Severe symptoms 1-2 times a year
Posted , 6 users are following.
I am desperate for some help and just don't know where to turn. I had been diagnosed with IBS around 2009 but, a couple of years ago, after a colonoscopy the consultant told me I had diverticular disease.
Once a year, usually around March-April (go figure) for at least 5 years I have suffered with an instensely bad 'bout' - severe vomitting, diarrhoea, weakness to the point of passing out, followed by bleeding. The bleeding has got progressively worse each bout I experience - it was originally pink and didn't start until a couple of days in. Now it appears almost instantly. And I'm currently in the middle of experiencing a 2nd bout this year. They are terrifying as the pain, passing out, bleeding - all when on your own - is extremely hard to cope with. And oddly I know when it's going to happen - my mouth goes sort of numb. This isn't gastric fluids as I've watched out for that - I really can't explain why that happens. But 30 minutes after I notice the sensation, the 'bout' offiicially starts. This time I got myself upstairs ready for it to start.
I really need some advice how to cope with this and whether I should push for further action from my doctor/consultant.
1 like, 39 replies
jonnojohn Sunbite
Posted
I have suffered for 30 years from DD and I know how you feel and, by now, how to handle (a) the situation and (b) GP who try to fob you off with things like 'millions of others suffer' You are not interested in the millions of others - your health and its attendant worries are paramount Jacqueline and me are the 'originators of this forum. Take note and good luck. Jon
jacqueline01135 jonnojohn
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to start a BIG Forum for getting us some attention. How about a shot at
the TV progamme or maybe the Prime Minister should be dragged in.
Jac
Sunbite jonnojohn
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I caught a snippet on another thread where you'd made a few wind-related comments which, I have to admit, made me giggle. It was much needed today, and I thank you for that
jacqueline01135
Posted
shed load of pain needing a distraction, and thought of the happy
banter we had on the Diners. I felt sure you would respond to the TV
P.M. starter, but NO. I suppose you are flare free at the moment, and have better things to do, than keep me company Have you lost your sense of fun.,and just farting your merry way around LIDL's ??
I don't care ,I will just wallow here, all alone and uncared for
Feeling bits better today Jon, thank you for asking.
Tee Hee Hee, ,enjoyed this . Jac
.
jonnojohn jacqueline01135
Posted
Get well. Get up and lets think about our next move.
jacqueline01135 jonnojohn
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are getting their nosh from the Brothers Lidl and Aldi/ You will probably
be coasting thr aisles of Waitrose on your own (knew that would rev you up)
I was only joking ,but you with your connections !!!! could probably get us
on Breakfast T.V or Crimewatch . From little acorns etc.
I did get the chance to ask a doctor ( phone line ,no visuals ) why the
antibiotics that were given by drip could not be accessed and so save
us ,the sufferers, do not have to play Russian Roulette with tabs, until
one is found that we can tolerate "Not possible " as it would pbobably
be such a cocktail of drugs
Glad you only have a diddy pain,
carmel83758 jonnojohn
Posted
jonnojohn jacqueline01135
Posted
As ex Dips and Cons and DOE I have some sort of 'in' although, having written to Cameron on the question of dogs (re-introduction of licensing - savaging people etc) got promises but no action.
Will try Miniter (who know, Health is a big issue at the moment with pending elections) or, independently NHS Englan for a start. No doubt I can count on your support. (not a truss!). I have discarded all tablets save for Co-Codamol and feel much better. Nothing worked. Drs. are ante anti-biotivs (which had limited effect anyway). Intraveneous best bet. jon (Poor old Sunbite. I would go with her to see her consultant/GP if I could. I'm good at sounding off)
jonnojohn carmel83758
Posted
jacqueline01135 jonnojohn
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I was very pleased when the "Brothers" arrived in Southern Ireland whilst
I lived there. The shelves were striped as soon as the doors opened
Have to say that in spite of the fact that I slag Paracetamol off ,it has helped a lot . I used to use Co Proximol.until it was removed , because
one or two pillocks alegedly overdosed on it
Sunbite (extrordinary handle ) needs lots of help just hope she keeps
coming back for help.
jacqueline01135 jonnojohn
Posted
Size of paint brush has to be verified
Sunbite jacqueline01135
Posted
A step closer - I got the referral number from BUPA. Only problem is they've warned me because the disease is chronic so they won't cover any routine visits or check-ups. I'll ring and make the appointment later. I'll keep you posted.
jacqueline01135 Sunbite
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I'm going to call you CRISPY O.K.??????
jonnojohn Sunbite
Posted
I had private medical insurance when I was with the Dips & Consular Svce. Twice I had Harley Street surgery for a hernia repair. The fist time I was hositalised for 10 days due to a blood infection post operation. The second I spent a further week cathaterised with yet another infection. I was posted; retired (prematurely) and registered with a new GP. He said you need to have your hernia repaired. I went to my local (Salisbury) NHS hospital (Day surgery) at mid-day and was home again by 6pm. 14 years ago - and no problems since. What does that tell you? My wife's R.A. is chronic. She receives excellent treatment at the NHS Mineral Hospital, Bath - centre of excellence for such conditions. I can only assume you use BUPA because it is a Company Scheme.Is that so, Crispy?
jonnojohn jacqueline01135
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Crispy indeed!
jacqueline01135 jonnojohn
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jonnojohn jacqueline01135
Posted
jacqueline01135 jonnojohn
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