REZUM--HAVE YOU HAD THIS DONE???????

The great thing about this forum is people sharing actual experience. There was an article in yesterday's (or recent) WSJ about Rezume. Reading that it sounds like a 1-2-3 procedure with almost no recovery time, nearly immediate results, and few side effects.

Still sounds like PAE is better option for many.

Trust me, I statred this forum about REZUM. It's not a 1-2-3 procedure. I had the rezum 12/15/16 and still looking for the results.  I had a very diffulcult time after surgery.  Lots of complucations with the cath coming in and out after surgery.  Plus I still get up 2 or 3 times a night.  So far I'm not HAPPY with having the rezum surgery......I can only pee a lot better so far!

Hi Mike,

Seems like Mike is an unlucky name for BPH sufferers :-( Why do you say PAE sounds a better option ?

Regards,

Michael

Leon sorry to hear that - I have friends in early 60s who do not have BPH problems and still get up at least 3 times a night. It depends on your bladder. You say you are still looking for results, but on the other hand you can pee "a lot better". The whole point of any of these surgeries correct me if i am wrong is to enable us to pee better by removing the obstruction.

As for bladder I was told by Urologist that depending on age it can regain some tone but it can take at least 6 months after obstruction removed.

I don't know all the details but if I were you I'd be happy I can pee better and have no retro. You don't have to worry that you will go into retention, you don't have to self cath.

I'm with you on it isn't just simple 1,2,3 as I said mine was done 10/15 2016 so I am a couple of month further along than you are. Yes it took me about 1 month before I stopped having blood in my pee. and some time my flow is good and others not so much, I think the Dr. that does it has a lot to do with how well it turns out. I still have not gotten an answer to my question. Does anyone else pass what looks like tiny bits of tisue some time when they pee? Oterwise I am satisfied with Dr. Z. who did mine in St Petersburg Fl.I usually get up ones ,but I have to take a med 1 hour before any food or drink so I just go then and if I'm lucky go back to sleep. To those of you that (have actually had it done) who say it was a WALK IN THE PARK, WELL I AM HAPPY FOR YOU, but my Dr. told me it might have gone very differently.

For those of you that have not had it done and are going to , please ask you Dr. for names of people he has treated of at least check around .the internet is there for you.

 

Leon you may have already heard this but I was getting up no less than five times a night regularly (I was also having bhp problems) until I did a sleep study and they put me on a cpap machine. The getting up at night stopped immediately! It was a dramatic help to my life.

I also had the Rezum procedure last Wednesday and am so far very happy with the improvements. 

Maybe my case is unusual but I had Rezum last Wednesday and now, less that a week later, I can already say I am happy with the improvements. It was painful but at least of short duration (4 episodes of 9 seconds each). I've passed a little blood but have not seen any for a couple days. Urination was somewhat painful for a few days afterward but no pain now.

Very different results can happen at the same docs hand. Both the skill of the doctor (although my doc says this is a very easy procudre to perform) and the condition of the patient effect outcomes. In my case, it turns out I have some bladder issues (underactive bladder) that I wasn't aware of which kept my results from being ideal, but it was still well worth it to me. I also has a long slog self cathing (close to 3 weeks) and wasn't really feeling confident for more like 6.

But I don't look for bathrooms anymore when I go out and never worry that if I wait to long I'll lock up and have trouble peeing.

 

WSJ had a "product " to sell

Good point as I look back on my years I remember even as a child I had to go  a lot,might not have helped that in the 5th grade I fell a straddle of a 2 inch pipe with 6 inches more highth than my legs could reach. Ouch! 

One other thing that might affect mine is that I give myself testosterone injections. and that seems to affect my flow for 2 or 3 day a week. Good luck to us all 

Good point

Good evening al.  Withl the men that have had the Rezum procedure over the last 60 month's how many of you guy's ended up with retro .  They say 5% butthink it more like 15%  Stay safe and keep healing  Ken  

That's 6 month's hand are to fast  Later all  Ken

Kenneth

I keep seeing the word retro, but I don't know what that means. Please tell me what retro is?

 

 Good evening Melvin.  It retro ejaculation.  When they start cut away at the prostate they can cause you retro ejaculation.  It is when you have nothing come out of the penis when you have a orgasm That if you can have one.  9 out of 10 surgery will cause that.  Take care  Ken 

OK Thanks for the info

Nope don't have that problem 

I had the tiny bits of tissue from a different procedure (FLA), it's probably the tissue they destroyed by the steam injection, it takes time for the body to flush it out. Do you still have that?

Yes, but it doesn't happen often. The thing that bothers me is that some time my flow is good and others it is a trickle.

That points to a bladder issue. Prostates don't expand and contract, so if there's that much variability to your flow, its probably a partially functioning or underactive bladder. Give it time, often that improves - mine did, Not all the way but enough that I'm really glad I had Rezum done

My thinking is that with the tissue issue(so to speek) maybe as the tissue is sluffing off it partly blocks my ureithra? I don't know?

Well this just keeps getting beter and better,As time has gone by I have been having more and more trouble peeing. Went to Dr and had a uerodinamic test done and he informed me that my bladder is parolized. yea for me now after all this crap I get to cath myself 3 times a day,because I got rezum to make it easier for me to pee, well to say the least I am p*ssed

 

Did you have urodynamic testing done prior to your REZUM or just after. If the latter, your doc has done things a*ss backwards! I'm assuming by "paralized" you mean it is stretched, i.e. atonic, flaccid and not that you have nerve damage?

 Looking ahead, as long as you are doing self cathing (CIC) you might make the best of it and do it correctly, which unfortunately often isn't the way the docs instruct. You should keep a void volume at least in the beginning. Try and adjust the frequency of CIC so that your total bladder volume (cath volume and natural void volume just preceding it) are never over 400ml. This help decompress the bladder and keep it from streching any more. And, if you don't have nerve damage, it may even be able o rehab the bladder to the extent that you will eventually either have to cath less or even get off the catheters completely, something I was able to do after cathing for close to 3 years. A lot more info on CIC in the self cath threads.

Jim

Melvin  sorry for the problem.  Listen to Jim  he know what he's talking about  Ken

OldB- Are you aware or have you heard of a situation where Rezum just did not work, even after 4,5,6 mos. ?

Yes, Rezum can fail, as can any of the procedures. Someone posted about a failure because it didn't shrink his median lobe - that's one possible source of failure - it doesn't shrink the prostate as intended. The other, which sounds more like your issue, is that the underlying issue was something else - in this case your bladder and Rezum was never going to fix that.

If at times, your flow is good, then Rezum probably did what its meant to do - Shrink your prostate. But if prostate size wasn't your main issue, it won't address it. Most probably, you would have had the bladder issues you have now whether you had Rezum or not. 7+ months later, Rezum has long since passed as a factor.

Some advice;

1) Listen to JimJames about CiC. He knows more about it than most urologists and his advice is most likely WAY better than you'll get from your doc.

2) Find the best PT for pelvic floor issues in the Bay area. There are probably some good ones but you'll have to do some research. There are biofeedback tests they can do and excecises they can show you and the combination should help at least some. If your bladder isn't totally dead (and it probably isn't based on the fact that its functioned at least some until recently) CiC, biofeedback and excercises may well get you back to something close to normal function. They can also check and see if your muscles are in spasm a and massage them if they are. That can happen after Rezum and sometimes not resolve without help. Take the time to find the right PT - they might well save your life.

Til then, get those coloplast speedicaths. They make portable ones that are kinda short - see if they are long enough to get the job done for you - if so, it discretion is much easier to accomplish. No one has to know if you can find a stall. If they aren't the single use ones are bigger and you'll have to do a bit more work to keep it to yourself. A briefcase or backpack will do the trick.

The good news is that bladders don't usually die without a trigger in a matter of a couple of months so yours probably has some life in it. However much your prostate size was contributing to your issues, that problem is likely gone. Biofeedback works right away, the excercises take a couple of months and CiC will take the pressure off and hopefully let your bladder rest and return to normal function. I'm no doc, but I'd guess 3-6 months if you do what JimJames and I suggest. Probably not what you wanted to hear, but much better than forever. Good luck, keep us posted and know that we're all here to help. And I'll add you to my prayers.

I suppose the results of REZUM are different patient to patient. The procedure was the most pain I could ever imagine. It has been about a month since the procedure. My stream is amazingly strong. I am 66 and the stream is much like that I recall as a young adult. Only problem with intercourse is a mild burning which quickly dissipated. I still on occasion produce a bloody discharge but more often then not, it is relatively clear. I go infrequently and now am sleeping through the night.

I had REZUM done 12/15/16

I feel that YES I have a stronger stream, but thats it for me.......

I still get up three time a nigh, and can't sleep after that.

So as for me I'm NOT happy with having the REZUM................

All the recovery for me, it wasn't worth it so far..

What size was your prostate before you had it

And how long did your have that catheter afterwards ? did doc say why you were still getting up at night and would you do it all over again ? And if no why not !

Did you have and other issues other than bph

The doctor that done the procedure ! How many had he done