shelly12
Posted , 2 users are following.
hi everyone,,just looking for some advice please., nearly 2 years ago i ws diagnosed with overactive thyroid,
i had gone down to 5 and a half stone,,anyway started on carbimazole been on them since and seem to have been ok,,put weight on last saw my thyroid doc 2 month ago and he said its improved so cut ablets down,,but ive lost a few pounds in weight,,nothing drastic yeserday i started with the achy muscles in the back of my neck,,didnt think much about it,,but today went in town shopping and i got the shortness of breath,,shaking ,nervousness and cold,,also not been sleeping too good lately
could it be back ,even tho 8 weeks ago i was told it had improved
thankyou to anyone who can help
marie
0 likes, 11 replies
Guest
Posted
You could also have gone Hypo as symptoms are similar
2 years is usually the max you will stay on Carb before coming off it and seeing if you are in remission. The alternative is trying block and replace or RAI.
Guest
Posted
thankyou very much for replying,,ive not heard of block and replace?please can you give me some advice on that
thanks again
marie
Guest
Posted
Some Consultants use it and some don't, personally it didn't really work for me, still too difficult to control.
I have had Graves twice, with a 30 + year gap in between. First time I had to have partial surgery then second time RAI.
Now on thyroxine as I am underactive but after 8 years on that things are going wrong again so there is no end to this retched disease.
marigold
Posted
It's a horrible illness.
Take care.
Marigold.
Guest
Posted
oh realise now i have had the block and replace now you explained what it is
they told me i have to have the thyroid removed or the rai
i dont fancy the op,,lol but want the rai as it sounds so much easier is it? but im worried about not being able to be around my 2 little grandaughters as i see them every day, how long do i need to stay away from them?i keep reading all different answers to it
thanks so much
marie x
Guest
Posted
marigold
Posted
I have a little granddaughter who's sixteen months. The information sheet I got from the hospital said no close contact for 21 days, but then I was told that that referred to parents, and as long as I avoided close contact for a few days and didn't have her sitting on my knee for long periods she'd be fine.Anyway we've decided to play safe and I'm not going to see her for the 21 days. I'd give anything to be able to give her a cuddle though.
Barry, are you ok after your rai? I didn't feel very well last week, shakey and fidgety, and hubby said I was dead ratty. I'm sure he was wrong. I feel a lot better now though. Blood test next week, and I see the endo so should know if everything is going ok.
Take care everyone.
Marigold.
Guest
Posted
hope all goes well for you,,
21 days! now that did make me panic till i saw it was just for the parents,,lol phew i see mine everyday cant even last 21 hours never mind 21 days,, my 3 year old is a nannys girl she just wouldnt understand why i wasnt there for her,
but a few we will both just have to cope with that :-)
sorry for so many questions but what damage can it cause if your around children
your all very kind taking the time to help so thankyou
marie x
Guest
Posted
Guest
Posted
ive not had the ria yet,,iv got appointment in january so ill see what he says then,hope your feeling better soon barry
mariex
marigold
Posted
It's nearly two weeks since I had my rai, and I'm feeling much better than I did last week. I was very bad tempered.
I'm having palpitations too. I've had them for a long time, but they're worse at the moment. I had a heart scan in May and everything was fine, so I'm trying to ignore them My eyelids are ok, but my eyes tend to be a bit dry and sore. I use eye drops (artificial tears) and they help a lot. I get them on prescription. I'm not very hungry at the moment either.
Take care. Hope everyone else is ok.
Marigold