so angry , new consultant says no gallbladder op after already waiting months
Posted , 6 users are following.
Having had stomach and back pain for 4 years I finally had a diagnosis of gallstones and was put in the waiting list last November for a gallbladder removal op, since then my symptoms have become much worse. I get pain most nights and can't get comfortable and sweet and get chills, I also now have pain in my right shoulder. I also get pain when I excersise, which I acknowledge is not associated with gallbladder problems. in Febuary I was moving house to another area and so I rang to see where I was in the waiting list and they told me it would be months, so after a discussion with my new GP it was decided it probably would be best if I moved my op to my new location. Then I discoverd I couldn't just move it I had to see a new consultant. So today I saw him and he has said my symptoms don't fit as I don't get severe pain for longer than 20 minutes and that gallstones dont cause a knawing constant pain, and has refused to put me in the waiting list for the op saying he doesn't think my gallstones are causing my pain, I am devestated and after 4 years of pain my only hope of getting this sorted has just a been taken away. As he didn't have a copy of my last two scans showing the gallstone, he says this has to be repeated and he won't consider any treatment until he has seen one. So now yet more waiting and no hope any more of sorting it, I am so depressed and just don't know what to do?
0 likes, 18 replies
angela72602 Finadindin
Posted
Spaced Finadindin
Posted
Finadindin Spaced
Posted
Finadindin
Posted
patricia30000 Finadindin
Posted
sorry to hear that you are not getting to have your gb removed.I'm seeing the surgeon on monday 27th April and I'am dreading him saying that they wont remove my gb,I have been in pain for some time (not as long as you) and the thought of having to continue to cope with the pain and sickness any longer then needed to frightens me.If i were you I would make a complaint,you have come this far and its not far to make you wait any longer
good luck
keep in touch
Pat
Finadindin patricia30000
Posted
anita03601 Finadindin
Posted
Finadindin
Posted
janet74211 Finadindin
Posted
PomPon Finadindin
Posted
I do have to ask though - are you and your previous doc 100% sure that the pain is caused by the gallstones. I mean, even if they are there, they are, in fact, often not symptomatic and you could be indeed removing an organ while actually neglecting the real cause of your pain. I am not saying that this is the case - it could very well be the stones. I just think you should be well informed on the reasons both doctors have for their conclusions. But in case tests up to now have shown without a doubt the bladder is the culprit, I support the previous opinion that you should file a complaint.
I lived with gallstones and cholecystitis for years (7-8) before I removed the gallbladder - every couple of months I would wake up in the middle of the night in excruciating pain in my epigastric and on the right side under my ribcage, radiating to the back. I would start vomiting, which did not, however, relieve the pain. It would go like that for hours. Medication didn't help much. On an ultrasound during such an episode the doctor could see the walls of the bladder thickened and in distress, the bile duct dilated. Often my bloodwork would show high liver enzymes or markers for inflamation.
Since even though I took out the bladder I still have pain, doctors often rush to the conclusion gallstones were not the problem to begin with (much like your second doc). But once I explain the ultrasound and blood changes that were noticable during pain attaks, they agree it most probbably was the stones.
And from my experience, gallbladder removal is not always entirely without long term negative effects (my problems only worsened after that). So just make sure you've been diagnosed correctly.
Best of luck to you and I hope whatever it is that is causing your pain to be resolved as soon as possible.
Finadindin
Posted
I feel let down. I love my new life and am happy to have moved, I just wish I hadn't told the hospital or Gp and then maybe in a few months it would have gone ahead, in my old area, but as it is, now I am left hanging in tremendous pain, hanging on for goodness only knows how long.
I will go for the latest ultrasound as its been over a year since my last one, but I will abe asking my Gp to refer me elsewhere as I would not have that Man operate on me now even if he changed his mind and agreed, as I have no faith in him, he seemed to be arrogant, have poor listening skills and no empathy.
PomPon Finadindin
Posted
Finadindin PomPon
Posted
patricia30000 Finadindin
Posted
I know how you feel about having to wait all over again,my surgeon did look at my last scan which I had on 8th April which showed gs and my MRI that I had taken in 2013 on my back.this is what happen when I saw the surgeon today and the news wasn't what I was hopping for.He feels that my pain is not because of my gs but my back, so now I'm back where I started from last Feburary.he say's because when I have the pain it is made worse by movement eg,bending down, turning over in bed,going to the loo no2,ect.He say gallbladder pain is not made worse by movement.It is only when you have eaten and the gall bladder contracts to deal with the fat ect. He said that out of 100 57yr olds woman 40 of these would have gallstones but not all would be in pain from them.I have been in pain all over the weekend and had the day off to see this surgeon,I am not in pain all the time but when it comes its really bad and I need to lay down.Now I feel I'm no way nearer to the end of my pain as I thought I was,.He is going to write to my gp and feels I should have a MRI on my upper back,shoulder blade,I do have trouble with my lower spine but this pain is undercontrol. He feels taking out my gall bladder would not stop the pain although I have some stones and the wall of the gall bladder is thin.so it seems I will have to wait again to see my back doctor,and if its not my back then what.I 'm glad he didn't want to just wipe my gb out but he has left me feeling really down.As we all know on this site the pain is the thing most hardest to take.being able to blame the gs for my pain helped me cope with it but now I feel if its my back there will be very little they can do and i will just have to find away of coping with the extra pain which I'm not sure I can do.All I can say now is if your waiting to see your surgeon don't get your hopes up that he will take your gb out and your pain will stop as I did.I still feel that it is my gb and not my back.this is also affecting my relationship with my husband as when I'm in so much pain I know I can be hard to live with,my husband even told this to the surgeon.O well i do feel some what better for writing this blog,hope you get what you want but I do know how you feel,its like the world has come to an end,there's no light at the end of the tunnel only PAIN
keep in touch with how your getting along
Pat
Finadindin patricia30000
Posted
what can we possibly do, my husband has been looking I tot he cost of having it done privately, we really can't afford it, but I want my life back this has gone on to long :-(.
Thinking of you x
patricia30000 Finadindin
Posted
I was gutted to when the surgeon said he didn't think it was my gb.so now i have to wait until I can get an MRI scan done then go back to see my back consultent,which could take forever.If its not my back then I back to stage one again,I'm tired and in pain most of the time but have had to go back to work,they said today that they hoped I wouldn't need any more time off but i just said I don't know when i will need time off,if i can bare the pain and work I will but if it gets to bad I'm going to go to A&E and hope they will do something.Glad you are going to get a second opinion and I hope it will meen the end to you pain.I don't think these doctors know just what sort of pain we are in,there playing with people's lives and it's not fair to except us to just hang about waiting for things to happen,i thougt about going private but its very exspesive,so that out of the window.I think because i suffer with depression if its not due to my back then I'm fighten there say its all in my mind,I have got a appointment to go to the pain clinic as my doctor feels I'm not managing my pain very well,i like to see her try it.
I do hope things go well for you
keep in touch
thinking of you too
Finadindin patricia30000
Posted