You're right too about stress making the pain worse, if only others could spend a day in our shoes eh!  Fibro is an 'invisible' condition - if we were suffering from a more recognised disease or cancer etc., everyone is sympathetic and patient but to a non sufferer, they just cant understand fibro has so many symptoms and effects, not just the pain but the fatigue and the fuzzy thinking etc., it's so hard to get understanding and above all else patience.

My family are the same. Husband is great most of the time. On Sunday I tried to do some house work not very well mind you but I tried. About four ish I said I had had enough needed to be propped up in bed but I would fold some washing so I felt like I was still helping. With in five mins my husband was shouting at the children they were shouting at him and he then started at me cos I was sat up in bed! He knew why I was there but still went on. For the next hour I tried to ignore them all, even the dog had had enough and came and lead by me next to the bed!!! I then seemed to get ORDERED down stairs for tea, by now I was in full all out pain and needed some TLC, did I get it NO I did not. I was told if I didn't get downstairs then no tea! I needed to eat to take more painkillers so I didn't have a choice! It took me 10 mins to get down my stairs!! His excuse was he needed help with gravey and he didn't want me to get into the habit of eating in bed. I could of tipped the jug of gravey right over his head, just didn't have the strength!!! I eat in total silence couldn't eat much but enough to take painkillers. I then slowly went back upstairs and just shut the door. Couple if hours passed before any came to see if I was ok, hubby said sorry but he just didn't want me to give in to the pain. Hubby has never dealt with pain like this, twisted ankle headache now and again but that's it. I wanted to scream at him throw something but what was the point. It makes you feel very isolated as you all know. At least everyone on here understands, keep your chin up and do your best. 

Poor you...really feeling for you...soo much stress makes everything worse...that is just terrible for you Marc...I am very very blessed, when reading do e of the comments past and present..I've had both Sojrens Sydndrome and Fibromyalgia for over 22 years now...the symptoms do lessen but there are flare ups...however the stress that your under us sooo wrong and hurting not helping at all..maybe your partner needs to read some info on the constant pain etc or even visit your doctor to see hiw real this is..my husband is an angel..dies everything for me-such a carer.  However my extended family really didn't know what it was all about, until they actually saw what I could and couldn't do...I live in another state to my family., but friends and my immediate family- daughters & husbands, they are really good.  It's an awful thing to say, but sometimes our family just don't want to accept that we are not the same as we were and they just can't fix it..a lot of the time it's about them and that they feel that they can't take away your pain etc....friends seem so different, this blog is just amazing at encouraging people..so stay connected, do hooe things pan out well for you..- xx

Stress free is the key to living with Fibro...you need to get rid of that stress for sure and start thinking of you...you are more than worth it....be strong..be blessed.:-) xx

i'm 19 years old, i havent been diagnosed with fibromyalgia but it has been suggested by him and a friend that has fibro. i have been in pain for four years now and on many days i am in tears as i hate taking tablets repeatedly. my family ignore me when i complain and discourage that anything is wrong with me. the support from my boyfriend is the only thing that keeps me sane!