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Hi, I am new to this site but would be interested to see if anyone else experiences similar symptoms to mine!
I was diagnosed 15 months ago and was put on Cabrimazole for a year. I have now been off the medication for 3 months and am seeing the endocrinologist tomorrow.
My blood results say I am now within the "normal range" but my journey here has been one that the endo says can't happer!! Every 2 weeks I have episodes lasting 4 days of having ALL the symptoms as they first presented-aches, fidgeting, shaking hands, sweats, nightmares and inability to sleep for more than 4 hours despite desperate tiredness, pounding heart, etc etc. The rest of the 2 weeks I feel well!!
It is so debilitating and depressing and rather annoying not to be believed from someone who sees patients with hyperthyroidism daily.
Any responses gratefully received!!
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brightonbreeze hilary61055
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I am only recently diagnoised but I have read a bit about the disease and thyroid. You may well know everything I am about to say. In the book your thyroid and how t jeep it health. Dr durrant talks about taking you base temperature and pulse first thing in the morning normal pulse between 65- 75 temp around 37oC. Above or below indicate hyper or hypo. He suggests keeping a track of it along with symptoms. Then go to dr and show them your results. If still no joy I would go to see a functional medical Dr but I would really recommend that now actually. I would also reccomended the book. The Immune System Recovery Plan. How you get it sorted.
hilary61055 brightonbreeze
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acd hilary61055
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I've had Graves since 2007 & am still struggling with it! I believe most doctors & endocrinologists don't really care about getting to the bottom of 'why' you are ill & they will only ever treat your symptoms. You are just a number & they want to get you off their books as fast as they can, its rather like being on a conveyor belt !
My advice to anyone is to do as much research as possible so that you gain a full understanding of exactly what is going on in your body, it will empower you when you talk to the endos.
I am trying to go down an alternative route, have not seen great results so far but I still believe this is the right thing to do, I have very little faith in the medical profession now given my experiences.
Remember it is not your thyroid that is not functioning properly it is your immune system so until you find a way to calm the immune system then I believe you may continue to have issues perhaps with other AI conditions, they say that once you get one AI disease it is not uncommon to get another. This happened to me & I now have rheumatoid arthritis, I'm not saying this is going to happen to you & I certainly would not wish it on anyone.
I'm still on my journey, it looks like it will be a long road ahead too but when you consider all the years of just eating/drinking whatever you like and not giving much thought to nutrition then it is not a surprise that things have not improved quickly.
I have recently been made aware of a little known drug Low Dose Naltrexone which appears to be being used very successfully to treat all AI conditions as it calms the immune system down very quickly. I have a friend in USA who has RA & who has only been using this for a week and she has seen massive improvement already, all swelling has gone & she has been able to go for walks which previously was not possible. So I am researching this currently, whilst is does not fit with my natural treatment I believe it may help in the short term to calm everything down.
Good luck in your journey & keep us posted with your progress.
Ann
hilary61055 acd
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acd hilary61055
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- Food Matters
- Hungry for Change
hilary61055 acd
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linda187 hilary61055
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hilary61055 linda187
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Sue1247 hilary61055
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linda187 Sue1247
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hilary61055 Sue1247
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brightonbreeze hilary61055
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brightonbreeze hilary61055
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I wish I had done this last year. I don't think I would have this disease if I had.
Good luck
brightonbreeze hilary61055
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I am typing on my phone and it is accidently sending it deleting so sorry for irratic posts.
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