Posted , 6 users are following.
Hi
I was diagnosed with hyperthyroidism and graves disease around 4 years ago and have been taking 20mg Carbimazole and 40mg Propranalol since then. Went to see an endo around a year ago who advised either surgery or RAI therapy. He took blood tests from me but i never recieved another appointment. After moving locations i have recently been feeling not quite right (fatigue, dry skin, depression, stomach problems, foggy head and terrible sensitivity to cold) and went to visit my GP. More blood tess then he advised me that I have now swung round to being hypothyroid.
He has reffered me to an endo again but I was told it could take several weeks to get an appointment. I asked the GP if there was anything I could do in the meantime to make myself feel better. I am only 27 and work in hospitality, a job that requires long hours on my feet, irregular eating and sleeping patterns etc. I was told there was nothing I could do but wait for the endo appointment to come through. It comes and goes but some days I can barely drag myself out of bed to go to work or go out and do anything on my days off. I am also very down, frequently in tears and just feel very weak, frustrated and sorry for myself!
Any help with anything I could do/take in the meantime would be much appreciated
Thanks
Amy
0 likes, 7 replies
linda187 amyc87
Posted
glennis99709 amyc87
Posted
I'm no expert, but did have a similar problem going from hyper to hypo and my dosage of carbimazole was dropped from 20mg to 5mg and I would have thought with the levels of carbimazole you are taking your doctor should have reduced the amount you take and continued with regular blood tests until you get a hospital appointment, my doctor did that for me. Perhaps you should go back and see someone else at your practice.
Good luck
karen0810 amyc87
Posted
linda187 karen0810
Posted
linda187 amyc87
Posted
susan86544 amyc87
Posted
so sorry that we all have to go through this terrible disease. If you are taking thyroid meds, I would take an extra one on Sundays which seem to help. I also have stopped eating all gluten foods. And having thyroid / graves it seems to work for me.
hang in there. It is very frustrating and a lot of work.we all are different and not everything works for everyone. It's been 14 years and I'm still learning. Prayers do help.
Screwball21 amyc87
Posted
Hi Amy, I had exactly the same thing happen to me and I simply reduced my carbimazole. You could perhaps initially drop one tablet every other day for a couple of weeks to see how you feel and take it slowly from there. I find it hard to believe that your doctor did not suggest this.
Also please note Linda's advice about trying l-carnitine or even better still, acetyl-carnitine. I have been taking both now for several weeks and I feel like a new woman. I have no symptoms of hyperthyroidism at all. I still take 10 mg of carbimazole but I think the combination of the three tablets is perfect. I take 1 l-carnitine (500mg) in the morning with a carbimazole and 1 acetyl-carnitine in the evening with a carbimazole. Magic!
Hope you soon get sorted. Tracy
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