so angry , new consultant says no gallbladder op after already waiting months

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Having had stomach and back pain for 4 years I finally had a diagnosis of gallstones and was put in the waiting list last November for a gallbladder removal op, since then my symptoms have become much worse. I get pain most nights and can't get comfortable and sweet and get chills, I also now have pain in my right shoulder. I also get pain when I  excersise, which I acknowledge  is not associated with gallbladder problems. in Febuary I was moving house to another area and so I rang to see where I was in the waiting list and they told me it would be months, so after a discussion with my new GP it was decided it probably would be best if I moved my op to my new location.  Then I discoverd I couldn't just move it I had to see a new consultant. So today I saw him and he has said my symptoms don't fit as I don't get severe pain for longer than 20 minutes and that gallstones dont cause a knawing constant pain, and has refused to put me in the waiting list for the op saying he doesn't think my gallstones are causing my pain,  I am devestated and after 4 years of pain my only hope of getting this sorted has just a been taken away. As he didn't have a copy of my last two scans showing the gallstone, he says this has to be repeated and he won't consider any treatment until he has seen one.  So now yet more waiting and no hope any more of sorting it, I am so depressed and just don't know what to do?

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  • Posted

    This is so unfair to you! Why don't you get the copies of the san that shows your gallstones and change doctors! I would have to take action myself! Doctors that will not pay attention to a patient is derelict to his aoath in my opinion!! I would drp him like a hot piece of coal! Keep me informed and I will keep you in my prayers...
  • Posted

    I really sympathise with you. Make a complaint to the health authority. I recently had a Hida test showing my gallbladder not functioning at all and I am in constant pain and discomfort. I paid privately and when I told my consultant who was doing nothing for me the results he immediately referred me on to another consultant who has now put me on a 7 month waiting list for an outpatient appointment with him. So I will have to see him there and then maybe be put on a list for an operation with a further wait. The situation is farcical. I told his secretary today that this was nonsense as I have already been diagnosed. I have instigated a complaint today and will approach the local press and anyone who will listen. These people play God I am afraid and it's time to stop them.
    • Posted

      I agree they are a very arrogant, good for you putting in a complaint
  • Posted

    Thanks for your replies I just needed to sound off to people who might understand why I'm so upset. , I am just angry at this stage and when I have calmed down a bit I will look into whether I want to put in a complaint. At the moment  I am pigging out on all the foods I have avoided for months, after all if I dont have a gallbladder problem it won't  cause me a problem, will it?? 
  • Posted

    hi finadindin

    sorry to hear  that you are not getting to have your gb removed.I'm seeing the surgeon on monday 27th April and I'am dreading him saying that they wont remove my gb,I have been in pain for some time (not as long as you) and the thought of having to continue to cope with the pain and sickness any longer then needed to frightens me.If i were you I would make a complaint,you have come this far and its not far to make you wait any longer

    good luck

    keep in touch

    Pat

    • Posted

      Good luck Pat I am sure yours will be fine, my first consultation was fine, just don't move before you have the op 
  • Posted

    So sorry to hear that. Where are you from. I am in the Uk and don't have the pain associated with a gallstone but the consultant has let me decide if I want my gallbladder removed when I see him next.
  • Posted

    I am from the UK.  I Dont really understand how he can make a desicions in less than 5 minutes without any scan or test results that haven't come through from my last consultant.  I did think he would want an up to date scan but to just stop the whole process and basically start from scratch again, I really don't understand. These doctors don't realise the effect what they say impacts on your whole life. 
  • Posted

    You are entitled to ask for a second opinion. See your GP I didthis in the past with much better results. You can also talk topals which is attached to all hospitals and ask advice on your situation. Wish you luck.
  • Posted

    Hey, there! That sounds terrible. I'm not from the UK, but I've lived in London and I've heard how difficult it is to arrange planned procedures.

    I do have to ask though - are you and your previous doc 100% sure that the pain is caused by the gallstones. I mean, even if they are there, they are, in fact, often not symptomatic and you could be indeed removing an organ while actually neglecting the real cause of your pain. I am not saying that this is the case - it could very well be the stones. I just think you should be well informed on the reasons both doctors have for their conclusions. But in case tests up to now have shown without a doubt the bladder is the culprit, I support the previous opinion that you should file a complaint. 

    I lived with gallstones and cholecystitis for years (7-8) before I removed the gallbladder - every couple of months I would wake up in the middle of the night in excruciating pain in my epigastric and on the right side under my ribcage, radiating to the back. I would start vomiting, which did not, however, relieve the pain. It would go like that for hours. Medication didn't help much. On an ultrasound during such an episode the doctor could see the walls of the bladder thickened and in distress, the bile duct dilated. Often my bloodwork would show high liver enzymes or markers for inflamation. 

    Since even though I took out the bladder I still have pain, doctors often rush to the conclusion gallstones were not the problem to begin with (much like your second doc). But once I explain the ultrasound and blood changes that were noticable during pain attaks, they agree it most probbably was the stones. 

    And from my experience, gallbladder removal is not always entirely without long term negative effects (my problems only worsened after that). So just make sure you've been diagnosed correctly. 

    Best of luck to you and I hope whatever it is that is causing your pain to be resolved as soon as possible.

  • Posted

    Thanks, Pompom, I totally agree I don't want an op unecessarily. And if I, or my previous Drs had had any doubts, I wouldn't want to go through with it.  If the new consultant had listened to me properly instead of interrupting all the time. and been able to given me a good reason why he thought the symptoms didn't fit, I wouldn't have been so angry.  But he made his mind up and told me he wouldn't operate within about 3 minutes of being in the room,  He didn't listen to half my symptoms or even exam me properley.  My last consultant didn't have a problem with my diagnosis nor has it ever been questioned on the numerous times I have been to A & E . I just have never been considered an emergency.

    I feel let down.  I love my new life and am happy to have moved, I just wish I hadn't told the hospital or Gp and then maybe in a few months it would have gone ahead, in my old area, but as it is, now I am left hanging in tremendous pain, hanging on for goodness only knows how long.

    I will go for the latest ultrasound as its been over a year since my last one, but I will abe asking my Gp to refer me elsewhere as I would not have that Man operate on me now even if he changed his mind and agreed, as I have no faith in him, he seemed to be arrogant, have poor listening skills and no empathy. 

    • Posted

      I totally get what you mean. It is often increadibly difficult to go to a new doctor who knows nothing about you, but presumes to be capable to comprehend your situation (that has usually been developing for years) in a matter of seconds. I've been trying to figure out my problems in that anatomic area for like 10 years now and I've been in this situation more times that I care to admit. I truly hope you find a doctor you can trust and rely on. Good luck and feel better! 
  • Posted

    Hi Finadindin

    I know how you feel about having to wait all over again,my surgeon did look at my last scan which I had on 8th April which showed gs and my MRI that I had taken in 2013 on my back.this is what happen when I saw the surgeon today and the news wasn't what I was hopping for.He feels that my pain is not because of my gs but my back, so now I'm back where I started from last Feburary.he say's because when I have the pain it is made worse by movement eg,bending down, turning over in bed,going to the loo no2,ect.He say gallbladder pain is not made worse by movement.It is only when you have eaten and the gall bladder contracts to deal with the fat ect. He said that out of 100 57yr olds woman 40 of these would have gallstones but not all would be in pain from them.I have been in pain all over the weekend and had the day off to see this surgeon,I am not in pain all the time but when it comes its really bad and I need to lay down.Now I feel I'm no way nearer to the end of my pain as I thought I was,.He is going to write to my gp and feels I should have a MRI on my upper back,shoulder blade,I do have trouble with my lower spine but this pain is undercontrol. He feels taking out my gall bladder would not stop the pain although I have some stones and the wall of the gall bladder is thin.so it seems I will have to wait again to see my back doctor,and if its not my back then what.I 'm glad he didn't want to just wipe my gb out but he has left me feeling really down.As we all know on this site the pain is the thing most hardest to take.being able to blame the gs for my pain helped me cope with it but now I feel if its my back there will be very little they can do and i will just have to find away of coping with the extra pain which I'm not sure I can do.All I can say now is if your waiting to see your surgeon don't get your hopes up that he will take your gb out and your pain will stop as I did.I still feel that it is my gb and not my back.this is also affecting my relationship with my husband as when I'm in so much pain I know I can be hard to live with,my husband even told this to the surgeon.O well i do feel some what better for writing this blog,hope you get what you want but I do know how you feel,its like the world has come to an end,there's no light at the end of the tunnel only PAIN

    keep in touch with how your getting along

    Pat

    • Posted

      Pat, I just saw you post, I am gutted for you.  I am not sure these surgeons realise how delvestating what they say can be. I am convinced that the pain I have is gallbladder related , am quite depressed now unfortunately,  

      what can we possibly do,  my husband has been looking I tot he cost of having it done privately, we really can't afford it, but I want my life back this has gone on to long :-(. 

      Thinking of you x

    • Posted

      Hi Finadindin

      I was gutted to when the surgeon said he didn't think it was my gb.so now i have to wait until I can get  an MRI scan done then go back to see my back consultent,which could take forever.If its not my back then I back to stage one again,I'm tired and in pain most of the time but have had to go back to work,they said today that they hoped I wouldn't need any more time off but i just said I don't know when i will need time off,if i can bare the pain and work I will but if it gets to bad I'm going to go to A&E and hope they will do something.Glad you are going to get a second opinion and I hope it will meen the end to you pain.I don't think these doctors know just what sort of pain we are in,there playing with people's lives and it's not fair to except us to just hang about waiting for things to happen,i thougt about going private but its very exspesive,so that out of the window.I think because i suffer with depression if its not due to my back then I'm fighten there say its all in my mind,I have got a appointment to go to the pain clinic as my doctor feels I'm not managing my pain very well,i like to see her try it.

      I do hope things go well for you

      keep in touch

      thinking of you too

    • Posted

      It's so upsetting Pat I'm not suprised your depressed.  I am getting very low to, as the pain hits most nights and I am sooo tired, I can't think straight any more. I think the consultant didn't have the patience to listen  to me as I get tongue tied and very weepy as I am so tired, so then he just ignored everything I said after that point.  I Hope both of us can get a resolution, whether its the gallbladder or not, as long as it doesn't take too long :-(  I do wonders if because they were to quick to question it because of long waiting lists and it means until they haven one more test they do t have to add us on, or am I being to cynical 

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