So upset

Hello Kelly,

I'm so sorry to hear of your plight, and just wanted to wish you well.

There is nothing easy about this disease and being so young with children, doubly difficult.

Hopefully you have people around you who can support you, and you need to get meds sorted to reduce the pain.

I wish you all the best

Anne x

Hi Kelly are you taking anything for the pain? I found out 22 years ago about my disease but managed well with pain relief until the last year or so, I had gabapentin for a time, then took tramadol regularly alongside co-codamol which did help. Please seek advice as you are so young and only been diagnosed 3 months so there must be so many things you can try, dont give up. I managed great until recently, managed to work and bring my children up alone from the ages of 5 and 2, they are 20 and almost 18 now so dont give up, just make sure you seek lots of advice and try different things. Positive thought and trying anything that makes you smile is really important too, endorphines really do work x

So sorry Kelly, I went through the same when the myalgia first came on severely, fortunately I live on my own so was able to rest when necessary, you need help hon until you get over the worst, try taking fresh garlic 3 cloves 3 times a day and cut out all starches and sugars for at least 3 weeks eat plenty of onions cooked or raw, change from white bread, pasta, rice and white anything and cut out the processed food, ie fish fingers and chicken nuggets, and sweet things and potatoes, eat more salad and vegetables, fill up on nuts but not pistachio or, peanuts or I know it's hard at first, but it really does work, also get the older children to help with the little ones, I persevered and can now control the pain and fatigue

Or cashew nuts, sorry, my ipad is having a bad day

look on the internet for fibromyalgia and diet, my sons mother in law has just been diagnosed with myalgia and she is going through the same pain, fatigue and depression, I will pray for you hon. God bless

Hi Kelly,

sometime FM can really take a toll. It changing UR regular normal to UR new normal. Take rest breaks don't tru to go all day without a break. You'll learn what's best for u as u go. OTC antiinflammatories help and eat good food. No more junk food . Well occasionally. U will fell the difference staying away from some foods. There's a great diet online forFM.

TAKE ONE DAY AT A TIME & it helps to keep a journal foods activities and rest periods.

not surprized you are struggling you have 5 kids at 30 to look after in these days ,the stress must be terriable , i only had 3 by the age of 31 that was back in 91, and that was harder enough.

i am not saying anything negative about you having 5 kids just that i understand that it must be terriabley hard and stress at times. and you must feel really presured. stress will only make your symptoms worse.

is there anyone that helps you or are you doing it on your own like i had to , i had one with special needs as well, and i had know one to support me it was so stressful and i swear that the constant stress i was under is what lead to this condition.

i had some support from a family charity called home start do you have group in your area ,they started in leicester oringaly . and have spread to many differant areas i had one when i was in banbury ,

try some supplements they help with out side effects , in most cases , if you want to know what supplements i use , private message me.[ the medeator on this site sometimes takes this info out.]because its classed as advertising , but u can give info if you private message thru this site..

ask at your social services about family support group for your selve because since becoming ill your finding it a a struggle, if you dont want to go straight to them ask your gp ,or maybe your health visitor at your surgery if they know of any groups that can give you some support ,,

they shouldnt condem you for asking in most cases there is help out there but people are afraid to ask because of the stigma , better to ask now before you have a complete melt down, 5 kids would be hard work for anyone but with this condition it really is and will be to much with out help . PLEASE ASK ABOUT SUPPORT .it wont reflect on you as a mother they will think that your sensiable person for knowing that your struggling and asking for help .

sorry i havnt a magic wand i only wish i had , please ask for help .

                       tina . in yorkshire

Hi Kelly,

really feel for you. I don't have kids yet but would like to, but worried about how I would manage. It's lovely to have a big family but 5 is a lot to deal with when you aren't well. I hope you're feeling better soon.  I think you will be able to have fun with your kids, you'll just need to take it a bit easier at least for a while. I'm positive you'll get back on your feet. If you can find a good GP or rheumatologist maybe they can sort you out with some meds.

Take care  and hope you feel better soon x

Hi Kelly, surprised you made it to the end of the summer holiday before really feeling that it's got on top of you.   Hunny, it's over! 6 weeks of 5 of kids all the time has finished .  If you're anything like me I'm even worse right now cos my body knows it can rest again (and I only have 2 kids).  Even though I struggled through the summer hols I must of been running on adrenalin because I'm crashing like mad right now (I have Fibro & ME).  I'm only 36 and I find it hard seeing others who are older than me and full of energy.  There was a little girl about 3 this morning leaving the playground who asked her Dad if I was old cos I was on my mobility scooter (I smiled and said "thanks, do I look old"). 

You're newly diagnosed and can't stop thinking about it right now.  You've just survived the 6wk hol with 5 kids under your feet all the time.  No wonder it's feeling too much.  But it isn't! You can make them happy! You can cope but there will be times when it's harder to cope. Which was yesterday.  This time next week you will have a better emotional day.  It will be easier when the kids understand a bit more.  When you can say "lets go to the park but only for just over an hour", not what I expect you did and stayed for more than 2 hrs.  They are also at that more demanding age of needing you to jump up and down to push one on a swing, rub a sore knee, stop another going off. 

When a friend offers to take one to the park for you say yes, maybe say to friends you are struggling with all 5 at the same time and they will take 1 or 2 for you to do something with their kids.

It's early days for you, my meds have to be adjusted every month. My doctor sees me once a month so we can keep adjusting the meds to see what works.  I feel supported and not pestering her every 2 seconds.  It was her idea.

Now some of the kids are at school, take a deep breath and sit down with those at home in front of a DVD and enjoy a cuppa, even if it's only for 10 minutes.  xx