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Hi every one, I hope you don't mind if I can take some of your experiences here to bring it to  my health care specialists, my rational of doing this is only try to express how difficult it is for us chiarian to feel baring with this condition. Perhaps if I can voice our condition, how we cope daily, and struggling each day which maority of our speclialists who suppose to care and supporting and be more emphathy toward us chiarian, seems due to several reason (i.e lack of knowledge, too busy) like cARELESS... hence by conveying all this message...they will be more aware, realise it is very painful and they become more understanding..I am glad I found this website..and really pleased that you all express your experiences as I do not feel alone at all, but please be positive..when I met my NS in West Midland..he informed me..there were lots of his patients that were successful and can fully enjoy their Quality Of Life...they are the one who normally busy and perhaps forget how they at least you were diagnosed..THERE IS ALWAYS A LIGHT AT THE END OF THE TUNNEL.....

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    Good Idea- I've tried to impart my knowledge based on loads of research and reviewing forums. Unfortunately, many doctors won't listen to patients. Good luck!!
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