sleepless night

Posted , 5 users are following.

I was diagnosed in April and had a horrendous outbreak where I had to take a week off work. Overall it took me longer to recover....itching and general uncomfortable feeling. I have lost a lot of confidence and not a day has gone buy when I don't wonder when my next outbreak will be. I have sometimes have crawling sensations and it is really getting me down.

I am trying to improve my health, my boyfriend is very supportive but wants me to relax about it too. I have had a life long habit of doing too much and getting run down eventually so I am trying to break this. Unfortunately I have agreed to take on a few new things at work! I don't know why, I am just used to burning the candle at both ends.

my boyfriend has had no symptoms and I hope this continues as I will remain vigilant about noticing symptoms... I asked the doctor what I should look out for but she was not massively helpful and very vague But I understand why, as it is a very unpredictable virus.

I guess I am just looking for a bit of support, as although my boyfriend is very helpful, I know in a lot of ways he doesn't really understand that it is an ongoing struggle and I think about it constantly. Hoping that there are positive stories out there too! This is my 3rd hour of no sleep now. Worst night since my outbreak!

0 likes, 11 replies

11 Replies

  • Posted

    Lozza, I totally get what you are saying. I had non-stop symptoms the first 8 months after diagnosis and one of my biggest complaints, was that crawly feeling. It was worse than all the others, because it feels like an insect is living inside of you, which then makes you feel dirty... Irrational as that is, it does.

    I had a horrendous ob that resulted in severe neuropathy and constant paresthesia, which is what you are experiencing right now.

    Are you on daily meds or no? Everyone gets caught up in worrying about their second ob, but I am here to tell you, it is nothing. You will expect that it will be like your first and it isn't. I've had an ob every month once or twince since having it and it is so minimal, had I not made a habit of looking down there, I'd never known. I can go about my life like it wasn't there. I know easier said than done, but just stop worrying about it. I promise you it won't be like what you think. You'll feel maybe some mild tenderness at most. For some people, myself included, it takes time for your body to adapt to the virus and start feeling normal again. Be patient w yourself sweetie.. Believe in your body, know it needs to heal and also know it is normal to feel the way you do. Being diagnosed is a grieving process w out a doubt. How you feel now will pass, just be patient and know acceptance will come.

    I don't know all the details of your diagnosis and about your partner, sounds like he is an asymptomatic carrier to be honest. Any who.. Please advise on the below.

    As far symptoms do the following:

    -  soak in Epsom salt baths as much as possible.

    - wrap a cold pack w paper towels and rest between your legs when you are resting.

    - take 800mlgs of motrin every 4hrs

    -  if it hurts to pee, sit in a shallow bath and go. If you can't do that, a heavy coating of Vaseline over sores will provide a shield.

    In regards to helping stop or slow down or decrease the intensity of the obs, I started a supplement routine, as I used to have two obs a month and 20 symptoms on a daily basis the first 8 mm months.

    - 2000mlg daily of Vitamin C & D

    - daily zinc and magnesium

    - 2x daily multivitamin

    - all vitamin Bs, A, K & E. Those are needed for the Bs to work properly for good nerve function and repair.

    - a daily live culture probiotic. 70% of pur immune system is in our gut, so we just boost it w proper pH balance.

    Taking Empson baths daily upon symptoms, made the difference in an ob lasting a week and a half, vs 2-3days.

    Liquor is a huge trigger to me.. Lots of it and out late that is . wine and beer doesn't do it to me. All my recurrents are just one and two bumps at most, so relax. :-)

    • Posted

      Thanks, feelbroken. I just feel a bit lost with it all sometimes, ok I am fine and have minor things going on, but if I complained to a friend about an itch or whatever they would not know the reason why and I am fed up of my conversation with my boyfriend being about my privates !

      I Googled motrin and unfortunately cannot take it as there is a chance I could be pregnant. I believe it's ibuprofen. I have started doing many of these things afree some research and your suggestions. Just want to know when the weird feelings will go!

    • Posted

      The supplements helped me make it stop, I hardly ever get it now. If I do, it's about once every two weeks and I have other symptoms like skin sensitivity and I believe I am shedding that day. There's no telling when it stops, it is so early on for you. You gotta give it time.
    • Posted

      You're right. I'm a terrible perfectionist too. Which in some ways is good but obviously I need some patience with it.
  • Posted

    Hello, I got diagnosed March 9th and i had a really bad out break. it lasted about 2 weeks 1/2 i was taking he meds but took a whil for them to kick in.

    i still had grouin pain and was bery sensative down there 2 weeks after i got another out break and it was very mild not much pain. 

    i went to the dr she gave me more meds and 4 refill. 

    i  had all the symptoms u had, the crawling sensation, the itching, the discomfort. 

    but after 1month 1/2 all those symptons calmed down. 

    i started taking vitamin c and prenatal pills dr recommended since they have all the minerals and vitamins our body needs'

    i decieted to get on supressive thrapy and been on meds for about a month now. 

    i have no symptoms, no outbreaks almost back to feelings 100% normal again 

    i continue to take my vitamins with the meds im on. 

    so hun things will get better i say the first month  1/2 is the worst. 

    an i felt like sh*t ad super depressed all i wanted to do is sleep. 

    i feel way better now. 

    if you continue to have symptoms u should tell your dr and have her put you on meds atleast for 3 months 

    also if you have sex make sure to use lub so you wont get friction and wont cause an out break. 

    likei said the first 1/2 will be the worst. 

    things do get better trust, I was also in your shoes its now 3 months ad i feel better. 

    Good luck hun. 

    • Posted

      Thanks, I had a terrible day today Emotionally wise. Glad it's over. I have only ever cried as much when I lost a very close family member. I do feel a bit lost at times and I am lonely. I have thought about going to speak to a professional as I'm very low
  • Posted

    I apologize about you going through this i just found out May 8th so its new to me to my outbreak has cleared and everyday i just pick myself up someone told me dont be herpes positive but be positive about having herpes....luckily your not alone and niether was i which helped alot, its all mental and emotional thing even though i still get sad at times i just do things that make me happy....

    I mean think about what has it really changed... you have to take meds everyday (who doesnt) mayb sex might be a little different but it can be fun to its all about you turning it into something positive....i dnt want to give you any medical advice because im sure you have heard enough of that....you need to work on getting out of the funk of life and back into the fun of it😘😍😘❤💓💕💖💞 dnt let this take control of your life you control it

    • Posted

      Thank you for your comment, I am doing better and trying to keep busy (but not too busy) to take my mind off things. Fortunately I don't need to take meds every day, but maybe it's something I could look into if I need to.
  • Posted

    I know exactly how youre feeling hun 

    thats how i felt i was really sad and depressed i didnt talk to anyone. 

    give it some time. 

    at least 1month 1/2 see how things start turing out for youo with your o.b and how u start feeling emotionally 

    i thoought about talking to someone too because i felt horrible. 

    give it some time. 

    things do get better trust \i  know its hard to belive right now but it does.

    How are your Out breaks turning ?

    have u had any new ones?

     

    • Posted

      thanks for your reply. You're right, I need to give it more time to see how things go. I think I just hate how unpredictable it is!

      I've not had any obs since my first horrific one. My boyfriend said to me the other day that he only has a cold sore once maybe twice a year. Why would it be any different for me, only difference is where it is, he doesn't care so I shouldnt worry about that side of things. At the end of may I'll be at a month and a half. See where I go from there.

      Feeling more positive again, thanks

  • Posted

    I am really glad to hear youre doing better 

    yes it gets better with time

    u get to kinda accept the fact that you have it and its not going anywhere

    and just learn to live with it

    glad u havent had another o.b niether have i 

    and im happy about that 

    Glad your bf is being supportive about it, i think the hardest thing is being able to tell your partner but you dont have to worry about that since ur b.f knows.

    HAve you been sensative after sex from down there .

    i remeber i was when i first got diagnosed and had sex.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.