REZUM--HAVE YOU HAD THIS DONE???????
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I had a nice conversation today with the President of the "Urology Times". He was telling me that there is a "New Procedure" that has been approved called the "REZUM SYSTEM". The company that makes the system is called "NXThera, Inc". You can google them up and lots of stuff comes up. I called them for a referral and they gave me a Doctor in Minnepolis that has done it over 50 times now. I called his nurse and she said he would call me back and answer my questions on monday. As you guys probably know Doctors are not very good at returning calls but we'll see what happens. Iam not very good at explaining how the procedure works but basically they take the device and put it up the uretha and vaporize the prostate cells which kills them. It works with high pressure "steam" that at a certain degree will kill the prostate tissue. My question for you guys is there anybody out there that has had it done to them and how are you getting along and are there "side effects", etc etc?????
35 likes, 5645 replies
hbv2020 ChuckP
Posted
kenneth1955 hbv2020
Posted
THERE is information on aquablation on the internet 3 study's It may be better in a way but it is just another way of doing a TURP. Information is hard to understand Ken
JCL123 ChuckP
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So it has now been nearly 30 days since I had the Rezum procedure performed (August 1st). The blood or red colored urine at start has finally stopped. I am noticing a better stream when I urinate, but it is a bit painful and it does take a while to get started. I have now been 10 days without any Rapiflo but, I still do not ejaculate, so I can assume I now have RE. Although my erections are fine - same as before procedure, sex does not feel as good and ejaculation is uncomfortable not to mention the psychological part of no semen anymore. At this time in the healing process I cannot say I am happy with results and I am definitely not happy about the RE. I know any say wait 90 days to see full benefit so i am hopeful. Some days especially in the late evening early mornings (wake up pee) is like I am back to a full restriction. barely enough pressure to get something to come out. I do not understand the back and forth. One pee is good one is ok and one is poor. You think its getting better then its not. You would think that after 30 days things would just be better and get even better not back and forth.
I will answer any question you may have or wait and I will post an update at 5 weeks.
mike588 JCL123
Posted
I did not have Rezum (I had FLA) but the same should apply - the surgeon told me to expect ups and downs for the first few months. I think you should go back to Rapaflo or maybe better Tamsulosin since it's much cheaper, and give your prostate a chance to heal and not ut too much stress on the bladder. Tamsulosin does not always cause RE.
Regarding RE, I have a friend who had Green Light surgery, he thought he had RE but said normal ejaculations came back after a while. He said he masturbated a lot with the theory that it would force it to come back, I don't know if that is just a coincidence, I can;t think of a reason that would help. If I remember someone else who had Rezum reported that normal ejaculations came back eventually, so don't give up.
oldbuzzard JCL123
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As for RE - I had complete RE at the 4 week point and it got slowly better. Not like before, but not dry either. Your condition will probably be markedly better in a month.
kenneth1955 JCL123
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JCL123 ChuckP
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It has now been 45 days since I had the Rezum procedure done. Please see previous posts regarding experience up to this update.
As of now I would not have this done again. I would have gone another route. This has been a horrible experience. I started having problems again over the weekend. I had to stop the Rapaflo as it was causing me breathing issues. I thought I had a sinus infection, but it was asthma type symptoms caused by the Rapaflo and why should I even need Rapaflo to pee after 30 days? My flow sucks I have a split stream it hurts like hell when I pee and I have this feeling like a needle is stuck in my ass up high and it shoots pain down through and into my penis when I pee. It feels like a rubber band is wrapped around the head of my penis when I pee. At 45 days this is b******t.
If you have had a good experience with Rezum I am happy you found something that worked, but this o wait 90 days crap is b******t. I improved at weeks 3 through 4 and now I am back to having problems? Tells me this procedure is not working it was just the Rapaflo. I had to stop it because of the asthma symptoms and it basically made me fall asleep.
Don't think I will post anymore updates at this point I don't see any benefits from the procedure. At the half way mark to 90 days something should have been better by now not worse.
Good luck with your journey on this...
Moderator comment: I have edited this post due to the swearing. These are open forums so as per the T&Cs please do not use offensive language in posts otherwise they may be deleted.
oldbuzzard JCL123
Posted
A couple of things:
1) It sounds as though you might have a UTI - all of your symptoms could be explained by that. If you haven't been checked for one, I would do so ASAP. Usually they resolve within a couple of days with an antibiotic - but they have to culture it, so its a few days til they get the results back.
2) Rezum doesn't START working for 30 days and most of the benefits come between 6-12 weeks. I couldn't pee better than when I went in for 6 weeks but it got much better.
You'll probably be much better soon - but check on the UTI - it could be your entire problem
ty74934 JCL123
Posted
I did not know the reason I was bleeding badly for days, it hurt to pee for days and weeks ,I was given Rapaflo ,that plugged up my nasal cavity and I could not breath so I stop taking it..
I figured I must have a UTI so I ask for medication for that. My Doctor said your the only one that is having this type of difficulty weeks after the procedure.
We are all built different heal at different rates also some of are bodies do not like being prone with anything. I was saying to myself why did I do this surgery it was the worse.I even went out looking for a new Doctor to see if the last one did something wrong. Still after three months i had issues..I just well I guess i have to live with this.Now after 6 months I have no issues ,I sleep all night I do not have to get up to go to the rest room.NO PAIN AT ALL..I can go half the day without going to the bathroom..
After the surgery about 2 weeks I would wake up like a 17 year old with an erection and still do in the morning...( I would say im alive im alive)
My body just took longer to recover from the surgery, but looking back now from where I was and then the rewards are great now as they say no pain no gain so to speak..My flow is good,I empty my bladder ,as before I would have to stand for 5 minutes it seem waiting to see am I empty.. My problems did go away for a moment but came back like full force but I was told scare tissue may have been discarding itself..
In all it was the worse I;ve experience but it turned out to be the best thing after it was all said and done.
I think im that one percent that may have issues when it comes to surgery afterwards.
JerseyUrology ty74934
Posted
Everyone heals differently; part of it is likely a factor of initial prostate size, and extent and type of symptoms you had preoperatively
JerseyUrology JCL123
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Most healing is done by day 90, but results can continue to improve beyond 6 months.
JCL123 JerseyUrology
Posted
This may turn out to be the case, but I must say, how is it that after nearly 60 days am I not better to some degree? How could I now be having this pain and discomfort. All of this improvement is just going to happen over night? Cause I am only 30 days after from that magic 90 day mark they keep talking about.
Thanks for the input and advise - John
kenneth1955 JCL123
Posted
JCL123 JerseyUrology
Posted
Tomorrow will mark 60 days post Rezum. You may have already read from my previous posts that I have not benefited from having the Rezum procedure to date - in fact I am worse then before the procedure even at 60 days in.
I am still suffering from this weird pain even after receiving antibiotics a week ago from my urologist. Flow sucks!
I am still suffering from a numbed feeling during intercourse and have really not had much interest in sex since the procedure. I was suffering from retro-dry ejaculations so I stopped the Rapaflo and 2 weeks later still dry.
However yesterday day 59 I tried the pipes out and got pure bright red blood. This was fresh blood. Not think brown old blood. So I have no idea what that means.
Maybe I am still healing and nothing has been absorbed so I have benefited and in this next month things will begin to change, This is my hope. But part of me says that at 60 days to not be even a slight bit improvement is sign that this procedure was not right for me and may have caused an even bigger problem or more problems than I was experiencing.
Have any of you that had this done - had this take this long and still not have a benefit (60 days) in?
Thanks
JerseyUrology JCL123
Posted
I would consult your doctor and have them check a flow test and a bladder scan.
oldbuzzard JCL123
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I was an unusually slow healer (couldn't pee at all for over 2 weeks, couldn't pee well for 6), but at 8 weeks I was doing well and better than prior to the procedure. By week 5 all of the blood was gone, I never had any pain after 4 weeks and what I had was what my doc told me to expect (urgency and burning while peeing).
Either the procedure wasn't performed properly, something isn't healing correctly or both. At 60 days you should be pain and blood free and you should be peeing better than before. I don't know how they diagnosed you (maybe you said in an earlier post), or whether you doc has much experience performing Rezum. But if he doesn't have good answers, you might want to consider finding another doc who has done a lot of these and get his/her advice on where to go from here. You want to avoid scar tissue and fissures which sound like possibilities at this point. But I would find out:
1) Was the procedure done properly? Or is your problem due to something done that shouldn't have been.
2) What exactly is causing this? You probably need to go through a painful scope so that a doc can look at your prostate and bladder and see what's going on. Could be as simple as an untreated infection. Did your doc culture your urine, or just prescribe an antibiotic by guessing?
JCL123 oldbuzzard
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They had me come in last Friday and they did check my urine for an infection. The result was that I do not have a bladder infection, but I could an infection in the prostate and this is why he was going to prescribe the antibiotic. When I told him of all the issues I was having he said its just too early to expect results I that I needed to be patient. This urologist was actually recommended to me by Rezum. I emailed the company and asked who was the most experience urologist in pinellas county and this is how they recommended. I was originally seeing a much younger urologist that was to perform the procedure but he did not want to do a prostate block or offer pain meds which I found unacceptable so I email Rezum's corporate office and they got right back to me and said who to use and they did recommend my younger dr. has he had no experience and was being trained in the procedure.
JCL123 JerseyUrology
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I do and have called, but its just a nurse that calls back and she just says be patient which I guess really is all I can do. Thank you Doctor!