REZUM--HAVE YOU HAD THIS DONE???????
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I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM". The company that makes the system is called "NXThera, Inc". You can google them up and lots of stuff comes up. I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now. I called his nurse and she said he would call me back and answer my questions on monday. As you guys probably know Doctors are not very good at returning calls but we'll see what happens. Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them. It works with high pressure "steam" that at a certain degree will kill the prostate tissue. My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????
35 likes, 5645 replies
WilliamUSA ChuckP
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Yes, I just had this procedure 5/26/2017. I'll post my experience so far and will update periodically. Hope this helps someone.
Background: 61 years old, 54cm3 prostate size, large median lobe. Urination difficulty for at least past decade, getting steadily worse. Had a 1.5cm bladder stone removed February20, 2017. PVR pre-Rezum was 50 to 150ml, IPP 23x32mm. Felt that something had to be done to prevent reoccurrence. Selected Rezum in an attempt to improve urine flow while maintaining complete sexual functionality.
Day 1 – Rezum procedure done around noon on 5/26/2017 at Chesapeake Urology, Towson, Maryland.
Given an antibiotic pill (Cipro) prior to procedure. Also given another Cipro pill to take in 12 hours. Anesthetic gel applied to numb urethra.
Laid back on table, naked from the waist down, with feet in stirrups.
Local anesthetic used to block prostrate pain. This allowed getting the Rezum procedure being awake; no need for general anesthesia. An ultrasound unit was inserted into anus to guide the doctor to the correct prostate location to inject anesthetic. Used a long needle inserted through urethra. Waited about 15 minutes for anesthetic to take effect before the Rezum procedure started.
Rezum device inserted through urethra to prostate. Doctor treated seven locations: 3 on left, 3 on right, 1 in central lobe. Each treatment lasted 9 seconds. When each treatment started, the machine beeped for each second. I was told that any pain felt would be greatest toward the end of a cycle. Of the seven treatments, pain was only significant on two or three. Squeezed a small plastic urine specimen bottle to help mitigate pain; this really helped. The device positioning was as annoying/painful/disconcerting as the actual Rezum steam injections.
Device was inserted for less than 5 minutes total.
After the procedure, I stood and tried to pee into a hand held urinal as a test to see if catheterization was needed. After several minutes, I gave up and accepted the fact that I would have to have a catheter. Having the procedure done being awake was an attempt to avoid this 50/50 outcome. I was taught (hands-on) how to perform a self catheterization. Blood and urine passed, and it felt good. Happy that a Foley catheter was not used (I had a choice) since the Foley was the most annoying aspect of the bladder stone removal procedure.
After getting dressed, had a follow-up meeting with doctor. Prescription for Motrin (600mg, 3x per day) sent to pharmacy. One month follow-up appointment made. From appointment time to leaving the office was about 1.5 hours.
Headed home, 4 hour drive. (Ended up taking about 7 hours, wife and daughter wanted to shop.) I did not drive, which was good. Stopped to use bathroom maybe four times. Very little urine was passing, along with some blood. Unexpectedly, also had to move bowels and had lots of blood from there, too. Must have been from ultrasound in anus. Did not want to self-cath on the road and was fortunate to be able to make it home before needing to do this. My self-cath job was not as good as done in the office with their help, but got the job done.
Ate and took first Motrin about 8:00pm.
Took second Cipro at 11:30pm, went to bed. Overall, felt pretty good. Just like I caught a stray foot in a soccer game.
Was up every two hours or so overnight. Was able to urinate enough to get back to sleep. Did not need to do a second self-cath yet.
Day 2
Up at 6:00am, feeling surprisingly good. Ate breakfast, took Motrin.
Spent the day lounging and trying to drink more water than usual. Urination improved throughout the day, not yet to pre-procedure levels. First few times experienced burning near tip of penis, but this got better pretty rapidly. No blood from any source since late yesterday.
Experience urgent need to go several time throughout the day.
By day’s end, felt that I was empting more than I had before procedure.
Day 3
Up at 6:00am, just like yesterday. Feel wonderful. No pain, no soreness. Still got up every 2 hours or so overnight; no big deal.
Flow got better throughout day. Still had some urgency. Visited in-laws, did some grocery shopping. Made sure I always had quick access to a bathroom, but didn’t feel the need to dash off to one.
Feeling constipated, ate some prunes.
Day 4 (Monday, 5/29)
Up at 6:00am, just like yesterday. Feeling normal.
Drinking more water than usual to stimulate flow. Peeing pretty freely, almost as well as before procedure.
After breakfast, struggled to move bowels with no success. Finally succeeded about 9:00am.
Rest of the day went well.
kenneth1955 WilliamUSA
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uncklefester WilliamUSA
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Congrsts Sounds like you're doing well William. So you only had to self cath the first day?
WilliamUSA uncklefester
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Yes, I feel really blessed. I only had to self cath once, right after I got home. I can get enough unirne out after this by sitting on the toilet (I've been mostly peeing this way for years) and adjusting my posture to encourage it to flow. It's more effort now than it used to be, but it avoids having to use the catheter. I think the Ibuprophen I'm taking is keeping the swelling at bay.
As I understand the Rezum process, I hope that as the dead prostate cells are removed by my body in the next few weeks, my flow will improve. I may even get to go standing up again.
WilliamUSA kenneth1955
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Thanks, Ken. Sounds like good advice. My summary paper said to wait 3 days, but 3 weeks seems like a better target. Besides, it's always better if you wait longer.
kenneth1955 WilliamUSA
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kenneth1955 WilliamUSA
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WilliamUSA
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This is my two week Rezum procedure update.
First, I'd like to thank everyone that has shared their prostate related experiences. I was only aware of this one Rezum thread before my procedure. Since then, I discovered a wealth of information in the other prostate forum posts. Keep sharing, guys.
One other relavent thing about my physical profie to note that I picked up in other posts: I am 5'8", 147lbs, BMI of 22.4. Hope this helps you correlate my experience to what you may encounter.
Over the past two weeks my sleep pattern has been pretty poor. Sometimes I'd be up every hour or so to urinate just a few drops to be able to get back to sleep. Every two hours was probably the average time I had to get up; sometimes it was less than an hour. Last night, the first time I awoke was 3 hours, the longest I've been able to sleep in one stretch. Progress!
Starting on day 6 through yesterday, I woke with a (light) bloody discharge in my shorts. From about a half dollar in size to 3 inches diameter. There was no pain and the discharge didn't wake me. There was no discharge this morning, day 14. Maybe these are the evil extra prostate cells leaving my body. One can only hope.
On days 7 and 8, I had a dull ache in my left testicle. Not too bad, gone on day 9.
Urination frequency and urgency was an issue most days. Has improved last two days; was out about 3 hours this morning without having to go. Some days have definitely been more of a challenge than others. There was a funny feeling with urination within the penis (not real pain, but almost pain) since the procedure. This decreased day by day and is now about gone.
There has been slight improvement in urination to this point. I'm looking forward to this improving at least two fold. One positive thing that I have noticed is that my urine smell is now "normal." Before the procedure, the smell was very strong, like it was concentrated. Maybe this is what caused my bladder stone that precipitated my seeking a solution to my urination problems.
I have my one month followup with my uroligist on 6/27. I'll update my status then.
mike36864 WilliamUSA
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WilliamUSA
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*IPSS (just considering the past few days) was 13 versus 23 before procedure.
*PVR was 0 ml versus 50 and 150ml before procedure. Note: I had to work a bit to achieve this by “pumping” the bladder (not straining) to get as much out as I could. It wasn’t free flowing until the end, but at least I could empty my bladder.
*I told my urologist that I’ve been experiencing minor pain toward the tip of my penis when urinating for the past five days. He said that my urine did not show any signs of infection and that the pain could just be part of the healing process. This issue was not pursued further.
My urologist was happy with my urination progress to date and so am I. The next follow-up appointment is at the end of September.
Other things of interest to forum members that I didn’t discuss with my doctor follow.
On days 6 through 13, I awoke with some bloody discharge in my underwear. It usually wasn’t very much and it didn’t wake me when it occurred. The discharge stopped and then came back on days 21 through 24. From what I read about this procedure, this seemed so normal to me that I even forgot to mention it to the doctor.
Frequency and urgency were common during the first two weeks. It’s amazing how external cues cause you to want to urinate. (Believe me, day 6 is probably too early to pressure wash the driveway.) On day 14, there was a marked improvement in both frequency and urgency. It would be four hours before I’d have to go, and then I wasn’t in a rush. There was a day or two of regression during the last two weeks when urgency returned a bit, but not as bad as during the first two weeks.
We waited exactly three weeks before having sex. I wanted to wait as long as possible to maximize prostate healing time while allowing enough time before my appointment in case there were any issues. (My instructions were to wait at least three days after Rezum before engaging in sexual activity, but I had absolutely no interest after just three days. It was at least ten before I really considered it.) The first two times were disappointing; I’d say the experience was about 25% of what it was before Rezum. The third and fourth times were on the order of 70%, and the last effort was at least 90%. In all cases, the ejaculate was brownish, getting lighter each successive time. The amount of ejaculate seemed to be a little less than usual.
In closing, I’d like to correct I misstatement made in my first post. I said the prostate local anesthetic was applied by a long needle through the urethra, but the doctor said today that the needle was actually inserted through the anus. I don’t know how the needle could be inserted there while the ultrasound unit was up there, too, and I don’t really want to think about it. I’ll just chalk it up to one of the miracles of modern medicine.
bix80131 ChuckP
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My doctor reccommened this, but a few weeks earlier he had reccommened UroLift, so I would like to hear people's experiences with these two procedures. I have avoided anykind of prostate procedures for years. Have been taking flo max for years, but lately nocturnal visits were getting harder. I've started the Keeger exercises for the prostate again on a more cosistent basis, and the flow seems to be getting stronger. I would like to get the problem taken care of, but I have heard so many conflicting stories on the success rate of various procedures , and I have had horib le experiences wearing a catheter, which I have had to do on various occassions, that Iwould like to avoid that, but all these procedures will require wearing one for a while. I would endure it it the success rate was in the 75% RANGE, BUT none of the information on these various procedures tell you the success rate, so I'd like to hear other people's experiences, good or bad.
kenneth1955 bix80131
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kenneth1955
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PS I don't like catheter ether but it is put in when your asleep and coming out is easy Ken
oldbuzzard bix80131
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Whatever procedure you do or don't have, you should never have to wear a catheter again. Have your urologist show you how to self cath. Its WAY better, doesn't hurt and you can live a normal life doing it. There are threads on it on this site - search for JImJames who is an expert and has detailed everything - from what brand to use and how to do it.
Rezum and Urolift have better than a 75% success rate, but only if the prostate is your issue. Many docs do procedures on people without properly diagnosing them. AN enlarged prostate is the most likely, but not the only reason for pee difficulty. It can be your bladder too, or a combination. No prostate procedure will help with any bladder issue.
IDeally, you should have bladder dynamics testing to find out how much you retain and how well your bladder works. If much, or all of your problem is your prostate, either of these procedures had a better than 75% success rate. You should discuss which one has the best chance of the best results with your doc and opt for that one, if your prostate is indeed the problem.
kenneth1955 oldbuzzard
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Thank you for that. THere has been alot of men getting rushed into prostate surgery and it not the prostate that is the problem. Make sure test are done for the best resluts. A bad thing withso me urologist is if they can find or see a problem They assuse its' the prostate and want to start cutting away. Do the research and get as second opioion. Take care Ken
leon67555 bix80131
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I had the REZUM surgery done 12/15/16. Yes had to wear a cath and had it taken out and put back in. AWFUL! But for me the only success I have had is I can pee better, BUT can't sleep any more.. That was the reason for the surgery, getting up three times at night as really effected my life and still having to go all the time. Not sure why Dr said so may awesome things about the rezum surgery. I'm still not there at 58 and very unhappy having it done. I had a lot of pain and the WORST discomfont after the surgery. No I would't reccomd it.............
Wr4rr leon67555
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Leon,
I did have success with the procedure. Yet, I see in the blog many, like you, have not had favorable results. I know in my case, as the procedure was ongoing, there was a technical consultant providing added direction to my urologist. It makes me think, the procedure has specific criteria in the steaming process that are critical and if not achieved, result in less than optimum results. In my case, I had a lot of bloody mucus discharges over a 3 week period. Could it be in your situation, they simply did not pass but instead combined and formed another obstruction? I know the pain of the procedure is immense, but a I wonder if a second attempt is possible and would benefit you? I only know that I am back to a routine equal to when I was in my late 20's, Good luck!
WilliamUSA leon67555
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Wow, that doesn't sound good, Leon. If I had read your post before getting Rezum done on 5/26/17, I might have reconsidered; maybe even going the CIC route (which I learned about in the prostate forum after the fact). As you can see by my entries in this thread, though, I haven't had nearly as rough of time with Rezum as you have experienced. At least not thus far.
It seems to me that there are so many variables in these prostate procedures and in our bodies that ultimate individual results can't be predicted or guaranteed. I get the impression that Rezum is as much art as science. The only constant is that most men will eventually get to the point when something needs to be done to deal with unination issues.
I hope your sleep gets better going forward.
Bill
jimjames leon67555
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Leon and William,
It's a misconception, often fostered by urologists, that a successful treatment for bph/luts will always cure nocturia (night time urination). The two can be mutually exclusive. You can have nocturia with and without bph/luts. Sometimes a successful prostate reduction surgery or procedure will cure nocturia, sometimes not. It has to do with the cause of your nocturia.
If the nocturia is being caused primarily by incomplete bladder emptying, then a succesful surgery or procedure can cure the nocturia. But if it's being caused by excessive kidney urine output in the evening (over 40%) then a surgery or procedure isn't going to help much.
Jim
oldbuzzard jimjames
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jimjames oldbuzzard
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Yes, overactive bladder as well. Or both. If you want, you could find out which it is by a careful void log as long as you are pretty certain of your PVR. Of course a catheter (CIC) or a home bladder scanner could pin it down exactly.
The problem is that too many uro's, instead of taking the time to investigate, simply lump everything into "BPH" and then recommend whatever procedure it is that they are trained on.
It's a treadmill that unfortunately too many men end up on, but there is a way off and that is taking charge of your own diagnosis and treatment.
Jim
JerseyUrology bix80131
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The lasting effects are uncertain, as it has existed for fewer than 5 years at this point.
JerseyUrology WilliamUSA
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I generally counsel patients that the first month is the worst;
after the steam is applied to the prostate, swelling occurs, which makes the symptoms worse. Because of this, we place a catheter for 1-3 days, or teach patients clean intermittent catheterization, or place a urethral stent. After 1-2 weeks, the swelling largely resolves, and the prostate begins to shrink. By about 3 months most men have a significant opening, and by 6-12 months, they will have maximal improvement. Generally speaking, if you are voiding 7-10 days after the procedure, you are "out of the woods".
kenneth1955 JerseyUrology
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