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Stiffness in legs

Posted , 13 users are following.

margaret89358
margaret89358

i was diagnosed 17moths ago. I have been reducing slowly I am on 8mg at the moment, I was told that my shoulder problems were Rotato cuff problem since then have been having physio which has helped. My problem is getting up,after sitting down I am very stiff mostly in my legs. Once I am up I am ok no pain. I am still doing my 6 mile  walk every morning. This is also helping with my weight I have lost  20lbs since last September due to advice on this site cutting out most carbs only having a glass of wine at the weekend. My question is should I increase Pred or does anyone think it is something else? I really don’t want to have to go up to a high dose again but am open to others opinions. 

Answering what someone else said on this site my hair  has also gone curly and I can’t do anything with it. I wonder if it will ever go straight again. 

0 likes, 29 replies

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  • Michdonn
    Michdonn margaret89358

    Posted

    Margaret, I my just back on my taper after a very brief flare when up to 16.5 from 6.5mg stabilized and back down to 6.5 in 2 - 5 mg steps. It takes what it takes to stay ahead of the inflammation. At 6.5 tapering to 6 using 52 Day DSNS. Still nursing a sprained piriformis, which is more painful than the PMR at this time.

    Treating the piriformis with ibuprofen.

    Good luck, stay active, positive and try to smile. ☺️

    • nick67069
      nick67069 Michdonn

      Posted

      I am not sure what therapy are you applying to sprained piriformis, but for that area in general, because the muscles are so deep, I use tennis ball that I place under me while laying on the floor and apply pressure to a "trigger" spots to increase blood flow and reduce pain. Before doing anything,apply worm, wet towel to the area for 5min or so. Stretch afterwards.

    • nick67069
      nick67069

      Posted

      warm,wet towel works better biggrin
    • Michdonn
      Michdonn nick67069

      Posted

      Hi Nick, I been going for a therapeutic massage, heating pad then a cold pack, CBD on my leg and foot. Read someplace that CBD might help with diabetic neuropathy. So I am giving it a try. Oh yes light walks. Tennis ball sounds like a good idea, I will give it a try. Thanks! ☺️
    • EileenH
      EileenH nick67069

      Posted

      Thought for a moment you had found a new version of leeches...
    • ptolemy
      ptolemy Michdonn

      Posted

      Where do you get a therapeutic massage, it sounds wonderful?
    • EileenH
      EileenH ptolemy

      Posted

      Mine has always been provided either by a massage therapist (in Germany, worked as the local footy team physio) or by a physiotherapist here in Italy.
    • ptolemy
      ptolemy EileenH

      Posted

      I have tried several physiotherapists, but none seemed to offer therapeutic massage that I am aware of. The swimming pool I go to includes a leg and foot massage in their spa area, but because I still have dressings on my leg they want to wait until my leg has healed, however they are more beauticians but may be as good, I don’t know. 
    • EileenH
      EileenH ptolemy

      Posted

      There is definitely a difference in how they are trained. I think they are far more aware of the benefits of therapeutic massage here. When I was looking for intramuscular stimulation in the UK I think I got the impression that their physios offered something useful. And I do know that sports physios will offer it - all forms of sports make great use of it these days. Especially manual mobilisation of trigger spots. Even on court!
    • ptolemy
      ptolemy EileenH

      Posted

      I do go to a sports clinic to see my osteopath. I have been told they don’t have very good physios there though. You would have thought they should be first class! 
    • Michdonn
      Michdonn ptolemy

      Posted

      Right here in Los Alamos, NM Ptolemy. We may be in the mountains, but we do have a few perks. Los Alamos is a very interesting little town. Think positive with a smile. ☺️
    • EileenH
      EileenH ptolemy

      Posted

      Hmmm - but what are the people who see those physios looking for? And WHY do they think they aren't good?

    • ptolemy
      ptolemy EileenH

      Posted

      I think they are hoping general aches and pains to be sorted out. My osteopath has a brother who is also an osteopath and he is pretty useless too. Friends go to my osteopath as the physios have let them down. I must admit the physios I have been to, just two, were not that inspiring, just using tens machines on me, thank goodness my osteopath has come back from Canada. 
    • EileenH
      EileenH ptolemy

      Posted

      I wouldn't need to pay the hourly wait for TENS! But I have had a few outstanding physios - and the best have been over here.

    • ptolemy
      ptolemy EileenH

      Posted

      I think physios must be like rheumies good, bad and indifferent. I now own a tens machine although I do not really use it.
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