Spinal Fusion...What Should I do for my son. Need stories. Either good or bad.

Posted , 2 users are following.

My 15 year old son has centronuclear myopathy.  He is a candidate for spinal fusion.  He currently walks with assistance but only short distances.  He was recently diagnosed with 30 degree scoliosis and 80 degree kyphosis.  My worry is that he may never walk again after the surgery.   And his range of motion will be greatly reduced only to cause him more depression.

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    I totally know where your coming from, does he do hydrotherapy or physio, having a fusion is something that needs to be carefully thought out and gone into big time with the consultants, I have the opinion that it should only be done when their is no other options and his quality of life is not completely taken away
    Report / Delete Reply
    • Posted

      He doesn't do hydro therapy right now but it has been encouraged for us to start doing it.  I did read that does help with scoliosis.  I will speak to wife about starting hydra therapy right away.

      Thank you.

      Report / Delete Reply
  • Posted

    He doesn't do hydro therapy right now but it has been encouraged for us to start doing it.  I did read that does help with scoliosis.  I will speak to wife about starting hydra therapy right away.

    Thank you.

     

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up