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Hi have been to doctors this morning with severe stabbing face pain on the right hand side! This is after visit to dentist on Tuesday as i was convinced it was my teeth! The pain was unbearable over the counter pain killers didn't touch it!
Doctor is treating me for shingles and TN!
200mg per day of carbamazepine for TN and Aciclovir in case it's shingles! I have been looking for rash around face in case it might be shingles, no rash but have broken out in coldsores around my lips which i get if run down!
I am just looking for any advice because doing my researsh both these conditions seem very painful and reoccur! and I just hope that with this medication i will start to feel better?
So i am back in bed and feeling quite down and a bit scared as i am also prone to depression! and it would be really helpful to hear any similar stories to mine? Doctor wasn't very helpful really made me feel as if i was wasting her time!
0 likes, 9 replies
clint71 Welsh_girl
Posted
I'd say do as the doctors say, but ask for a referral to a neurologist. If it's TN, an MRI is standard to rule out Multiple Sclerosis. 200mg of carbamazepine is a very low dose. If it doesn't help you, definitely ask about increasing it. Google is your friend. Learn as much as you can on your own.
claireabelle68 Welsh_girl
Posted
mike59591 Welsh_girl
Posted
Lucky you to get a doctor and dentist so clued up. I spent over £2k on dental treatment in agony over 6 months before being referred for investigation for the later confirmed TN. I had an MRI and have been on Tegretol for years and years - initially it was hell as I was on a high dose and almost a zombie - the best thing I did looking back was find a really REALLY good acupuncturist - the first session had me in tears within 24 hrs and I had to go back asap and she did another session and all the pain went…
Not completely but as good as. Stress makes it come back and it's like a distant thunderstorm with faint lightning strikes and that's my trigger to back off the stress and up my meds slightly. You will get used to the Tegretol. I get cold sores and I am convinced TN is connected to the herpes virus.
Valkyrie mike59591
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mike59591 Valkyrie
Posted
Hi Valkyrie, I get pain across the side of my face and down my neck when I get a cold sore coming on (pre and post hepatic pain?) - I can't even think about shaving - that pain is also attributed to TN - I often see posts elswhere about having to keep even mild draughts off the face of other sufferers. But full blown TN pain is on a whole different level.
Welsh_girl
Posted
I have had acupuncture before so yes might give that a go?
Valkyrie Welsh_girl
Posted
Welsh_girl
Posted
If it is trigeminal neuralgia can anyone tell me how long it lasts?
I am confined to bed with no energy does Tegretol make you tired? I can feel also that pain in my face is just masked with painkillers when they wear off back comes pain!
Being treated for shingles also! Wish I knew which one it was? At the moment researching both?
mike59591 Welsh_girl
Posted
Hi Welsh Girl
It is difficult to say - sorry not to be more positive. If you are being treated for shingles - of which the facial form is often the most painful - is yours facial shingles? You haven't had a definitive diagnosis of TN yet and I would work towards a diagnosis with your GP. Yes Tegretol makes you tired and muggy headed at first until you get used to it, so also does shingles. The last time my wife had shingles on her torso - the common form - she could be up and moving around, nothing strenuous, for about 4-6 hours and spent the next 24 hours recovering from the exertion.
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