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Hi all so I was diagnosed with SOD at the age of 19 after suffering with hyperparathyroidism and acute attacks of pancreatitis putting me in hospital every 6 weeks or so from the age of 15, I am 26 now and pregnant with my second baby, i found that my condition improved dramatically from being pregnant and now only have hospital admissions once or twice a year and can control the smaller flare ups with GTN spray. How are you all coping? i struggle often to find a job that copes with absences due to sickness, and i am physically exhausted trying to push through and power on when looking after my 2 year old. I also cant tell the difference between a SOD flare up and and Pancreatitis flare up. lastly being pregnant i cant tell if i am throwing up and exhausted because of SOD or the pregnancy. I don't qualify for PIP so my partner is having to support us on just his wage when i can't work. Sorry for the massive report, just looking for some help, support or advice. Big love all.
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